Lyme Misdiagnosed As This?

Here is a superb list of 300 conditions Lyme disease can cause, e.g., blood coagulation or pulmonary embolism. If you are suffering from one of the following conditions, you should definitely be tested for Lyme disease.

* Abdominal pseudo-eventration
* Acrodermatitis chronica atrophicans (ACA)
* Acute Acral Ischemia
* Acute conduction disorders
* Acute coronary syndrome
* Acute exogenous psychosis
* Acute meningitis
* Acute myelo-meningo-radiculitis
* Acute peripheral facial palsy
* Acute perimyocarditis
* Acute pyogenic arthritis
* Acute reversible diffuse conduction system disease
* acute transitory auriculoventricular block
* Acute transverse myelitis
* Acute urinary retention
* Acquired Immune Deficiency Syndrome (AIDS)
* Algodystrophy
* Allergic conditions
* Allergic conjunctivitis
* Alopecia
* Alzheimer’s Disease
* Amyotrophic lateral sclerosis
* (ALS – Lou Gehrig’s Disease)
* Amyotrophy
* Anamnesis
* Anetoderma
* Anorexia nervosa
* Antepartum fever
* Anxiety
* Arrhythmia
* Arthralgia
* Arthritis
* Asymmetrical hearing loss
* Atraumatic spontaneous hemarthrosis
* Atrioventricular block
* Attention Deficit Disorder (ADD)
* Attention Deficit Hyperactivity Disorder
* (ADHD)
* Bannwarth’s Syndrome
* Behcet’s disease
* Bell’s Palsy
* Benign cutaneous lymphocytoma
* Benign lymphocytic infiltration (Jessner-Kanof)
* Bilateral carpal tunnel syndrome
* Bilateral facial nerve palsy
* Bilateral follicular conjunctivitis
* Bilateral keratitis
* Bilateral papilloedema
* Biphasic meningoencephalitis
* Bipolar Disorder
* Brain Tumor
* Brown recluse spider bite
* Brown-Sequard syndrome
* Cardiac Disease
* Cardiomegaly
* Cardiomyopathy
* Carditis
* Carpal tunnel syndrome
* Catatonic syndrome
* Cauda equina syndrome
* Central vestibular syndrome
* Cerebellitis
* Cerebral atrophy
* Cerebro-vascular disease
* Cervical facet syndrome
* Cheilitis granulomatosa
* Chiasmal optic neuritis
* Chorea
* Choriocapillaritis
* Chronic encephalomyelitis
* Chronic Fatigue Syndrome
* Chronic muscle weakness
* Chronic urticaria
* Cerebellar ataxia
* Cogan’s syndrome
* Collagenosis
* Complete flaccid paraplegia
* Complex Regional Pain Syndrome (CRPS)
* Concomitant neuroretinitis
* Conduction disorder
* Conus medullaris syndrome
* Coronary aneurysm
* Cortical blindness
* Coxitis
* Cranial Neuritis
* Cranial polyneuritis
* Craniopharyngioma
* Cutaneous B-cell lymphoma
* Dementia
* Demyelinating disorders
* Depression
* Dermatomyositis
* Diaphragmatic paralysis
* Diffuse fasciitis
* Dilated cardiomyopathy
* Diplopia
* Discopathy
* Disseminated choroiditis
* Dorsal epiduritis
* Encephalitis
* Encephalomyelitis
* Encephalopathy
* Endogenous paranoid-hallucinatory syndrome
* Eosinophilia
* Eosinophilic fasciitis (Shulman syndrome)
* Epilepsy
* Epileptic crises
* Episcleritis
* Epstein Barr
* Erythema chronicum migrans
* Exanthema (local and generalized)
* Extrapyramidal disorders
* Facial diplegia
* Fascicular tachycardia
* Fatal adult respiratory distress syndrome
* Fetal death
* Fever
* Fibromyalgia
* Fibrositis
* Focal nodular myositis
* Frontotemporal atrophy
* Generalised motor neuron disease
* Geniculate neuralgia
* Giant cell arteritis
* Gonarthritis
* Granuloma annulare
* Guillain-Barré Syndrome
* HLA-B27 negative sacroiliitis
* Headaches (severe)”


(Source: Bryan Rosner, Lyme Disease Insights Blog)


29 comments for “Lyme Misdiagnosed As This?

  1. Marcel GERIN
    December 21, 2011 at 3:46 pm

    Very informative listing, but here the doctors reject directly the Lyme disease and go in complicated explanations just to contradict the patient!But the last doctor I have seen ask for new blood analysis even the genetic identification (?)…..on the 30th I should have some news about all analysis, blood samples who where sent to laboratory in France…?

    • Danielle
      December 21, 2011 at 11:41 pm

      Hi Marcel, I hope you find a sympathetic doctor soon who is also informed and willing to help you!

  2. JasonMChicago
    January 23, 2012 at 3:32 pm

    Have a few of these on the list. The GOOD NEWS is that as we get healthier and attack the Lyme… the symptoms start to go away first in intensity then all together. I’ve only been treating Lyme for two months (through unconventional methods) and I have already noticed the anxiety has gone 100% away. The heart palpatations, muscle pain, neck pain, tmj issues, and facial pain / Bell’s Palsy have improved but those Lyme suckers like the face/neck.

    It’s exciting to know that tackling one thing – Lyme and its co-infections – is in my opinion a lot easier than finding a dozen “specialist” who try to fix joint pain, anxiety, fibromyalgia, etc. I was going crazy trying to find a “specialist” to help with this or that or this or that.

    Tackling Lyme (although hard) at least give me a map and route to what I need to do.


    • Danielle
      January 23, 2012 at 5:05 pm

      Hey Jason,
      That is great news that some of your symptoms have gone away and that others have been mollified due to your treatment in such a short period of time! Very exciting! Wishing you the best in improved health,

  3. March 2, 2012 at 12:58 am

    Hi Jeff

    I got a kick out of reading your reply to Lyme misdiagnosed as this i.e. “little suckers really like the head and neck.”

    Thanks for the giggle, I hope this finds you still doing better. I share your hesitancy to get wrapped up in the medical merry go round. Been there done that.

  4. JasonMChicago
    March 4, 2012 at 3:52 pm

    Whenever I have a “poor me” day I alway think of all the millions of people in the world who are misdiagnosed… and how I’m VERY LUCKY. I’m not in the medical merry go round any more. I know what I have and I’m doing things to get better. And for three months I’m doing damn good 🙂 I just ran into this article… MS is really LYME. Imagine if you were on the “MS fight” or the “Fibro fight” for years and years until you were told that you actually have Lyme. Hard right? I consider myself VERY LUCKY.

    • August 3, 2014 at 8:19 pm

      Deers can be a nuisance, they can cause harm to both thvmlesees and to humans. Yes, we have contaminated their land with our homes, our cars and our existence, but the fact still remains, how can we keep their lives safe if we are unable to remove ourselves from their land

    • August 4, 2014 at 7:35 pm

      I have a cold but I my children didnt pass this one along. My hubby did this time arnoud. I am glad the girls didnt really get this cold. I think they would have ended up in the hospital. Its nasty.

  5. JasonMChicago
    May 21, 2012 at 4:29 pm

    So I’m at the doctors’ office asking about high dose vitamin c. I talk to the doctor’s daughter. She tells me that she take glutathoine spray. I asked “Prevention?” She then says she give it to her dad (the doctor) so she takes it too. Her dad has dementia. I’m like did he rule out Lyme? She said he took some tests but had no idea which ones. I said I know a lab called Igenex they’re about 70 percent accurate. He should give it a try. (I personally believe LYME IS A CLINICAL DIAGNOSIS! but some people need a blood test). Anyway the more she talks the more obvious it is they really didn’t “rule out Lyme.” They probably got a ELISA or Western Blot and that’s it. She said his Dementia also had other weird symptoms. This is an alternative doc. One who has a pretty good reputation treating cancer patients. Get this his Dementia started with a BACTERIAL infection in his bladder!

    I continue my journey to health. But I’ve realized that we can’t blame doctors. If they themselves won’t do it FOR THEMSELVES then how on earth are they going to correctly diagnosis others?

    People recovering from Lyme are probably some of the most educated folks about health. They know about liver, lymph, detox, antioidants, frequency healing, etc. These are all thigns learned from this journey. 90 percent of doctors probably have NO IDEA whatsoever about frequency healing… most probalby don’t have an idea about detox or lymph for that matter. 🙂

    • August 3, 2014 at 5:26 am

      Thank so much for sharing the hororr that Lyme disease truly is. I know I have end stage Lyme with Babesia and Bartonella. I have lost my job and have little money left for further treatment.It is terrifying to see that even some of those who can afford the best treatment still have relapses. This is the truth of Lyme. When will there be enough victims?

    • August 4, 2014 at 7:05 pm

      You’re not alone. I’m down with yet another in a seiemng never-ending series of colds. From what I understand from the doctor at the clinic, it’s been a bad year, especially for sinus infections.And I don’t even have the excuse that I’m surrounded by children…

  6. JasonMChicago
    June 10, 2012 at 1:26 pm

    One of the things I’ve learned through this journey is “letting go.” My sister recently went on a trip and came back with joint pain, anxiety, fatigue, sleep problems, etc. My mother and I (who are both recovering from Lyme+) told her to get tested. She got an ELISA and said “nope, no Lyme.” She continues to suffer wandering pain, joint pain (especially the knees), anxiety, sleep problems, strange brain issues (she called my mom at 12:30am worried and complaining about things and being “stressed out”) but she refuses to look into Lyme+. She even mentioned to my mom that I’m over-exaggarating or something like that (I pulled the phone away to not hear the exact words, this is trick I use until I get my brain FULLY back). I used to get LYME RAGE with such comments… now they are just a little annoying so I pull the phone away to not listen to them (works really well). Anyway so she got bit in Feb and it is already June and she still wants to not-accept the possibility that she has Lyme+. I’m like go get another test or a clinical diagnosis or do other things to rule it out. What have you got to lose?

    This has taught me that if people are not willing to do it for themselves they will not be able to understand others. It is IMPOSSIBLE. It is like a man understanding pregnancy. No matter how many words are used to describe it, a man never can understand.

    I know a few people now who’d rather get on the merry-go-round and suffer because of their subbornness to even CONSIDER Lyme. Super weird to me.

    I will never understand but I’ve learned to let go. I’m healing and getting better and that’s the focus now….

    • jim
      August 19, 2016 at 9:41 pm

      Lyme and its co infections are rapidly spreading all over the world,It is more prevalent in this country than aids,It is time for the world news(David Muir) to cover the entire story.The public needs to know that elise and titer are junk tests that have a55 percent inaccuracy rate,western blot is a good but has false negatives but rarely a false positive, culture test is the best. I suffered 6 years before testing positive,and now have been in treatment for four moths I wound up in the hospital after the babesia infected my heart,i was very close to cardiac arrest,how many more of us will be infected and or die from this “weapons grade” bacteria?Because insurance companys cant turn a profit when the system is jammed with suffering people

  7. JasonMChicago
    June 20, 2012 at 9:01 am

    Jack Osbourne just announced he was diagnosed with MS and a lot of folks who healed from Lyme are asking him to get a test through IGENEX. I couldn’t agree more. Again, Lyme is no parade, but at least we’re dealing with the right diagnosis. I’m thankful for that EVERY single day. I’m getting better, stronger, and my body and spirit are healing… but I needed the right diagnosis to make it happen. I hope Jack considers it. It’s tough when you’re sick because we’ve been taught that “doctor knows best” when in reality you’ll need to get A LOT OF HEADS TOGETHER to beat this thing. Best, JM

  8. JasonMChicago
    July 14, 2012 at 12:04 pm

    Okay the more and more I think about what’s going on the more and more I think that Lyme+ co-infections are the culprit of A LOT OF CONDITIONS. My nerve pain has gone away in everywhere except my face. My legs are good, my arms never had nerve pain, etc. I hear that Lyme+ loves the trigeminal nerve… which is responsible for all the wonderful things in life like chewing, talking, kissing, etc. I’ve been doing a lot to help my nerve heal… but when I start reading the TN condition it seems so obvious to me (now) that something is interfering with the nerve communication to the facial muscles… hence Bell’s Palsy, TMJ, teeth pain, jaw pain, face pain, eye pain, all kinds of pain and problems. These pains don’t just come out of no-where…there’s something that is agitating the nerve. That something = Lyme+. I also notice that my PhD in Google Research helps 🙂 I Google MS and TN, Fibro and TN, and all come up. The reason the treatments are not successful is because they are not addressing the culprit – bugs! It’s so hard to find right answers because everything is so muddied up with these “so called” disease. There are dozens of names for the same disease. I think a broader disease like “Facial Pain” should be used for TMJ, TN, Bell’s Palsy, etc. A name like “GI Problems” should be used for celiac, Chron’s, IBS, etc. These are broad categories that say – something’s wrong. Of course the culprit could and many times is LYME DISEASE!

    • Val
      August 2, 2014 at 7:32 pm

      How is Victoria doing today? This was one of the first videos I wechtad when I found out I had Lyme disease and it broke my heart to see her suffering. It’s one thing to know what I as an adult may be going through, but it’s so much more difficult to see children suffering. It’s too bad someone has to suffer this way because of the lack of medical concern given to Lyme. I wish you continued improvement. It is obvious Victoria has a wonderful family.

    • August 3, 2014 at 10:21 am

      “話說回來 該是準備學習下廚的時候了” You really supeirsrd me for I think that you should be a person who’s good at making your own dishes, even including desserts. I do love cooking. It’s a planned yet spontaneous process – you never know what you get until the dish is donw. What I hate most is handling all aftermaths (cleaning wok, bowls and plates……)

  9. JasonMChicago
    July 31, 2012 at 10:46 pm

    Me again 🙂 I just have too many stories. So I’m getting my IV and I run into a guy at the doctor’s office. He was using the HBOT. I ask him what for he says an “autoimmune disease” that is attacking his kidneys. I keep taking with him and it looks like he has VERY SIMILAR SYMPTOMS with Lyme. He had psychiatric problems, back muscle pain, low vitamin d levels, taking b12, taking nutritional IVs, has “chronic fatigue syndrome.” I’m like dude this guy has LYME!!!! I even try to hit at it. He lives in Wisconsin… I’m like everyone has Lyme there and try to get him to consider getting retested. I even told him how the test are not that reliable. He says he has everything (mono, autoimmune, CFS, etc.) except Lyme. I was thinking “Dude you have LYME… all the others are the mis-diagnosis not the other way around!!!” Anyway I said what I could but I had to know my limit too… I don’t even know this guy. Just thought I’d share. Thanks Danielle for having such a great blog that people can share some stories.

  10. JasonMChicago
    August 13, 2012 at 6:02 pm

    I live in Chicago… and the congressman here SUDDENLY disappeared because of health issues. Usually when people have something it is pretty cut and dry but they kept it out of the news for months. Now I hear he has “Bipolar with depression and hypomania.” Sorry to act like a broken record but you know what I’m going to say LYME! I just somehow knew from the first report that this guy had Lyme. It was weird condition (maybe psychiatric) that no one could figure out (it seemed).

    Anyway that’s my “it’s all Lyme” story for today 🙂


    • August 3, 2014 at 3:09 pm

      You would be surprised how much of a theart deer pose to drivers. My father destroyed the front end of his truck when he hit a deer. The main thing to remember as hard as it may be is to remain calm when Bambi jumps onto the road. I encountered one of these situations in NJ and luckily I kept my cool and pumped the break a few times instead of slamming on it. Managed to work my way out of trouble.

    • August 4, 2014 at 7:26 pm

      Thanks for stopping by Jim! Of cursoe Godin is the master of to-the-point, so I’m playin’ second fiddle (or 1,002nd?). Are there any Twitter tools that you find you can’t live without that may not be on the list?

  11. Shari
    October 25, 2012 at 6:42 pm

    Ive had Lyme for just over 18 yr and have suffered daily.
    I was misdiagnosed with fibromyalgia so Ive not been treated except the shot the doctor gave me when i went in with the bullseye rash after pulling off a tick in Missouri.Im on disability and dont have the best insurance for these treatments . Does anyone have a clue what I should do ? Oh and theres no lyme doctors in Northern Kentucky I guess ! I cant think straight enough to get help. Its like Im giving up.I just writhe in pain all day everyday …I feel useless as a human being.:(

    • Eki
      August 3, 2014 at 1:50 am

      God Bless you Victoria! and your wonderful failmy for not giving up. My daughter has had lyme disease for 10 years. I know the suffering and pain you have gone through . Thank god I didn’t listen to the ignorance of 9 difference doctors who don’t believe that lyme disease can do this to someone. She is better now, after 7 months of IV’s but still continues with natural antibiotics and supplements. We are trying to make a difference. Team Lyme

    • August 5, 2014 at 10:29 am

      It is a definite boost, Alisa! Luck for the win! Tip: it’s okay to break out into sonutanepos hysterical giggles and little jigs at random times in the next few weeks.

  12. JasonMChicago
    October 26, 2012 at 5:23 pm

    SHARI you can try the “Salt/C” protocol. It is really cheap… and many have seen results by doing it for a long time consistently. Consistency is the key to any of these treatments I believe. Please read this site –

    • August 2, 2014 at 10:42 am

      I am so sorry your mom is so sick. I think your best answer shuold come from your mom’s doctor and he/she shuold be more than willing to sit down with you and discuss a care plan for her and what her status is. None of us online can truthfully discuss your mom’s case better than her own doctor because only he/she would know exactly how progressed your mom’s disease is. Good luck to you and your mom. Please call her doctor and arrange a meeting with him without your mom of course. If you live out of town, call and tell his secretary that it is imperative that you speak with him about your mom’s condition. Before you do see or talk to him, make a list of all your questions including the ones above and include questions about DNR and hospice. Good luck to you.

    • August 5, 2014 at 10:09 am

      I empathize. A few days ago, I was feinleg pretty low about my writing and then I got the WotF finalist call. So unexpected, and so affirming. Maybe I’ll place in this quarter and maybe I won’t, but making Finalist has given me a boost to keep going and to keep going with better cheer.

  13. September 6, 2015 at 7:35 am

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