So this part can be really tricky, as symptoms for Lyme are vast and vary from person to person, which is why Lyme disease is often misdiagnosed as something else. The symptoms for Lyme can range from slight fatigue, to joint pain, to depression, seizures, and even cardiac failure. The following is a superb comprehensive list of Lyme disease symptoms from The Canadian Lyme Disease Foundation:
Lyme Disease (commonly misspelled as Lime or Lymes ) symptoms may show up fast, with a bang, or very slowly and innocuously. There may be initial flu-like symptoms with fever, headache, nausea, jaw pain, light sensitivity, red eyes, muscle ache and stiff neck. Many write this off as a flu and because the nymph stage of the tick is so tiny many do not recall a tick bite.
Lyme Disease, SYMPTOMS & CHARACTERISTICS, a compilation of peer-reviewed literature reports
The classic rash may only occur or have been seen in as few as 30% of cases (many rashes in body hair and indiscreet areas go undetected). Treatment in this early stage is critical. The Lyme Rash
If left untreated or treated insufficiently symptoms may creep into ones life over weeks, months or even years. They wax and wane and may even go into remission only to come out at a later date…even years later.
With symptoms present, a negative lab result means very little as they are very unreliable. Read here. The diagnosis, with today’s limitations in the lab, must be clinical.
Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud’s Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn’s disease, ménières syndrome, reynaud’s syndrome, sjogren’s syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses.
If you have received one of these diagnoses please scroll down and see if you recognize a broader range of symptoms.
If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.
The one common thread with Lyme Disease is the number of systems affected (brain, central nervous system, autonomic nervous system, cardiovascular, digestive, respiratory, musco-skeletal, etc.) and sometimes the hourly/daily/weekly/monthly changing of symptoms.
No one will have all symptoms but if many are present serious consideration must be given by any physician to Lyme as the possible culprit. Lyme is endemic in Canada period. The infection rate with Lyme in the tick population is exploding in North America and as the earth’s temperature warms this trend is expected to continue.
Symptoms may come and go in varying degrees with fluctuation from one symptom to another. There may be a period of what feels like remission only to be followed by another onset of symptoms.
PRINT AND CIRCLE ALL YES ANSWERS ( 20 yes represents a serious potential and Lyme should be included in diagnostic workup )
Symptoms of Lyme Disease
The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite
Rashes on other parts of your body
Rash basically circular, oval and spreading out (more generalized)
Raised rash, disappearing and recurring
Head, Face, Neck
Unexplained hair loss
Headache, mild or severe, Seizures
Pressure in head, white matter lesions in brain (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell’s Palsy, Horner’s syndrome)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems (unexplained)
Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose
Eyes/Vision
Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes
Ears/Hearing
Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears
Digestive and Excretory Systems
Diarrhea
Constipation
Irritable bladder (trouble starting, stopping) or Interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
Musculoskeletal System
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)
Respiratory and Circulatory Systems
Shortness of breath, can’t get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, Heart blockage
Neurologic System
Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Psychological well-being
Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety
Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks
Reproduction and Sexuality
Loss of sex drive
Sexual dysfunction
Unexplained menstral pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain
General Well-being
Phantom smells
Unexplained weight gain, loss
Extreme fatigue
Swollen glands/lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a “flu-like” illness, after which you have not since felt well.
Low body temperature
Allergies/Chemical sensitivities
Increased effect from alcohol and possible worse hangover
(CanLyme)

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My name is Claire Bishop and I’m volunteering for the Ridgefield Lyme disease Task Force. My aim is to get the word out about the forthcoming May Health fair to fellow Lyme sufferers.
Please feel free to contact me at
clairebishop75@gmail.com
Free Lyme Disease Patient Seminar and Health Fair
Tuesday Evening May 3 at West Conn Westside Student Center – 6 to 9 pm
The Impact of Lyme Disease: Body and Mind
April 5, 2011-Patients seeking support in their recovery from Lyme and other tickborne diseases will want to attend thefree seminar and health fair event The Impact of Lyme Disease: Body and Mind scheduled for Tuesday evening May 3 at Western Connecticut State University Westside
Student Center, 6 – 9 pm. Speakers include Dr. Robert Bransfield, president of the International Lyme and Associated Diseases Society (ILADS), Pat Smith, president of the Lyme Disease Association (LDA) and Denise Lang- Grant, LPC, author of the bestselling book “Coping with Lyme Disease: A Practical Guide to Dealing with Diagnosis and Treatment.” The health fair, which opens an hour prior to the seminar, features practitioners, products and services specifically related to tickborne diseases. Health fair doors open at 6 pm with speakers starting at 7. For additional information contact Karen Gaudian at RLDTF@comcast.net. The event is sponsored by the Ridgefield Lyme Disease Task Force in recognition of Lyme Awareness Month.
The West Conn Westside Student Center is located at 43 Lake Avenue Extension,
Danbury, CT 06810. Driving directions to the Westside location and a map are available at:
http://www.wcsu.edu/campuscenter/main.htm
May is Lyme Awareness Month.
I have just been diagnosed, after a year of inflammed knee symptoms. Left knee was inflamed in Maine and the Sports Doc, tested my blood and test was positive. Prescribed Doxycycline one kne was affected, now both, and I’m getting various slight flu like sysmtoms. Is this normal? what else should I consider?
Hi, David. Sorry to hear but glad you were tested finally. Well, the symptoms are normal for Lyme disease, and symptoms can migrate. If you are still on the Doxy, you could be having what is called a herxheimer reaction – a worsening of symptoms due to killing of the bad guys. If I were you, I would try and get myself to a Lyme literate doctor as soon as possible as you really want to treat Lyme disease aggressively. If you go to my post here, you will find a few places that will help you locate LLMDs that are close to you for free
http://mylymediseasetreatment.com/?p=985
My sister is dying at a university hospital. She has a positive Western Blot but previously was diagnosed ALS. The doctors tell us we are in denial and should accept her fate. They do not want to do the antibiotic treatment. She lost ground in September due to digestive complications from the antibiiotics. She was improving when taking them. Now we are on a deathwatch and no one will listen or help. Currently she has nothing to lose, but the doctors are so blindsided by a diagnosis that was given way too fast in the first place. I will and plan to do what it takes to save others from what she has suffered. Your article fuels my ambitions to publicize and fight for LD patients. The time frame here since the ALS diagnosis is ten months.
Gosh, Cathy, I am so very sorry to hear of your sister’s story and what has transpired. You are very brave and thank you for sharing with others on here. Wishing you and your sister a positive outcome if you are somehow able to get her proper treatment.