Top Pediatric Lyme Disease Doctor, Dr. Charles Ray Jones, Update

Charles Ray Jones, M.D.
Pediatric & Adolescent Medicine
Lyme Disease

111 Park Street, First Floor
New Haven, CT 06511
Phone: 203-772-1123
Fax: 203-772-0682

July 20, 2011

Dear Friends:

I want to update you regarding the progress in my legal
defense. This of course pertains to the charges which were
brought against me by the Connecticut Department of Public
Health, and heard by the Connecticut Medical Examining Board

Contrary to some newspaper accounts, I have not lost my
legal battle. On the contrary, I have continued to practice
without restrictions, aside from monitoring, during the more
than six years that I have been fighting these charges: as
a result, several hundreds of children have been able to
receive treatment for their tick borne diseases!

Appeals are underway, and it is imperative that these go
forward. (See below for more details). This has required a
flurry of legal activity, and as a result my legal defense
fund is again seriously in arrears. It would not be
possible for me to fight these charges without the backing
of the Lyme community, and it is time once again to appeal
to you for donations. No amount is too small! It is with
deep appreciation that I ask you to please send your checks
as follows (the Paypal option is not available at this time):

“Pullman & Comley Trust Account for Dr. Charles Jones”
(Note “gift” in the memo field)

Mail to:
Elliott B. Pollack, Esquire
c/o Pullman & Comley, LLC
90 State House Square
Hartford, CT 06103-3702

For the remainder of this letter, I will focus
on developments since my last communication to you. For
more information regarding the history and details of my
legal defense, please refer to the website

As you may recall, the first set of charges
pertained to two Nevada children who were successfully
treated by me. The CMEB ordered a two year period of
monitoring, now concluded, as well as a $10,000 fine, which
has been held in escrow pending the outcome of the
litigation. Of particular concern in that case, the CMEB
imposed of a four-part, highly restrictive standard of care
for the diagnosis and treatment of Lyme disease. That
standard would set a dangerous precedent, making it even
more difficult to treat Lyme disease according to clinical
judgment, if allowed to remain unopposed. It has been
suspended, pending the outcome of my appeal.

The central claims on appeal pertain to two key points:

• The bias of one of the members of the hearing
panel, Dr. Senechal, who had made highly derogatory
statements about Lyme practitioners and the laboratories to
which they refer while serving on the hearing panel;

• The application an improper standard of proof to
the proceedings, which made it easier for the CMEB to rule
against me.

Both of these claims were rejected by the Appellate Court.
We are now planning to seek certification to appeal to the
Connecticut Supreme Court, where we are optimistic that we
will receive a just and appropriate hearing. The petition
for certification is due by the end of this month.

A second set of charges also was brought against me. These
involved three different cases, which were “conjoined” into
one proceeding. Once again, none of the patients involved
had sustained any harm from treatment, and my attorneys
succeeded in having the first of these cases dismissed
entirely. They also succeeded in having Dr. Zemel’s
testimony as an expert witness completely dismissed by the
CMEB as biased; this will limit his ability to testify in
this capacity in other proceedings against LLMD’s as well.

The second case involved a child with an EM rash which
was documented but not treated at Stamford Hospital; and who
also tested positive for Babesiosis. This case was quite
complex medically, raising my concern over the relative risk
of a treatment delay. It also raised questions about the
appropriate diagnosis and treatment of Babesia infections.
Dr. Peter Krause was called in to testify as an expert
witness by the Department.

The remaining case involved my decision to order diagnostic
testing for two youngsters before I could schedule an office
visit. Although the tests were conducted, the patients
cancelled their appointments, and were never seen or treated
by me.

The Connecticut Medical Examining Board found against me in
both of these cases. As a result, they imposed a second
$10,000 fine (also held in escrow, pending the outcome of
the second appeal), and four more years of monitoring. The
cost of this monitoring has been incredibly expensive, due
to the need to retain a commercial monitoring service,
because I could not locate any physician in my immediate
practice area willing to take on the responsibility. All of
the monitor’s reports have been positive. In fact, the
monitoring agency recommended a reduction in monitoring as a
result, but their proposal was rejected by the CMEB.

The Superior Court sustained my appeal of one of the issues
in the second case, which is a victory: the CMEB had found
me guilty of failing to make a differential diagnosis. This
was not something that the Department of Public Health had
charged me with in the first place and, as a result, I had
no opportunity to defend myself against this charge during
the proceedings. The Connecticut Medical Examining Board is
going to reconsider this issue and the Department of Public
Health has filed a motion to re-argue the Superior Court
decision. We have appealed additional aspects of the
Superior Court decision to the Appellate Court.

I hope that this update has been helpful in explaining the
scope of the charges which I have been fighting, as well as
the complex and extensive legal defense that has been
mounted on my behalf. I hope too that you will be able to
donate to my legal defense fund as soon as possible, in
whatever amount your circumstances permit.

Very truly yours,

Dr. Jones

Charles Ray Jones, M.D.


1 comment for “Top Pediatric Lyme Disease Doctor, Dr. Charles Ray Jones, Update

  1. Jessica adams
    June 14, 2014 at 3:38 pm

    I have 2 children that were diagnosed with lyme. We live in Massachusetts and there has been a significant number of children diagnosed with lyme. Most critical is my 11 yr old son. Bullseye rash may 2011. Test positive treated amox 3 wks. June severely swollen knee could not straighten or bare weight treated w/amox 3 wks. July ankle swelling / August knee swelling again all swelling episodes caused severe pain. Advised to see infectious disease who denied And dismissed it was still lyme but put him on another course of amox to make me feel better and advised to see a rheumatoid specialist if continues. Little did I understand the consequences of all the antibiotics. May,June, July 2012 stomach aches, headaches, nausea, diarrhea, constipation cramping. Aug. rushed to hospital extreme pain vomiting, temp below normal ct scan showed stool filled colon, bowel sounds hyperactive s/p emesis, differentials include gastroenteritis, esophagitis, appendicitis, pancreatitis, biliary disease. Lack of fever. 2nd cat scan showed retrocecal tip appendix, ileococlic lymph nodes present. Temp 36.2, WBC 14, hct 31.9, bump wnlno appendix visualized. No appendix visualized. Possible appendicitis they can’t see it recommend appectdecomy. The appendix was Non perforated or gangrene once removed. Low temp. O2 sat 100 prior to surgery. Appendix was fine / didn’t need to be removed. It was lyme infecting his system. May 2013 cellulitis lesion on neck and ear actually same side of bullseye rash. Weeks of tests ointments antibiotics it only got bigger and worse. Temp 98.0 area very painful can’t talk chew without intense pain. Yellow blisters now. Finally diagnosis after 4 weeks herpes simplex Ottis external (ICD-054.73). 3 different antibiotics during this time. Now may 2014 for the past few years have noticed focusing problems, became very unorganized, clumsy, teacher thought ADD. I wasn’t sure why he was so unfocused it got worse and this year has been effecting his school work and sports. Oh and he also became very over sensitive to smells, sounds and lights. I was thinking sensory disorder, maybe ADD. Up till all this he was a very healthy happy boy. He has played soccer and baseball since he was 2. Hockey since 5, football since 7 and lacrosse. Grades always excellent. I have 4 kids with no attention or sensory disorders. Now the worse thing in the world 2 weeks ago he seemed to have an urgency to pee. I thought UTI we were away and he was in a hot tub a lot. So after 3 days of noticing it I made a dr apt. At the visit they told me he has very high sugar levels and to take him to a hospital possible diabetes. Shocked confused scared. No one in our family has type 1 diabetes he is a very active boy who I make eat a well balanced diet daily he is no way over weight. Hospital tests show 2 out of 3 antibodies to diagnosis as type 1 diabetes possibly brought on by a virus!??? I need help please I know it’s lyme attacking his immune system I need to help him. I am so desperate! Now my daughter had complained about hip pain 2012 took her to dr. They thought possible lyme I had not seen a tick or bullseye but blood work confirmed she has lyme. Last year she was sick a lot, she became very anxious had bouts of hives would no longer leave my side ” separation anxiety” this coming from a very outgoing social happy little girl who was in dancing gymnastics loved going to her friends house. She didn’t wNt to go anywhere and was always anxious. This year she is having lots of gastro problems. Pain, cramping, constipation, diahreah, she has black circles under her eyes, has developed chronic allergies and post nasal, she has vertigo gets car sick. I’m so scared pleAse help me!
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