Steps to Learning About Lyme Disease: MAY IS LYME DISEASE AWARENESS MONTH

11 Steps to Learning About Lyme Disease

Step 1. Your chances of getting Lyme disease are more than 10 times that of your getting West Nile Virus.

Step 2. Lyme Disease is the #1 infectious disease in the U.S., surpassing many times over AIDS and the West Nile Virus combined.

Step 3. Tests for Lyme Disease are often extremely unreliable. Hence, you need to have your blood tested through a lab that specializes in testing for Lyme disease and other tick-born diseases (IGeneX Lab).

Step 4. Lyme Disease is most often transmitted to a host by ticks, but many other biting blood-sucking insects can transmit the disease, e.g mosquitoes.

Step 5. Sadly, most primary care physicians know little to NOTHING about Lyme Disease (although many believe they do). Typically, only Lyme literate doctors (LLMDs) treat Lyme Disease effectively. LLMDs are few and far between, so you should contact The International Lyme And Associated Diseases Society (ILADS) for more information and to get a Lyme literate doctor referral.

Step 6. Lyme Disease, if not caught right after you knew of a bite can become chronic, extremely hard to treat, with the only hope for recovery (or better quality of life) often being long term antibiotics (sometimes years of medication). Even with months or years of medication, relapses are very common.

Step 7. The CDC estimates that the number of people infected with Lyme disease each year is closer to ten times the number they have on record (making the number over 400,000 new cases a year!) Therefore, you most likely know someone with Lyme Disease who doesn’t know they have it or have been told they couldn’t have it. If you know someone who has back problems, knee problems, anxiety, headaches, or has been diagnosed with Fibromyalgia, Chronic Fatigue Syndrome, ALS, MS, etc. be suspicious of Lyme and urge them to pursue more information through ILADS.

Step 8. You can be infected with the bacteria (Borrelia Burgdorferi and 5 sub-species) that cause Lyme Disease and you may not develop overt symptoms for years or even decades after the infection – the disease can hit you at any time. Some people who are infected have no symptoms at all, minor symptoms such as insomnia or headaches, or develop debilitating symptoms often diagnosed as Chronic Fatigue Syndrome, Fibromyalgia, Parkinsons, MS, Lupus, ALS, Alzheimer’s, psychiatric illness. Note: you don’t have to “look sick” to be very very ill. Just think about it, would you know just by looking at someone that they have a migraine or that they experience transient cardiac arrhythmia?

Step 9. The #1 cause of Lyme Disease death is suicide. As a Lyme Disease sufferer myself, the symptoms are often unbearable – I liken them to Chinese water torture and I think at times that if anyone had to live in my body for a minute, they’d be screaming to be let back out.

Step 10. Lyme Disease can be fatal.

Step 11. Much of the reason so many Lyme disease sufferers are going undiagnosed and poorly treated is that Lyme has become a “political” disease. The IDSA (Infectious Disease Society of America) who was recently investigated by the General Attorney of Connecticut for mishandling of the writing of the Lyme Disease guidelines, state that Lyme Disease is hard to get and easy to cure with a few weeks of antibiotics. They do not take into account the many co-infections (other bacteria ticks carry) that often make Lyme even more virulent. Their claims of short term antibiotics “curing” Lyme Disease have been disproved. They also state that someone has symptoms after the standard 30 day course of antibiotics, what they have is “Post Lyme Syndrome” (don’t you love all these syndromes) and not Lyme Disease and will not treat it any further; despite the fact that many patients have gotten well after many months or years of antibiotic treatment. There is a lot of documentation of persistence of the spirochetes in the bodies of humans and animals, despite short and long term treatment with antibiotics.

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