More Proof That Chronic Lyme Exists – Take That IDSA!

In January of 2010, The Infectious Diseases Society of America (IDSA) voted to stick with their flawed Lyme disease medical guidelines which has misguided doctors and caused the prolonged suffering, even the deaths of many infected with the disease who went undiagnosed and/or who received inferior care due to the IDSA’s strict guidelines of how doctors and also insurance companies should handle the treatment of Lyme disease patients.

The review of the guidelines was prompted by a 17-month long antitrust investigation led by Attorney General of Connecticut, Richard Blumenthal, where he found that the authors of the 2006 guidelines had significant conflicts of interest: they held commercial interests in Lyme-related diagnostic tests, vaccines, and insurance. They also cherry-picked those studies which supported their bias that Lyme disease is “hard-to-get and easy-to-cure”, and were found to have suppressed scientific evidence and excluded opposing views (the majority of the studies used to support their guidelines were those done by authors of the guidelines!)

There is much peer-reviewed literature showing that chronic Lyme disease does exist and that the infection can persist despite long-term antibiotic therapy. A peer-reviewed article is one that has been read by experts on the article subject that are peers of the author, prior to the article being published in a journal. In reviewing the article, the experts look for errors and may recommend changes be made to the article or that an article not be published at all. This process of peer-review is to make sure that the highest quality articles are published.

Chronic Lyme disease certainly does exist as I am living proof of it along with legions of others like me. Check out this recent article published by Dr. Daniel Cameron:

Proof That Chronic Lyme Disease Exists
Daniel J. Cameron

Abstract
The evidence continues to mount that Chronic Lyme Disease (CLD) exists and must be addressed by the medical community if solutions are to be found. Four National Institutes of Health (NIH) trials validated the existence and severity of CLD. Despite the evidence, there are physicians who continue to deny the existence and severity of CLD, which can hinder efforts to find a solution. Recognizing CLD could facilitate efforts to avoid diagnostic delays of two years and durations of illness of 4.7 to 9 years described in the NIH trials. The risk to society of emerging antibiotic-resistant organisms should be weighed against the societal risks associated with failing to treat an emerging population saddled with CLD. The mixed long-term outcome in children could also be examined. Once we accept the evidence that CLD exists, the medical community should be able to find solutions. Medical professionals should be encouraged to examine whether: (1) innovative treatments for early LD might prevent CLD, (2) early diagnosis of CLD might result in better treatment outcomes, and (3) more effective treatment regimens can be developed for CLD patients who have had prolonged illness and an associated poor quality of life.

Daniel J. Cameron, “Proof That Chronic Lyme Disease Exists,” Interdisciplinary Perspectives on Infectious Diseases, vol. 2010, Article ID 876450, 4 pages, 2010. doi:10.1155/2010/876450

CLICK HERE to read the full article

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16 comments for “More Proof That Chronic Lyme Exists – Take That IDSA!

  1. Mason Kuhn
    July 19, 2011 at 5:40 pm

    Thanks for sticking up for the sick! My family has been devistated by Chronic Lyme.

    Check out this video I made of our son’s battle with Lyme Induced Autism

    http://www.youtube.com/watch?v=k4X2LdQmHrY

    • Danielle
      July 19, 2011 at 6:23 pm

      Thank YOU for sharing your family’s courageous story, and my heart goes out to you all. What a beautiful family, and it is wonderful to see how your son has made such progress since being properly diagnosed and treated – great to see his smiling face, and wishing him continued improvement! I’d love to post your video on my site for others to see if that is OK with you?

    • August 2, 2014 at 10:36 pm

      Shows like this do little to connivce the masses that Chronic Lyme and all of it’s symptoms exist. I could strangle D. Phil for even suggesting that this is a psychosomatic illness. Once you put that out there you will invariably get a large segment of the population believing that’s all it is. Dr. Phil is a horses ass and not the vehicle to get Lyme Disease recognized for what it is. He essentially was saying that he didn’t believe the 2 young women but did think his staffer was ill. Cont.

    • August 3, 2014 at 10:24 am

      you need to research milaerns like, Magnesium, Potassium, calicum, vitamin D, Zinc, theses are the building blocks to life and great health. research your pH balance once you learn to keep your pH balanced pain will go away. testing can be done at home. get some pH test tape at your local health food store. on the back of the pH tape dispencer is a color chart, 2 hours after your meal or drinks test your saliva it takes 45 seconds.if you need more help let me know. fred

  2. Mason kuhn
    January 27, 2012 at 11:45 pm

    Hey Danielle,

    My scholarly project “long term antibiotic therapy may be an effective therapy for children co morbid with Lyme disease and autism spectrum disorder” was accepted at the peer reviewed medical journal “medical hypothesis”!!!!!

    • Danielle
      January 28, 2012 at 11:09 am

      Hey Mason!

      That is so incredible!!! What an accomplishment! You’re a total rock star in my book!

      Please do send me a link to the article abstract or full article if it becomes available online as I’d love to read it and also share it with everyone.

      Wishing you and yours the best in health – hope all is going well for your son,

      Danielle

      • Mason Kuhn
        February 21, 2012 at 5:50 am

        Danielle,

        My wife created a blog all about our Lyme Autism journey. Check it out when you get a chance. Also, my paper should be in print next month. I will send you the link when it is. On the blog my wife has a link to your video and a link to my original paper.

        http://our-lyme-autism-journey.blogspot.com/

        • Danielle
          February 21, 2012 at 10:39 pm

          Hey Mason,

          That’s so great to hear. I just posted an article on here directing people to her blog, so check out the link to it below…looks great – kudos to your wife – and so happy to see that your beautiful family is on the mend. 🙂

          http://mylymediseasetreatment.com/?p=2443

          • Mason
            February 24, 2012 at 4:41 pm

            Danielle,

            Thank you very much for your kind words and excellent posts. Our paper is offically in print. Below is a link to the abstract and the images.

            http://www.sciencedirect.com/science/article/pii/S0306987712000485

            I wish you health.

            Mason

          • August 3, 2014 at 3:47 am

            Saying this disease doesn’t exist is like sinyag cancer doesn’t exist. I too am currently being diagnosed after about 7 years of suffering and yes, if left to progress too long it can chew away at your brain, your skeletal system, your heart, your lungs, and everything. It’s very very painful, like having a heart attack in different parts of your body every few hours. It’s very hard to breathe often the air is coming in but the oxygen is short and it’s very terrifying. It moves all around!

          • August 4, 2014 at 7:06 pm

            ABOUT HEALTHY LIVING BY REX RUSSEL. On P125 it mentions dcrotos prescribed high fat diets, exercise, bed rest, isolation for TB when antibiotics were not avialable. It mentions a lady that recovered via this and stayed on this diet of eggs, lots of steak, breads, nuts vegetables and (unfortunately he says) pork. I too found that fat from beef/lamb improved all my lyme symptoms, inc. numbness/extreme fatigue. I cut the protein, eating more fat & veggies.

    • August 3, 2014 at 7:59 am

      Lyme disease is quite prvleeant in Maryland and I married and moved there. One of the best doctors on the east coast who treats and believes in Chronic Lyme disease happened to live near me. He saved my life; I had adrenal failure, thyroid failure, heart, My bands in my western blot were so high I was treated with antibiotics for three straight years Hot weather and sweating helps the disease, as I have a bacteria in my body that LOVES cold;spirochetes, hence, Maryland weather seems to help me.

    • August 4, 2014 at 7:09 pm

      I am sorry you are in so much pain I can TOTALLY relate to you seerve pain, nerve pain is the worst and I know how it can be everywhere. The only thing that helps me is I try to remember more breaks are ahead. So utterly tough..I know, this kind of pain makes me tremor and so nauseas.

  3. June 16, 2014 at 5:48 pm

    Danielle,

    My second Lyme/Autism article was recently published;

    http://www.sciencedirect.com/science/article/pii/S0306987714002333#

    I take some shots at the IDSA and Wormser in this one.

    Hope all is well.

  4. August 3, 2014 at 2:11 pm

    research info on your pH balance, if your pH is below 7.4 pH you have poor heltah. raising your pH by adding 1 teaspoon of baking soda to a glass of water 2 times a day. the drink as much water throught out the day to help flush out toxins. start eating dark green vegges, lemons, limes, bragg apple cider vinegar will help to raise your pH as well. Research vitamins, minerals are the building blocks to great heltah and life.

  5. August 4, 2014 at 7:24 pm

    My daughter is just 12 years old and it is so hard, she has been sufefring for 3 years. We have a doctor which is great, but she is still sick and had a lot of complications from the Rocephin and her second PICC line =( More needs to be done. You can watch her video by searching for Lyme’s Youngest Victims

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