Lyme Advocate Speaks Out On IDSA’s Attack On Chronic Lyme Disease

Boston Lyme disease awareness advocate, Paul Mall, speaks out on IDSA’s attack on Chronic Lyme disease with their disinformation campaign, er, IDSA Lyme guidelines.


Fight IDSA Stranglehold on Meaningful Treatment for Chronic Lyme Disease

It seems the Guideline Authors have gotten wind of our planned protest and have released an article trying to dismiss us.

Let’s let them know who is truly ignoring the SCIENCE!

This is rather amusing considering they are the ones completely ignoring the science.

Here is a link to the summary of the latest article published by 8 out of 10 of the IDSA Lyme Disease Guidelines Authors:

Click here for some response to this article.

They are ignoring the very SCIENCE they claim does not exist! For more information on the Science use link below. Feel free to print and share the Science with any skeptics

Now more than ever we need everyone on board for this Important event to Protest the IDSA Guidelines and their Authors who continue to feed lies into the community.

See you all in Boston,

To read the entire article on, go here


137 comments for “Lyme Advocate Speaks Out On IDSA’s Attack On Chronic Lyme Disease

  1. JasonMChicago
    February 8, 2012 at 2:33 pm

    I don’t see why there is so much politics around this. Especially since it is something that sometimes shows up in blood test. Seriously what’s all the fuss about. Interesting story…

    So I went to the new dr today to get vitamin c IVs. I’m sitting in the office and educating the dr on lyme disease and telling her I had “fibro-like symptoms.” I tell her that I believe most fibro cases are really Lyme and the others are flouride-posioning. She says the head of the clinic just wrote a book on firbo and he’d disagree with you. So then while getting my IV I read some books about fibro in the office. EVERY symptom is identical. Also there are supplements that are DEAD giveaways to why someone with a fibro diagnosis gets well. They’re taking NAC which helps with glutathione. Why is someone with fibro taking this! Why are they taking immune boosters? That’s because the REAL culprit is Lyme. Instead of people being given a fibro diagnosis as default the VERY FIRST thing that should be tested for almost ANY chronic condition is Lyme. I would go as far as to say a treatment for Lyme should be given and if the symptoms subside then BAM! you got the diagnosis! Instead we put people on this merry-go-round of fibro/cfs/ms/anxiety/depression/myfascial pain/etc.

    Although my diagnosis was late… and there’s work to be done. I am VERY THANKFUl and happy that I got that one test done (by chance) for Lyme and I got the diagnosis and the treatment has already made an impact (3month). I cannot IMAGINE going on the merry-go-round for decades… as I’ve heard many people go through. I’m thankful every day. Every single day, because I am now helping my body fight the RIGHT disease.

    (Danielle… I like your blog a lot that’s why I keep posting on it 🙂 Also it’s a way for me to share what I’m learning along the way)

    • Danielle
      February 8, 2012 at 8:15 pm

      Thanks, Jason. Glad you are finding the site useful. Your comments are great and they are really helpful to others, so definitely post away 🙂 I avoid flouride whenever I can, e.g., toothpaste, drinking water. Def a big cause for concern!

    • dana
      July 29, 2013 at 1:36 pm

      You are 100% accurate in your comment that most other illnesses start with Lyme. Everyone should be tested for the Lyme. Great Job

  2. JasonMChicago
    February 13, 2012 at 11:49 pm

    I sometimes look at natural cancer treatments (since there is a lot more info on that than Lyme) and it is interesting to see that basically the treatments of cancer and Lyme or other chronic disease are very similar.

    check this out. it talks about oxygen, free radicals, enzymes, psychological stresses, pH levels, pretty much all the same stuff people with Lyme work to get corrected. I think that for a lot of these conditions (that’s a pretty nice word for this disease:) is getting the body and ALL its systems in balance. When that’s done the mighty immune system can fight the disease in those “hard to reach places.” If all its energy is not spent on on the many things out of whack then it can take care of the intruder… UNLIKE any medication or natural supplement can. Our real doctor is our body, we just have to give it the right tools. It can put up a fight like no one else can. The very first thing I think is getting the right diagnosis… if we are “treating” some other mistaken disease there is not chance. We are lucky to know this is Lyme and we can give our body what it needs.

    I’ve been only treating the right disease for 3mths and have started to see results unlike the 1.5-2 yrs when I was treating the wrong disease. Diagnosis is SO IMPORTANT and the very first step.

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