Because of the hullabaloo over treating chronic Lyme disease, many Lyme-literate doctors (LLMDs) prefer to keep a low profile which is why it is often difficult to find an LLMD in your area or nearby. As well, many forums and Lyme discussion websites will not publish the names of LLMDs for fear that the doctors will be targeted for treating chronic Lyme disease; thus, these physicians’ names are often kept private. Luckily, you can contact one of the Lyme disease organizations I have listed below and request a doctor referral for a Lyme-literate physician (it’s free!). Seeing a Lyme-literate doctor is important because they have experience in treating not just acute Lyme disease, but chronic Lyme disease and the many co-infections that ticks can transmit. Here is how to get a Lyme-literate physician referral in your area:
1. The International Lyme and Associated Diseases Society (ILADS) is a great way to get a Lyme-literate Doctor referral, and is probably the best place to start. Go to their website www.ilads.org , email them at contact@ilads.org or call them at 301-263-1080 (they are on EST). ILADS is the “gatekeeper” for most Lyme docs in the United States. They may also be able to point you in the direction of an LLMD in another part of the world if you reside outside of the Unites States.
2. Turn The Corner – an amazing Lyme disease foundation that supports the research, education, awareness, etc. of Lyme disease – will help you try to locate an LLMD near you for free: “Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link http://turnthecorner.org/content/selection-proper-physicians
And here is their email for inquiries (they will only answer by email): medicalinfo@turnthecorner.org
3. Lymenet.org has a Lyme disease forum where they have a “Seeking a Physician” section. Here, members of the forum will give you the contact information for LLMDs in your area from www.lymenet.org. When you go to Lymenet.org’s homepage, click on “Flash Discussion,” and then click on “Seeking a Doctor.” You will be asked to enter your city, state, and contact information, and a Lymenet.org forum member will contact you with a physician referral.
4. The Lyme Disease Association has a Doctor Referral Service: Go to www.lymediseaseassociation.org and click on “Doctor Referral.” You just need to give them your contact information and they will give you a doctor referral.
My son has classic symptoms of chronic lyme disease. For the past year he has been in misery. He has 35 or more symptoms. I have been doing a lot of research and my doctor is trying to get me to a LLMD. Please help me with more names in the northern va area.
also Dr Shor in Reston
So sorry to hear! There is a well-known and respected LLMD in Washington DC which I would recommend, even if you have to drive a bit of a ways to see him… http://www.jemsekspecialty.com/drjemsek.php
Please let me know if I can be of any further help and I hope your son gets in to see him or another LLMD soon so he can begin on the road to recovery…
I am currently a patient of your recommended LLMD in Washington DC and he is great. I have been seeing him for 4 yrs and 2 months and he is very helpful. However, the trip from the North Carolina-South Carolina border is very hard on me. I would like the name of a good LLMD in SC or eastern Tennessee. Can anyone help with that to my email?
My adult son most likely has Lyme and has had a most difficult time finding an LLMD in North Carolina–or in surrounding states. He is very ill with fevers and extreme fatigue.
This is a relatively recent event. He was bitten by a tick about two weeks ago.
Is there any way we can find a physician to treat him. He has done research online and is aware that most physicians will not know how to diagnose/treat Lyme.
I would appreciate any information you might have.
Sincerely, Phyllis Morris
Dear Phyllis,
I am so sorry to hear your son is so sick, and yes, he is correct in that most physicians do not know how to properly diagnose and treat Lyme disease. There happens to be one of the top Lyme doctors in the world in Washington DC (he actually used to be in North Carolina) – Dr. Joseph Jemsek – and you can read about him here on his site:
http://www.jemsekspecialty.com/aboutus.php
I am not personally aware of any other Lyme literate doctors close to North Carolina, only some in NY. If your son cannot travel to DC, then I would suggest you contact ILADS for a recommendation (see above in my post).
Best of luck and let me know if I can be of further assistance!
Danielle
Below is 2 Lyme Litterate doctors close to NC
-MD David Rily
Primary care physician 864-227-2099
SC 5 hours from Wilmington NC
-MD Cathrin Harbor Virginia 6 hours from Wilmington NC
Primary care physician
My question:
Is becoming a Lyme Litterate doctor just a matter of paying a fee or something or can I trust that if they have that title they really know their stuff. Will they be able to reallly diagnose and treat me effectively for Lyme. I would go anywhere to see someone that will tell me for sure if I have Lyme or not and who could treat me effectivly if I do.But I am broke I have spent a ton of money on medical stuff and was not able to work for long periods. So if I need to I will save the money to go to DC or wherever but if I can be confident the physicians below that are close I could get the money to go there sooner.???
Symptoms:
I had the bullseye 3 years and got sick with flue like symptoms 2 years ago that lasted 3 months then disapeared for 3 months. When it came back it felt the same at first but got worse and more symptoms developed. Symptoms included Nasea, I dont think I had a fever, joint and miscle aches and stiffness, major fatigue, memory problems, depression, Weight loss (43lbs) I went from 192lbs to 149lbs in about 2 months etc. By mid to late 2010 the symptoms got less severe I was more functional but have good and bad days and am scared to death I am going to be bed riden again. I can’t go through that again and be the same person I am now. I feel like I am already a much more angry synical less happy person.
dr harbor is great, thorough, and very kind. We also have seen Dr shor, and we pleased with his knowledge but never saw him, mostly his nurses which was a bit frustrating, but the protocol was sound, just a little haphazard, since they never remembered who we were, what we had tried, etc. Now seeing Dr Jemsek, but Cathryn Harbor is still our local backup doctor. I feel she cured my son, since she now uses Dr Shoemakers Mold Detoxing protocols too.
I have a 16 year old who I suspect has had lymes for 5 years or more. The blood test came back negative, we saw a rheumatologist (who I was not impressed with. Does anyone know of a spectacular pediatric doc or adult doc who takes pads patients. I have to get the right help for my daughter, she is an athlete, an equestrian, straight A student, and not one day goes by that she is not exhausted or full of aches and pains. Please, if anyone can help
Hello, I have been having certain symptoms for over a year. Let me start from the beginning. May 2010, I began getting mild headaches, widespread muscle twitching, blurred vision and lighheadedness. They were all an on and off type of thing, sometimes going away for a few days and then always returning. After a few months, I began getting a ringing in my left ear that was also on and off. I went to my doctor, he ran blood tests as well as gave me a CT scan without contrast and an MRI with and without contrast. Everything came back normal with the exception of a vitamin D deficiency and I also had the beginning stages of fatty liver which was diagnosed VIA an Ultrasound. I had also been diagnosed with mixed sleep apnea. So, I started on a diet and attempted to lose weight. I was 350 lbs and Now I am 260 lbs. My fatty liver is pretty much non-existent and my sleep apnea has gone away to the point that my pressure is now way too high for me on my CPAP machine. But, though I have lost close to a hundred pounds, my symptoms still remain and I have even gotten a few new symptoms. Now, the headaches are far and few between, the lightheadedness, muscle twitching, blurred vision and ringing in my left ear still come on and off. But now I have also been having pain in my neck, pain in my lower back and also bad aching pain and weakness in both my legs. The leg pain begins around my knees and goes all the way down to my feet. My arms have also begun to feel achy and weak off and on. Often times after I walk, I get this vibration feeling on my left arch of my foot that feels like a cell phone is underneath it on vibrate mode going off. My legs ache so badly that it is often difficult to walk on them. Then, it will go away for a few days and I will be able to walk fine, with no pain and no foot vibration. A few times when the leg pain symptoms was present, I actually heard a creaking nose in my foot as I attempted to move it. There has been more cracking in the joints of my knees, arms and legs as of late. Also, my feet often feel tingly, like they’re falling asleep. I have also been feeling pain in my muscles in my legs, arms, hands and sometimes in my back and neck. I have felt the same tingly feeling in my fingers at different times. Please, I just want my life back. I don’t drive and I can’t travel very far. I am in the Oswego/Syracuse NY area and I am in dire need of an LLMD.
Gosh, that is awful…and the vibration sensation is one I am intimately familiar with. I don’t know of any LLMDs up by you, however, in addition to the above resources I mentioned in the blog post, Turn The Corner – a great Lyme disease foundation – will help you try to locate an LLMD near you…”Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link
http://turnthecorner.org/content/selection-proper-physicians
And here is their email for inquiries:
medicalinfo@turnthecorner.org
My prayers are with you!
I NEED HELP FINDING A LYME DISEASE EXPERT IN DALLAS TEXAS. PLEASE POST A NAME OF A DOCTOR AS A GOODWILL. I DON’T KNOW WHY PEOPLE ARE KEEPING DOCTORS NAME SECRET. ITS NOT GOING TO HARM THEM BUT HARM MANY PEOPLE SEEKING KNOWLEDGE AND TREATMENT. INSURANCE JUST CANT GET UP AND JUST STOP OR THREATEN DOCTORS JUST LIKE THAT. FOR HEAVEN SAKE HELP PEOPLE WITH HTIS MINOR INFECTION TURNED INTO A LIFE LONG ILLNESS PLEASE. DONT WORRY ABOUT PRESS AND DOCTORS NAME BEING OUT IN PUBLIC.
HELP OR JUST LOOK AT THOSE HELPLESS PEOPLG BLOWING THEIR MONEY AWAY TO FAKE DOCTORS.
THANK YOU
DALLAS TEXAS POLICE EMPLOYEE.
Hi there,
I am so sorry you have not been able to find a doctor in your area. I wish I knew of a Lyme literate doctor in Dallas, let alone Texas, that I could point you to. I think there used to be one near Austin that moved to another state. The only thing I can suggest is that you contact the above organizations and the forum Lymenet.org as they will provide you with any LLMDs that may be in your area or any that may be in TX or the surrounding states that I am unaware of.
I TOTALLY AGREE WITH DALLAS TEXAS POLICE EMPLOYEE!! WHY ARE PEOPLE KEEPING SECRET THE NAMES OF DOCTORS WHO MAY BE THE ONLY ONE TO GET THAT PERSON OUT OF MISERY. MY SYMPTOMS HAVE BEEN SO BAD THE PAST MONTH, I HAVE HAD THE THOUGHT OF KILLING MYSELF IF I DONT GET HELP SOON!!! I live in Danville Virginia and the healthcare here STINKS!! been to two other places out of town, and TESTED POSITIVE on ELISA TEST at one of these out of town hospitals and they still are not treating me!!! WHAT AM I SUPPOSE TO DO? I had plans to move this summer to TEXAS where my daughter and family are, and i am too sick to get out of bed, much less pack to move! THANKS FOR ANY SUGGESTIONS!! ANNETTE
Annette,
This is a tough condition. I have to admit I’m very tenacious and aggressive and it even gets to me somedays. I’ve been going 4 months of alternative treatments and have seen good improvements.
While I looked for a doctor I did the following:
- I took high doses of Vitamin C 50 GRAMS (IV is best but if I couldn’t find that then I just bought “sodium ascorbate” or “calcium ascorbate” (these are easier on the stomach) and did it 1-2 times a week. This helps build the connective tissue and collagen that Lyme+ is interfering with.
- I take mega doses of probiotics 50-150 Billion daily. I got a good quality one from whole foods or online at iherb.com
- I take aloe vera for the GI track
- I do many things to detox (google these there are many things you can do and I did them all DAILY. Every single day).
- I take a bunch of immune boosting supplements. Also changed my diet no sugar (none not even fruit), no carbs (check everything… things like carrots have carbs so you have to be careful), no dairy.
- Only after months and months of these things did I even attempt to kill bacteria/pathogens.
IT DIDN’T HAPPEN OVERNIGHT BUT I DID SEE IMPROVEMENTS. I have still a ways to go but I have to admit it takes commitment every day.
Best,
JasonM
Hi , I read Jason’s letter and am impressed with his discipline. I make a great effort to eat really well but I know with this condition one needs to be strict. I had Chrons disease when I was younger ,Steroids and various meds caused thyroid problems, came off all drugs 10 years ago then was told I had candida many infections followed then bad apartment environments. I got bit by a spider that caused my left arm to swell up for 6 months. Also notices quarter sized red circles on legs and bug bites that cause me to have sinus and blader infections, I get anemic,aches, tired,insomnia. Etc
My whole life I have had illness but nothing tops these bites and my reactions. I saw an immunologist and said all this has causesd my immune to break down now I am allergic to cats , dogs ,dust ,etc
I have had two tests done for lymes disease but both have come back negative. but I think it may be lymes or something related.
I am wondering what type of alternative docter did Jason see .
Does anyone know of a Lyme’s literate doctor in the north central Minnesota area? Lyme’s Assoc. info proved to be incorrect as the doctors have been threatened and no longer treat this disease. This is for my sister, please help!!!
If you do not find an LLMD through the above resources, these people may be able to point you in the right direction for your sister.
Minnesota Lymefighter’s Advocacy ~ an Affiliate of the
“Lyme Disease United Coalition”
EMAIL: info@lymefighters.org
I was treated for Lymes Disease in the Summer of 2010 (21 days of Doxy). But I have a sinus infection now, and today all of my original Lymes symptoms are back. Do you know the closest LLMD to Charleston, SC?
Thanks for your help.
Hi Winnie!
I don’t know of an LLMD close by to you, but if you contact the above resources they should point you in the right direction!
Wishing you the best in health,
Danielle
I am looking for a LLMD near New Jersey, New York or Pennsylvania. I have had chronic lyme for 25 years. done antibiotics, herbal, hyperbolic and more. I now would like to work with a doctor who can guide me in Rife machine use, mercury detox etc. Any info would be helpful. thank you , Paula
looking for a LLMD who can guide me with Rife , mercury detox. Have tried all the traditional approaches. NY, NJ or PA area are fine. Thanks for whatever help can be offered. Paula
Hi Paula,
The doctors I know of that are open to rife in the area are Dr. Horowitz (up to a yr to get in I believe) and a Dr. Thomas Moorcroft in CT (recommended by my LLMD who took a medical leave) http://healthprofs.com/cam/name/Thomas_A_Moorcroft_DO_Glastonbury_Connecticut_513548
http://originsofhealth.com/
I have also heard of a Dr. Edward Yost in NY, but not 100% sure if he deals with rife and mercury detox.
Wishing you the best in health,
Danielle
Paula…. I’ve heard about Dr. Horowitz all the way here in Chicago. My alternative health care person mentioned today that her other Lyme patient’s doctor is Dr. Horowitz. I asked where he was located and she said DC! The patient flies to DC and they have monthly phone conversations. I don’t know anything about his approach but if it involves a holistic approach may be worth seeing.
I have been diagnosed with Lyme Disease approximately one two years ago. I remember when this same type of back pain that I experience started. It was almost 10 years ago during the end of my first trimester of pregnancy. I thought the pain was coming from the weight gain but I’ve recently lost 20 pounds almost taking back to my pre-pregnancy weight so this cant be the reason for the sever constant pain. Its horrible and no one realizes the severity of it. I’v taken the first dose of oral antibiotics but never finished following up with my Doctor due to not having insurance any longer. The only thing that has seemed to help me somewhat is Tramadol. This works better than other narcotics which seems a litte strange. I’ve tryed everything and nothing helps. I have no energy and I can’t continue to feel like this. I’m only 26 and I’m so phyically and mentally weak all of the time. Somebody please help me with some advice.
Hi Amy, If you contact the above organizations, they may know of doctors who will treat for no or less money. All the best in health, Danielle. There is a doctor in Florida named Dr Cichon that treats people who are strapped financially I believe http://www.clinicofangels.org/Bio_DrCichon.htm
All the best in health,
Danielle
We are looking for a LLMD that takes Cigna in norther Virginia
And also 1 in providence rhode island
Can you help us?
I am a licensed professional counselor working with a client who has resently been diagnosed with Lymes (probably has had it for quite a while).
She is looking for a LLMD in Northern Virginia also. Did you find one that takes Cigna or any other insurance? Any suggetions?
Thank you for your help.
Donna
703-869-3589
I am looking for a LLMD in PA…My husband discovered our dog had lyme disease, we got him treated with ease, but when my husband was tested and came back positive for lyme disease, we are not having any luck to finding a doctor who will take my insurance, they want cash up front and we dont have the amount they want. I am seeking a LLMD in PA or MD? any advise would be apriechiated… Thank you!
Hi April, I live in PA and see a Lyme Doctor in Hamburg. You are correct as none of the lyme doctors take any insurance for treatments and it is all OOP. No insurance means no hassle from insurance companies hense, they are 75% safe from loosing their medical license. It is a terrible thing to make patients pay for care that is so needed. I have had lyme for over 20 years and just got dx last August 2011. I have been on IM injections and oral antibiotics for almost 1 year and only feel about 50% better. I also have spent almost $30,000,00 for all the treatments and oral meds that are not covered under my insurance. Plus, insurance companies feel that all this treatment is considered experimental and will not be covered anyway. NIH and CDC need to change their views on treatments and then, this will force the hand for insurance companies to pay. Good luck … And yes, I have now run out of money to continue with my treatments. I had to cancel my August appt because I could not pay. These lyme docs will not continue to have patients that can not pay either. So, we lyme patients are stuck….. the system does not want to assist us with good quality doctors and the LLMD that are out there want the big bucks to treat and when anyone runs out of money, well, its just too bad for them. Hum……… I guess the oath to treat the sick really should be the oath to treat the wealthy sick!!!
April, I also have not been to an llmd and have been sick with make sense of chronic lyme after 11 years of dealing with bizaree ( some contant and some change weekly or move around). I live in northern va and can’t get over having to pay a LLMD my kids college funds when I have good insurance. This is just such a controversial and ignored and serious disease so I still can’t understand what is going on. I do know of some Dr’s and if you want to message me offline, I can tell you about some.
Kim_c_jackson@Yahoo.com ( stay at home wife and mom of 2 kids and a dog)
Hi,
i am looking for a LLMD in or around Memphis / Nashville Tennessee. I live in a small town in between, and we are willing to travel. It is such guarded information, and we really are desperate any information would help. Thank you and God Bless
hello, i live in reno, nv and i have been looking for a good doctor that can help me with ALL of my chronic lyme issues. i was bitten in 1993 but not diagnosed for a couple of years. i did have the bullseye rash…but i didnt know what it was. i finally found a doctor in napa, ca who diagnosed me but i do not know where he is now. i was put on soc sec disability and was on it for 10 years. i was dropped in 2008….and i STILL cannot get a reason. before i was dropped back in 97 i was diagnosed with narcolepsy…extreme narcolepsy. i have SO MANY things wrong with me now but i am still fighting to get back on soc sec. it is exhausting. please help me before i get worse. thank you
Are there any Lyme Disease specialists in Israel…how does one obtain a referral?
I am 60 days into Lyme treatment and would nlike the address of a LLMD in the Hudson/Marlboro area of Massachusetts.
Thank you.
Looking for Lyme disease specialist near Atlantic cityarea
I was recently diagnosed with Lyme and on my second course of Doxycyline. Very little improvements and noticing more symptoms. My Doc seems confident that all will be fine once this course of antibiotics is finished. I’m not as certain, and with new symptoms appearing I am more and more concerned. I am having trouble finding a LLMD in my area, if anyone is able to help I would greatly appreciate it.
I live near Lincoln/Omaha, Nebraska.
Thank You!
Hey Pauline, what Dr. did you see to initially get tested. I live in the Omaha area as well.
I am having a hard time finding a LLMD . I have been on the sights you recommend but I haven’t gotten any responses. I live in Hampton Roads area- Norfolk, Virginia Beach, Portsmouth, Cheasapeake.
Does anyone know a Lyme-aware physician on the west coast?
I am very sick from the tick bourne parasite Babesia. I am seeking a doctor in the minnesota area who will treat me for this. I got it diagnosed from a scottsdale arizona clinic but they wont treat me for it here. I keep getting sicker and sicker.
Mayo clinic
I’m suffering from chronic lymes diease and looking for a doctor in the Minneapolis area of Minnesota. I would greatly appreciate any information you can give me.
I keep testing positive for the DNA of the bugs and borderline on the markers.
Thank you!!!!!!
Nicole
Google “integrated health care winona” there is someone there that can help you.
Look for a Lyme Disease Literate Physician in the DFW area. Any suggestions?
Thank You,
Doug
My 14 year old son has chronic lyme disease & it has triggered a heart condition (POTS). He desperately needs a LLMD. We live in CT but are willing to travel. Contacted Dr. Horowitz (Hyde park, NY) but he is not taking any new patients. Does anyone know of an LLMD in the tri-state area???? Please help. My son has not been to school in months.
I became very ill with a flu-like disease in 1985. One of the symptoms was white spots in the mouth and, as i recall, they were painful. I was subsequently tested for Lyme disease in 1987 at Georgetown Univ. Hosp.: The first two results were positive but the third was negative. I have just finished reading Brandilyn Collins’ book, OVER THE EDGE, and am wondering if I should be tested again. I am so ill that I can no longer work; some days I can’t even get dressed.
Could you please suggest a doctor in my general area? I am now in 25427 but used to go to Dr. Beals in DC.
Thanks!
Peggy, sorry to hear your story but it sounds a bit like mine except my symptoms that i am awere of really showed up in 1998 roughly. I can relate to the flu feeling ( get fevers daily and chronic muscle/bone pain) I did not get tested until years after the fact but when pregnant ( back to back miscarriages) Dr’s noticed something was not right and kept telling me 11 years ago I needed to go see the Inf Dis Dr’s and none were sure what the deal was and the fevers were puzzling. Anyway, not sure if your looking for LLMD in DC but I do know of some and can give you names of ones who I have had several friends/ group members go to. I have not been to one as i am receiving treatment on oral anti and also monthly ivig gamma globulin. You caught my attention when you mentioned the spots in the mough, just curious as I get that too when I am sick or flareup. Just curious what types of spots and don’t mean to pry but you sound like me. I get cancker sores on tongue and tonsils and obvioulsly viral and my tongue also gets swollen, painful or thrush type too. I was curious if this has to deal with lyme or another virus? I take so many meds or summplents when i get this but usaully have to ride it out for 10 days. I can tell you of some Dr’s I heard are good. I just can’t afford them if they still are private pay.
Does anbody know any source of lyme disease experts for central Europe?
I have had air hunger for the past 10 months. Well it started out as that and then developed into fibromyalgia symptoms (terrible fatigue and body aches). This is screwing up my life so bad. I need to be tested for lyme disease as I need to find out what is causing this. Im only 22 and this is really overwhelming as I have been healthy my whole life. Anyone know of a good doctor in colorado?
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page are in fact amazing for people knowledge, well, keep up
the good work fellows.
I am looking for a Lyme Literate MD in Southern NJ. My zipcode is 08090. 20 minutes south of Philly.
Dr. Kristine Gedroic is the brilliant! She is in Morristown, NJ. PLease trust me, she is worth the monthly trip. You WILL get better w her!!
Looking for LLMD in St. Louis mo. 63122 is my zip. Thank you!
Hi! I am looking for an LLMD anywhere in the Midwest. I have co-infections as well and would like to find a dr. Willing to treat these as well. I will travel. If you have had a great experience wih your LLMD and the protocol could you please send any details my way?
I have seen 2 LLMD’s thus far an the one I love may not be practicing in a few months.
Thanks!
Humera Malik, MD is a fabulous, highly regarded Lyme Literate MD (LLMD) who is also known for successfully treating fibromyalgia and chronic fatigue syndrome. She is an active ILADS member, who sees patients from all over (especially the Mid-Atlantic region), at Simplicity Urgent and Wellness Care in Arlington, VA (Northern Virginia suburb of DC). http://bit.ly/11uAHbZ
Dr. Malik is an exceptional DC Metro/Northern Virgina based LLMD, having been a patient of hers for the past few years. In fact, I have referred her to my extended family, close friends, and work colleagues for Lyme, fibromyalgia, CFS, and wellness. Their personal feedback has been nothing but positive about her. By the way, she used to practice in Reston and Fairfax, but is now in Arlington.
I need a doctor versed in Lyme Disease diagnosis and treatment in the Memphis, TN/ North Mississippi area.
I have been ill for 28 years and recently found out about and tested for Lymes. I need a Lyme Literate Doctor in the South Bend, Indiana area/ or Three Rivers, Michigan area or closeby.
I appreciate any assistance or ideas/suggestions with this dagnosis/treatment.
So tired of suffering and losing friends, Teri
Hi, im looking for a Lyme Literate Dr. near Omaha, NE or Lincoln, NE. I developed pretty serious memory, cognitive and neurological issues out of the blue. 2 months before this started I was bit by a tick, though I never really mentioned this to Dr.s nor did I even pay attention for the rash. The area I was in seemed to be common for ticks and i’ve had several people mention getting tested. Though I have no idea where to start. Things seem to go into remission but the overall condition is getting worse and no Dr has had any real solution.
Hi Danielle,
Long time no talk. I hope you are well. Life is busy for me. I presented at ILADS last October and got accepted into a doctoral program in Ed. Psych. I plan to do another Lyme/Autism study.
I was wondering if you could help me out. A family contacted me and is looking for a LLMD in New Jersey. Their son has regressive autism and they just found out he has Lyme.
I know the midwest but am clueless about the North East. I know Jones would be the best but he is in CT.
Thanks,
Mason
I’m trying to find a lyme disease specialis near the Boca Raton, Florida area. I’ve had it for 25 years and now I’m having seizures. I can’t drive so please help. Thank you.
Do you know of a LLMD in Hampton Roads area?Williamsburg?Richmond? Thanks
We are desperate!! My son was diagnosed in early September with intermediate uveitis. At that point he was put on 80mg of prednisone. A few months later he started taking 3g of mycophenolate (cellcept). A few months ago they started weening him done off of the prednisone and somewhere around 15 to 5mg he started having troubles again. He started seeing floaters and the doctor put him right back up to 80mg of prednisone and he is starting to take cyclosporine. We are getting desperate to save his eye sight. To complicate matters in February he had a positive test come back for Lyme disease. None of his doctors are open to the fact that the Lymes may be what is causing his eye situation. What should we do? Time is running out. I want to know who the best lyme literate doctor there is period. I live in Waterloo, Iowa but am willing to go anywhere.