How To Find A Lyme Literate Doctor (LLMD) In Your Area

Because of the hullabaloo over treating chronic Lyme disease, many Lyme-literate doctors (LLMDs) prefer to keep a low profile which is why it is often difficult to find an LLMD in your area or nearby. As well, many forums and Lyme discussion websites will not publish the names of LLMDs for fear that the doctors will be targeted for treating chronic Lyme disease; thus, these physicians’ names are often kept private. Luckily, you can contact one of the Lyme disease organizations I have listed below and request a doctor referral for a Lyme-literate physician (it’s free!). Seeing a Lyme-literate doctor is important because they have experience in treating not just acute Lyme disease, but chronic Lyme disease and the many co-infections that ticks can transmit. Here is how to get a Lyme-literate physician referral in your area:

1. The International Lyme and Associated Diseases Society (ILADS) is a great way to get a Lyme-literate Doctor referral, and is probably the best place to start. Go to their website , email them at or call them at 301-263-1080 (they are on EST). ILADS is the “gatekeeper” for most Lyme docs in the United States. They may also be able to point you in the direction of an LLMD in another part of the world if you reside outside of the Unites States.

2. Turn The Corner – an amazing Lyme disease foundation that supports the research, education, awareness, etc. of Lyme disease – will help you try to locate an LLMD near you for free: “Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link

And here is their email for inquiries (they will only answer by email):

3. has a Lyme disease forum where they have a “Seeking a Physician” section. Here, members of the forum will give you the contact information for LLMDs in your area from When you go to’s homepage, click on “Flash Discussion,” and then click on “Seeking a Doctor.” You will be asked to enter your city, state, and contact information, and a forum member will contact you with a physician referral.

4. The Lyme Disease Association has a Doctor Referral Service: Go to and click on “Doctor Referral.” You just need to give them your contact information and they will give you a doctor referral.


460 comments for “How To Find A Lyme Literate Doctor (LLMD) In Your Area

  1. s coffman
    December 12, 2010 at 7:43 pm

    My son has classic symptoms of chronic lyme disease. For the past year he has been in misery. He has 35 or more symptoms. I have been doing a lot of research and my doctor is trying to get me to a LLMD. Please help me with more names in the northern va area.

    • kate
      September 4, 2012 at 8:00 am

      also Dr Shor in Reston

      • A
        June 26, 2013 at 9:05 pm

        Dr. Shor is a great doctor. He actually takes the time to sit there and talk with you for as long as it takes to get a full history and develop a treatment plan. And he’s extremely accessible after you become a patient – their website has a form to email him, and he almost always responds within 24 hours.

        He doesn’t just treat Lyme, either; he ordered extremely comprehensive tests based on my history, and performed a full physical exam. I ended up being diagnosed with SIX separate medical conditions, and Dr. Shor is treating /all/ of them.

        • Lorraine Berger
          July 13, 2013 at 8:44 am

          Please let me know where Dr Shor is located. Many thanks

          • Jay Cleveland
            February 11, 2014 at 11:25 pm

            We had a poor experience with Internal Medicine of NVa (Shor), saw them for two years. Treatment plans were haphazard, not coordinated, did not have good knowledge of my records and history in spite of going there for 2 years – recommended very expensive and unproven regimens. Only way to get to see Shor was to pay a membership fee — seemed like a money generating scheme more than someone interested in providing care for very sick patients. Have not been able to find someone yet that we trust.

          • nikki bex
            May 9, 2014 at 10:55 am

            I was just told I had negative lyme but positive western blot by the cdc and ss per other, pardonial, and something like resporse? And relaspring fever ? Spelling aliitle off on those last two but went on to say lupus and other stuff and is referring me out to another dr. Whats this mean? I live in Bloomington, Indiana

          • Linda Nasin Faille
            September 5, 2016 at 7:30 am

            In Connecticut who is a Dr. who is a Lyme Iiterate and where are the in CT and phone number and they have a great rating.

            Thank you,

        • Abbe
          May 16, 2014 at 10:03 am

          Where is Dr. Schor located?

        • Emily Kelly
          June 17, 2014 at 9:35 pm

          Help! I need help finding a Lyme literate doctor near me (greater Richmond)

          • carol jessie
            May 30, 2016 at 10:57 am

            andrs wellness

          • Guido
            October 2, 2016 at 10:42 am

            Dr. Joseph Joseph comment below which has his location contact #, & how he treats sorry my hands becoming unresponsive

        • Guido
          October 2, 2016 at 10:33 am

          What state is Dr Shor in and do you have a contact #?

          • Jackson
            December 2, 2016 at 12:10 am

            I’ve been seeing dr eboni Cornish for yrs..great doctor but just had triplets. Works with Dr shor.. Dr shor is in Reston va. Internal medicine or northern virginia ia. They do not take insurance and it is more to see Dr shor but have plenty of other Dr’s to see. Dr shor is the president of Ilads…that may deserve a few extra bucks for his time and knowledge.

        • Susan wallace
          October 31, 2016 at 9:58 pm

          What kind of dr is he and where is he located

        • Tawnya Smith
          November 28, 2016 at 12:16 pm

          How can I get an appointment with dr shore

        • TERRY ROSCOE
          March 8, 2017 at 12:21 am

          Hi my husband was just diagnosed with Lyme. We are in North jersey Where is Dr. Shor’s offices ? from terry Roscoe

      • James Hvizdos
        February 3, 2015 at 3:54 pm

        I need a ilads Or LL doctor ,,, I’m in ohio 30-559-8779

        • Michelle
          February 4, 2016 at 1:11 am

          Dr demio- worthington or nate morris college corners oh

          • Mariangela Mancuso
            January 9, 2017 at 10:21 am

            I have been going to Dr Martin Gallagher In jeannette PA. He is MD and board certified Integrative MD . Web site: He treats lyme patients from all over US and Canada. I have neuro lyme 5 yrs but he has been my reg dr for 12 years. Was having siezures and catatonia and more of course as u all know. He was the only one who was able to treat me successfully. No more siezures.

        • TD
          February 15, 2016 at 3:26 am

          James, call this number 724-962-3633. I am also in Ohio but travel and am very pleased with my first outcome! Good luck to you!

          • Dorr iwano
            February 22, 2016 at 8:54 pm

            Do you travel to treat Lyme disease? We are out west, North Idaho and Spokane, Washington. Can you recommend the nearest, fastest help. My daughter is getting seriously weak.

          • April 20, 2016 at 9:11 pm

            James, sorry to use your “reply” box but I’m trying to contact Dorr iwano who sent an inquiry to you about finding a LLMD in the Spokane WA area. I need one, too.
            HELP… SOMEBODY?!

        • Guido
          October 2, 2016 at 10:36 am

          Read my reply below as my hand goes numb and is doing so now, Dr. Joseph Joseph in Hermitage P.A. 5 minutes from the OH borderline, I put up more info on him there and his contact #…God bless

        • Guido
          October 2, 2016 at 10:48 am

          Dr Jospeh Joseph Hermitage P.5 minutes from the OH PA border please read my comment that has his contact # and practice plans below as my hand is becoming unresponsive.

      • Dob
        September 23, 2016 at 12:27 pm

        Pacific Frontier medicine Redwood City California
        Dr. Steve Harris
        I have searched all over the Southern States I travel to him I live in Louisiana it makes absolutely no sense it is what it is you have to do what you have to do
        It’s a hard and painful Road my God be with you

    • D. Wyatt
      June 15, 2013 at 12:14 am

      Better off to see Dr. Jemsek. He is just a couple of blocks away from the GW Hospital metro. He is good, but you have to ask his staff for a translation of your med schedule as well as your safety labs. You will not be able to translate his worksheet.

      • Lynn
        August 21, 2013 at 12:42 pm

        We found Jemsek hard to reach when issues came up.

        • Lynn
          August 21, 2013 at 12:48 pm

          Also, Could not go the antibiotics route at all. That was summer 2010.

        • KK
          March 2, 2016 at 3:23 pm

          Dr. Jemsek is one of those “impossible to reach” doctors. He doesn’t stay on top of your case, and the staff is very money conscious especially obtaining fees up front before you ever see him. Biggest disappointment was the staff turn-over so I felt I never spoke to the same nurse about what was going on. Repeatedly wanted my gallbladder taken out but every surgeon/doctor said, “No.” I finally quit the practice even though I still have Lymes and am paying dearly for it. I hear better things about Dr. Shor in Reston.

        • Loralie Buckley
          August 21, 2016 at 8:08 pm

          He’s a wonderful loving person! But, after everything they put him through he changed and I can’t say I blame him! Especially, bc right after the “Witch Hunt” they held, caused the bank’s to pull out and bankrupted, “His state of the art health center ‘Rosenthal’ ✴” Then just when you couldn’t imagine things getting worse….

          He moved his practice to DC because they can’t touch him there. And, shortly thereafter his wife dx with breast cancer! Wait, it gets worse by soon after that his beautiful little girl was dx with of the nastiest form of leukemia! He had to run his practice in DC while his family was going through all of this in SC! He did the best he could to jet back and forth for his family and his patients that rely on him…🙇

          He’s still a good man but they took so much from him he’s never been the same since… 👣

          Btw, the person asking for a good Dr near Oregon /WA I have a name for a great LL Dr. if interested. she actually studies under Dr.J for quite a while. She, speaks in layman’s terms and seems very attentive to detail!

    • Dan
      May 14, 2015 at 1:13 am
    • Kim
      July 29, 2015 at 9:04 pm

      I am in need of a lyme literate doctor in MN. Please help

      • Jodi
        August 19, 2015 at 12:51 am

        Dr. Christopher Foley in Vadnais Heights.. Newbridge clinic in Edina. Dr. Vrchota in Winona. Hope this helps… Jodi

      • Brenda
        September 24, 2015 at 10:29 pm

        Did you find a doctor in Mn. and if so can I ask whom and were they able to help you.. Thank you for your help..

      • Bob Buege
        August 22, 2016 at 8:31 am

        My daughter and myself need to find LLMD in MN as well. Did you have any luck?

        • Susan Fisher
          September 29, 2016 at 2:14 am

          You need to call dulcimer medical in Fairmont, mn, there are several trained lyme np and doctors at clinic

    • JS
      January 31, 2016 at 9:46 am

      Looking for Lyme Doctor in Western New York.
      Thank you

      • Dee
        February 7, 2016 at 11:53 pm

        Me too. Hopefully who takes insurance. Have you found anyone yet?

      • Samantha
        February 24, 2016 at 2:13 pm

        Hi JS. Dr. Elena Frid is not in Western NY, but might be worth a shot. She is awesome

        regards ~ Sam

        • Laurie Lamantia
          February 14, 2017 at 11:45 am

          Hi Sam,
          We have been thinking about traveling to see Dr. Frid. Our son has been ill/misdiagnoised for 16 years. Finally have a positive Bartonella test.
          He has seizures and when we try to teat they go through the roof.
          Can’t find a neurologist in Northern CA that knows how to treat him. None of the seizure drugs work. Plus they don’t understand Lyme.
          Would you be willing to share you experience with Dr. Frid with us. It would be a huge expence and trip. We don’t want to waste any more time and $$.
          you could e-mail me @
          Many thanks,

      • Marcy
        June 5, 2016 at 2:23 pm

        Did you find one?? I need to find a dr. In the WNY area also! Thanks!

      • Diana
        August 23, 2016 at 6:57 pm

        Dr. DAniel Cameron take cash MT KISCO NY

    • Guido
      October 2, 2016 at 10:30 am

      Dr. Joseph Jospeh in Hermitage P.A., he is located by Ohio & PA borderline in PA about midway up the state. Patients travel from states away to see him, as he is #4 in the U.S. for late stage Lyme Disease. 724-962-3633. He accepts most all insurances and even does one day a week in a clinic in Sharon PA for those not covered. He requires you to come monthly, he only deals with the Lyme Disease and the 3 coinfections that the ticks in the N.E. carry; he does not treat the medical conditions that are caused by the Lymes Disease, just deals with trying to kill the bacteria itself and he does provide pain management for those in need if they have no-one else overseeing the moderate to severe pain caused by the vast amount of medical diagnoses caused by the Lymes. I hope this helps your son, as I know his struggles as I went 8yrs undiagnosed and therefore accumulating over 50+ medical diagnoses most progressive, incurable, & chronic, and making things worse I lost most all of my immediate family members to cancer between 2010-2014 leaving me with the room no financial, physical, or emotional support and now I’ve all but depleted my life’s savings and my state offers no cash assistance & despite being declared equal to nursing home level of care by my Drs & the state of PA to receive in home health aides, I’m still fighting the federal government for Social Security. God be with you and yours, if I can be of any help, 814 994 1050

    • June 8, 2017 at 9:09 pm

      I am seeing Dr Eboni Cornish in Leesburg Virginia . She is amazing and treats you in a comprehensive manner. I have never met a doctor as compassionate as her
      She makes me feel like I am her friend and family member . I have also got into remission with her
      I strongly recommend seeing her . She use to work with Samuel Shor but I love her new practice even more

    • June 8, 2017 at 9:10 pm

      I am seeing Dr Eboni Cornish in Leesburg Virginia . She is amazing and treats you in a comprehensive manner. I have never met a doctor as compassionate as her
      She makes me feel like I am her friend and family member . I have also got into remission with her
      I strongly recommend seeing her . She use to work with Samuel Shor but I love her new practice even more . She is at integrative functional medical center with Dr Martha a Calihan

  2. Danielle
    December 12, 2010 at 8:18 pm

    So sorry to hear! There is a well-known and respected LLMD in Washington DC which I would recommend, even if you have to drive a bit of a ways to see him…

    Please let me know if I can be of any further help and I hope your son gets in to see him or another LLMD soon so he can begin on the road to recovery…

    • Karen
      February 1, 2013 at 12:20 pm

      I am currently a patient of your recommended LLMD in Washington DC and he is great. I have been seeing him for 4 yrs and 2 months and he is very helpful. However, the trip from the North Carolina-South Carolina border is very hard on me. I would like the name of a good LLMD in SC or eastern Tennessee. Can anyone help with that to my email?

      • Marianne
        October 9, 2015 at 8:06 am

        Karen, we live at the coast in NC. Were you able to find a LLMD closer to home? Please contact me at Any help would be greatly appreciated.

      • April 2, 2016 at 9:29 pm

        Dr. Saleeby is in Cary, NC and also in Mt. Pleasant, SC

  3. Phyllis Morris
    June 14, 2011 at 10:23 pm

    My adult son most likely has Lyme and has had a most difficult time finding an LLMD in North Carolina–or in surrounding states. He is very ill with fevers and extreme fatigue.
    This is a relatively recent event. He was bitten by a tick about two weeks ago.

    Is there any way we can find a physician to treat him. He has done research online and is aware that most physicians will not know how to diagnose/treat Lyme.

    I would appreciate any information you might have.

    Sincerely, Phyllis Morris

    • D. Wyatt
      June 15, 2013 at 12:04 am

      Get him to an urgent care facility ASAP, and tell them to give you 28 days of doxycycline. Don’t waste any time looking for a doctor right now. Just get the meds in him NOW before this goes chronic.

      • K. H.
        June 8, 2015 at 9:15 pm

        D. Wyatt is ABSOLUTELY CORRECT!!!!!!!! He must get on meds before 4 weeks!!! And 6 weeks is even better than 28 days (see the Minnesota Lyme Association information) but docs will rarely do that.

      • Diana
        August 23, 2016 at 7:33 pm

        Doc no dairy no probiotic two hours before or after, also NO sunshine, you may need Plaquinal ,try or eBay get Burbur bandroyl, Samatro, pasely do 3 drops of Burbur 3 drops of bandroyl in 2″ of water in a glass take that ,,,wait 15 minutes do 3 drops of pasely and Samatro in 2″ of water try to increase drops slowly you may herx…
        Cats claw , I have been on olive leaf 150 mil 2 supplements a day.
        Turmeric is an Indian spicy takes inflammation down,
        Epson salt baths hot 20 minutes rise off cool water,
        lemon and warm water detox and for herx. if you are herxing you have Lyme, I have found IV ROCEPHIN the best Plaquinel is an anti Mylaria med which helps with doxy,, or Zithormax .sometimes you need doxy, Zithormax and Plaquinel , NEED probiotics at keasrpt 50 billion and 7- 10 strains

        Also minocycline helps the brain.
        Also Pinneli a brain cleanse great for inflammation IN brain,it’s on Amazon .com in glass with water it also helps ALzheimers brain fog suffer inflammation..
        GI TRACK try Mastic Gum it’s a Greek Probiotic PILL I take 3 a day,it help Hpyloria, inflammtionin GI Track or Acid Reflux and ulcers some swear by apple cider vinager, 2 teaspoons
        Good luck, reserach please
        Also GET A METAL BLOOD test, test private lab cause quest stinks,lab Corp too.

        MDL Lab is in New Jeresy great also
        IGEnex lab in CA for Lyme
        please check metals!!!!

        Also dental work LYME HATES rootcancels, bridges
        Again Metals check them
        Watch BEEF INTAKE NO WHEAT Sugar cut down

  4. Danielle
    June 14, 2011 at 10:49 pm

    Dear Phyllis,

    I am so sorry to hear your son is so sick, and yes, he is correct in that most physicians do not know how to properly diagnose and treat Lyme disease. There happens to be one of the top Lyme doctors in the world in Washington DC (he actually used to be in North Carolina) – Dr. Joseph Jemsek – and you can read about him here on his site:

    I am not personally aware of any other Lyme literate doctors close to North Carolina, only some in NY. If your son cannot travel to DC, then I would suggest you contact ILADS for a recommendation (see above in my post).

    Best of luck and let me know if I can be of further assistance!


    • Barbara
      August 4, 2013 at 9:05 pm

      My son contracted Lyme Disease a few months ago, Spring 2013 and was treated with the 30-day Doxy treatment yet is suffering with re-occurring symptoms of fatigue, mental fuzziness and vision impairment. His Lyme illiterate doctors have told him he will feel better in a few months. I know this is not the case having contracted Lyme myself last year. The physical effects are forever lasting, I suffer joint aches and mental fatigue daily since the awful onset of this illness. I am seeking a Lyme Literate doctor in New York State. A million thanks for your research and understanding of this horrific disease.

      • Lord G
        August 24, 2013 at 8:58 am

        Dr. Richard Horowitz
        HYDE PARK, NY (just over the CT State line)
        Phone: 845-229-8977

        • phil
          August 30, 2015 at 1:01 am

          I called Dr. Horowitz after i read his book.I was told they are not accepting any new patients and their waiting list is full. I’m still looking in the Chicago area.My problem is,Diabetes,Leukemia/chemo therapy and chronic lyme.
          I’ve been to Ill.masonic,Univ.of Chic. and M.D. Anderson,
          and seen 16 specialist / MDs.While there are many snake oil cure protocalls on the web, finding a true” Post Treatment Lyme Disease Syndrome ” specialist is extremely difficult.

          • Diana
            August 23, 2016 at 7:12 pm

            He is expensive LONG waits ,also try calling CDC ask for dr in your area that take insurance and treat chronic or late stage Neruological lyme theirs. Dr Daniel Cameron , in MT. KISCO NY.
            Again cash

      • Loralie Buckley
        August 21, 2016 at 8:36 pm

        Barbara your correct and it’s not just LD. Ticks as you may know, also transmit a bunch of nasty co-infections which he needs to be treated for! IDK if you’re LL Dr.s sent his blood work to Igenex or not but they should have. At the end of the day it’s really all based on clinical Dx!

        I think you need to hurry up and get him to a new LL Dr.! Exaggerate or embellish if that’s what it takes! Bc, you know what it can do long term 🙇.

        My Blessings and my Prayers go out to both of you… 👣

      • Diana
        August 23, 2016 at 7:39 pm

        Barbara try Burbur bandroyl , 3 drops in 2″ of water 15 minutes later
        Samatro ,pasely in 2″ of water
        3 drops of each slowly increase drops four then five if you herz stop a day take warm water lemo,,Epson salt hot baths detox!!!!!
        Good luck I am dealing with this fr years, also private metal lab testing, metals maybe high….dentist go holistic

    • Stuart Lederer
      August 24, 2013 at 9:19 am

      Hi Danielle. Do you know of a good LLMD in New York City area. My 14 year old has lyme and I’m getting desperate. Can you please help me? Thanks. Stuart.

      • Diana
        August 23, 2016 at 7:14 pm

        Call CDC. Ask them I did called some they take insurance ask do you only follow CDC .or. Chronic late stage Lyme as dr. Daniel Cameron Mt Kisco NY
        Cash that’s the problem!!!!!!

    • Janine
      September 29, 2014 at 2:06 pm

      Hi Danielle,

      I read you are aware of LLMD’s in the NY area, are there any you could recommend?….also, do you know of any reliable LLMD’s in NJ as well?

      Thank You,


      • Samantha
        February 24, 2016 at 2:00 pm

        I know Dr. Elena Frid is a brilliant Neuro-Lyme doctor, but I believe she only see’s 18+. She knows all NYC Lyme specialists. She is in Manhattan and takes insurance, which is a huge plus.

        • Diana
          August 23, 2016 at 7:16 pm

          Do you know when where DR ELNA FRID is ? Thanks
          Manhattan any hospital ?

        • January 2, 2017 at 9:25 pm

          I really want to travel to see this dr but her website says she does not accept ANY insurances, are you a patient there? Maybe the website is not up to date. I have emailed them and waiting a reply. Thank you so much 😊

      • Diana
        August 23, 2016 at 7:40 pm

        In Middletown theirs a dr Zimmerman in NJ

    • Denise
      July 11, 2016 at 1:18 pm

      Who are the LLMD in NY? Preferably the Syracuse area.

      • Jennifer
        July 19, 2016 at 3:33 pm

        I am also looking for a LLMD in NY. I’m near the Rochester area.

    • Bryan
      August 5, 2016 at 11:05 am

      Do you know doctor in NYC? Thanks

      • Lisa
        August 11, 2016 at 11:23 am

        Dr Raxlen, Dr Horowitz not too far outside NYC and Dr Cameron in MtKisco

  5. June 28, 2011 at 12:09 pm

    Below is 2 Lyme Litterate doctors close to NC
    -MD David Rily
    Primary care physician 864-227-2099
    SC 5 hours from Wilmington NC

    -MD Cathrin Harbor Virginia 6 hours from Wilmington NC
    Primary care physician

    My question:
    Is becoming a Lyme Litterate doctor just a matter of paying a fee or something or can I trust that if they have that title they really know their stuff. Will they be able to reallly diagnose and treat me effectively for Lyme. I would go anywhere to see someone that will tell me for sure if I have Lyme or not and who could treat me effectivly if I do.But I am broke I have spent a ton of money on medical stuff and was not able to work for long periods. So if I need to I will save the money to go to DC or wherever but if I can be confident the physicians below that are close I could get the money to go there sooner.???

    I had the bullseye 3 years and got sick with flue like symptoms 2 years ago that lasted 3 months then disapeared for 3 months. When it came back it felt the same at first but got worse and more symptoms developed. Symptoms included Nasea, I dont think I had a fever, joint and miscle aches and stiffness, major fatigue, memory problems, depression, Weight loss (43lbs) I went from 192lbs to 149lbs in about 2 months etc. By mid to late 2010 the symptoms got less severe I was more functional but have good and bad days and am scared to death I am going to be bed riden again. I can’t go through that again and be the same person I am now. I feel like I am already a much more angry synical less happy person.

    • September 4, 2012 at 8:03 am

      dr harbor is great, thorough, and very kind. We also have seen Dr shor, and we pleased with his knowledge but never saw him, mostly his nurses which was a bit frustrating, but the protocol was sound, just a little haphazard, since they never remembered who we were, what we had tried, etc. Now seeing Dr Jemsek, but Cathryn Harbor is still our local backup doctor. I feel she cured my son, since she now uses Dr Shoemakers Mold Detoxing protocols too.

      • September 10, 2012 at 10:20 am

        I have a 16 year old who I suspect has had lymes for 5 years or more. The blood test came back negative, we saw a rheumatologist (who I was not impressed with. Does anyone know of a spectacular pediatric doc or adult doc who takes pads patients. I have to get the right help for my daughter, she is an athlete, an equestrian, straight A student, and not one day goes by that she is not exhausted or full of aches and pains. Please, if anyone can help

        • August 13, 2013 at 4:32 am

          Thanks for the auspicious writeup. It actually used to be a leisure account
          it. Glance complicated to more brought agreeable from you!

          However, how could we keep up a correspondence?

    • Alwynne Blake
      May 11, 2014 at 6:53 am

      I live in NH, we have a few wonderful LLMD’s but still it is not enough. I do not believe that a MDhas to do anything but say he is LLMD, I knew this was coming so one must be careful…Doxi is only the first and now has been proven that the Bugs can pump it out of the cell they are inhabiting, see it in the system within 24 hours and morph. One should really take Doxi for more than 54 days not 14, 21 or 29!
      There is another LLMD in NY I cannot remember his name but he is in the movie “Under our Skin” I have a couple of friends that saw him, he uses IVIG Treatment …with success. LOOK for CO-Infections

      • Daphne
        June 4, 2015 at 1:24 pm

        Could you suggest a Lyme literate doctor in southern nh? My PC is sending me to an infectious disease doctor. Thank u!

        • February 7, 2016 at 8:43 pm

          North Coast Family Health in Portsmouth, NH.

          I hope you found a great one, but if you’re not satisfied, you can try them.

        • Pam
          December 8, 2016 at 12:59 am

          Dr Bert Mathieson Bedford

      • Pam
        November 15, 2016 at 3:58 pm

        Who are you recommending in NH please…!

    • Jen C
      June 23, 2014 at 12:08 am

      I am so sorry to hear what you are going through. It is a horrible experience made even worse by the fact that you have to constantly battle just to receive treatment. Once it hits you hard enough, that can become impossible to do. I managed to survive an extremely rare cancer. Lost an eye, gull bladder, etc. In 2008, I got a huge bulls-eye on my back. I had no clue what it was. My roommate actually tried scrubbing it off, haha. I went to urgent care, took 2 weeks of antibiotics and was fine until 2010. Wow, I had no idea anything existed that would be as horrible as cancer, but it truly was/is. I was diagnosed with Lyme again while in the hospital. I begged the doctor not to make me leave the ER without finding out what was wrong. I described the pain level as, “If you can’t make it stop, I will run out of here and jump in front of a semi.” Anyone who does not believe it exists has obviously never experienced the effects of Lyme. Having doctors assume it all stems from a psychiatric problem is enough to drive one insane!
      I had two Lyme literate doctors over 8-10 months of IV antibiotic treatment. Both of these doctors had chronic Lyme disease themselves. It was rather terrifying as both seemed slightly nutty. The first gave me a 2 week notice before moving to Florida. I still had a PICC line in my arm and had to have it removed, because I could not find a new doc quickly enough. The next prescribed IV vitamin treatment I paid for upfront ($500 for 2 rounds). The “nurse” didn’t seem to know how to start an IV, then attempted to attach the line with the tubing completely full of air. That was it; I told her to get away from me. The doctor then asked her to start an IV on him so the meds wouldn’t be wasted. He explained to me that, the amount of air in the tubing would most likely not have been fatal… The next time I contacted him, he was in Texas and he never returned my money.
      So, it is very difficult to know for sure about any Lyme literate doctor. I think it may be worthwhile to travel further to find a doctor who is highly recommended by other Lyme sufferers. You can learn a lot from patient reviews. Also, if you are well enough to do some research, it’s helpful to know what you feel needs to be done. Then you can quickly assess if the doctor is going to offer the best treatment for you.
      I am currently searching for doctors again myself. Apparently no one likes to treat fungal infections either. My skull fractured from the infection recently, but each doctor just sends me to another and no one treats the illness. I came across 2 places in Scottsdale Arizona, one treats Lyme the other treats Lyme, cancer, and fungal infections. There is a place in Atlanta that focuses on treating various environmental illnesses… It seems these places are more open to treating Lyme and they often work with insurance companies…
      My main point is, PLEASE DO NOT LET THIS DESTROY YOU!!! I have babbled on a bit, but this is why I chose to respond to you in the first place. Your last sentence grabbed my heart. I just can’t stand this disease. It is awful, but please don’t choose to let it turn you into an unhappy, angry, cynical person. Try to love every moment that doesn’t completely suck. Laugh at anything even remotely amusing; it helps bring more laughter. Smile just because you were able to get out of bed, didn’t have stuff coming out of both ends, weren’t on the floor writhing in pain… You will have to work hard everyday for much longer than anyone would wish. It is not fair, it makes no sense, but if you let yourself evolve into someone without happiness, then you will be more likely to quit fighting all together. Not to mention, there are already a bunch of grumpy, unhappy people all around. So please, fight to get to the right doctor, to get your health back as much as possible, and then smile, smile, smile because YOU WILL HAVE SO MUCH TO SMILE ABOUT!

      • lori
        April 12, 2015 at 4:29 pm

        Did you ever find a llmd doctor in Florida?

        • Jude
          September 3, 2015 at 9:22 pm

          I’m looking in Florida too…I’m in Jacksonville…I would hate to think that I have to drive so far for a doctor…410-251-4111…Jude

          • Jody
            November 9, 2015 at 3:02 pm

            I am also looking in Jacksonville . Any help would be great.

          • Elizabeth
            February 7, 2016 at 9:56 pm

            Did you find an experienced Doctor who treats severe Lyme Disease. I’m looking for my brother in law. They live in Florida and Michigan and are desperate for help.

        • Amber
          November 20, 2015 at 3:34 pm

          I’m also looking for a Lyme Dr. in FL, preferably near Tampa or Sarasota. Anyone know of any?

          • Jesika
            December 10, 2015 at 12:30 pm

            I too am looking for a doctor in Sarasota, please let me know if you have had any luck…I have been searching for two years

          • Kathy Brinster
            April 11, 2016 at 1:20 pm

            Dr Minkoff in Clearwater Fl

          • cathy
            September 22, 2016 at 3:29 pm

            did anyone find an llmd in Sarasota or tampa area? need help

          • laurie wiseman
            May 8, 2017 at 11:10 am

            did you ever find one in Tampa?

        • November 21, 2015 at 3:52 am

          I’m from Orange County and am very desperate does anyone know of a dr list somewhere ? Why is this such a secret. My health is debilitated and I need to go see a specialist soon.

          • Laurie
            April 15, 2016 at 3:24 pm

            Did you find anyone? I’m here to and cant get the name for anyone that is a LLMD?

      • Amber Amerson
        June 10, 2015 at 1:47 am

        Thank you Jen. I know a lady who has some symptoms and I promised, I will search in internet for her. She does not have pain. She had symptoms that mimic flue, nervousness, sleeping very often, tiredness. She was not dx. as Lyme . Doctors do not know what is the blood test specific for Lyme. Pain and stiffness at joins. Blood test shows RA factor increased. Dx. Rheumatoid Arthritis. rush, bull-eye on the leg with fever and chills. The most recent doctor said that it is Autoimmune disease. What she can do ?

      • Sarah
        September 23, 2015 at 8:03 am

        I love you thank you for this! Hope your recovery process is a positive one.

    • Marygrace Coneff
      February 7, 2016 at 6:23 pm

      It is a CLINICAL DIAGNOSIS, because Steere, from the CDC, changed/altered the disease testing and definition so he could get a patent to make a vaccine.
      Anyone can say they are an LLMD. So get references first.
      Suggestions for alternative, natural treatments.
      Bee Venom Therapy has been kicking the butt off Lyme Disease with those using it. In my humble opinion, antibiotics can’t cure Lyme Disease because it changes and can hide from them.
      I am using GcMAF now and am herxing badly. Backed off some, even though I am using a miniscule amount.
      I started my journey using Low Dose Naltrexone, LDN, which helped me get out of bed after being bedridden for 2 years.

      • Cheryl Salter
        July 16, 2016 at 7:03 am

        Could you provide me with some more info on this bee therapy and where it’s given . Csalter@ec.rr,com
        Thank you kindly for any info .

    • April 2, 2016 at 9:32 pm

      Dr. Saleeby sees patient in the Wilmington, NC area at his Cary office.

      • Loralie Buckley
        August 21, 2016 at 9:25 pm

        Hi Linda D, I have to say I went on Dr. Saleeby’s website and felt a glimmer of hope. Until, I saw this…”Dr. J.P. Saleeby and Dr. Priscilla Evans (ND) are seeing patients for consultations near Raleigh, NC.(yada yada) Please make appointments and ADVANCED PAYMENT via our home office and toll free number (800) 965-8482.” What? Ahh, thanks but no thanks!

        IDK if you’ve simply heard about him or perhaps you went to him? I mean absolutely no disrespect towards you and apologize if you know or like him.
        With that said, if you’re simply passing along good names of LL Dr.s you’ve been
        told about? I simply wanted to give you a heads up on his payment arrangement!

        IMO that’s not cool 😎 at all and rather inexcusable! Take Care… 👣

  6. Johnny
    July 10, 2011 at 8:45 pm

    Hello, I have been having certain symptoms for over a year. Let me start from the beginning. May 2010, I began getting mild headaches, widespread muscle twitching, blurred vision and lighheadedness. They were all an on and off type of thing, sometimes going away for a few days and then always returning. After a few months, I began getting a ringing in my left ear that was also on and off. I went to my doctor, he ran blood tests as well as gave me a CT scan without contrast and an MRI with and without contrast. Everything came back normal with the exception of a vitamin D deficiency and I also had the beginning stages of fatty liver which was diagnosed VIA an Ultrasound. I had also been diagnosed with mixed sleep apnea. So, I started on a diet and attempted to lose weight. I was 350 lbs and Now I am 260 lbs. My fatty liver is pretty much non-existent and my sleep apnea has gone away to the point that my pressure is now way too high for me on my CPAP machine. But, though I have lost close to a hundred pounds, my symptoms still remain and I have even gotten a few new symptoms. Now, the headaches are far and few between, the lightheadedness, muscle twitching, blurred vision and ringing in my left ear still come on and off. But now I have also been having pain in my neck, pain in my lower back and also bad aching pain and weakness in both my legs. The leg pain begins around my knees and goes all the way down to my feet. My arms have also begun to feel achy and weak off and on. Often times after I walk, I get this vibration feeling on my left arch of my foot that feels like a cell phone is underneath it on vibrate mode going off. My legs ache so badly that it is often difficult to walk on them. Then, it will go away for a few days and I will be able to walk fine, with no pain and no foot vibration. A few times when the leg pain symptoms was present, I actually heard a creaking nose in my foot as I attempted to move it. There has been more cracking in the joints of my knees, arms and legs as of late. Also, my feet often feel tingly, like they’re falling asleep. I have also been feeling pain in my muscles in my legs, arms, hands and sometimes in my back and neck. I have felt the same tingly feeling in my fingers at different times. Please, I just want my life back. I don’t drive and I can’t travel very far. I am in the Oswego/Syracuse NY area and I am in dire need of an LLMD.

    • Danielle
      July 10, 2011 at 9:03 pm

      Gosh, that is awful…and the vibration sensation is one I am intimately familiar with. I don’t know of any LLMDs up by you, however, in addition to the above resources I mentioned in the blog post, Turn The Corner – a great Lyme disease foundation – will help you try to locate an LLMD near you…”Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link

      And here is their email for inquiries:

      My prayers are with you!

      • Aimee B.
        April 21, 2016 at 4:14 pm

        Do you know what happened to the “Turn The Corner” foundation? The website appears to be like a blog of random articles, none of which are about Lyme, & the email address is undeliverable,so it no longer exists! Please, help!! 🙁

    • Jen C
      June 23, 2014 at 12:15 am

      Hi Johnny. I am very tired at the moment, so can’t write much, but I am wondering if you were able to find help for all of the horrible symptoms? I truly hope you are feeling better these days 😉

    • kim
      October 5, 2014 at 4:28 pm

      Did you find a good LLMD? I’m in the Syracuse, NY area looking for a LLMD. Willing to travel. If anyone has a recommendation, please let me know!

      • KC
        October 9, 2014 at 8:08 pm

        The best I could find was Dr. Joseph Jemsek in DC. Here’s his website Good luck

      • Autumn
        October 27, 2014 at 1:30 pm

        Kim did you ever find a LLMD in the syracuse area? I’m in the same area and looking for one also. Thanks

    • T Reisr
      March 10, 2015 at 4:58 pm

      Horowitz. Albany NY

      • Looking L
        June 13, 2015 at 9:16 am

        Lyme contracted some years back. Never know if I am re-infected when seeing symptoms “reappear” or cycle from better days to not so good days. Can you offer any Lyme literate doctors in upstate NY area, Albany/Adirondack, Berkshires region?

        Please post FIRST and LAST name of doctor.

        • JS
          January 31, 2016 at 9:32 am

          I am also looking for Lyme doctor in UpState New York. Any recommendations greatly appreciated!

          • JS
            January 31, 2016 at 9:32 am

            Looking for Lyme literate doctor in upstate New York? Willing to travel

          • Samantha
            February 24, 2016 at 2:02 pm

            Dr. Elena Frid. She is a smart Neuro-Lyme specialist in New York City. Good Luck!

    • Ed Price
      March 7, 2017 at 5:46 pm

      Johnny, Your story sounds a bit familiar. As this all came down on me, 80 years of good health made me think it would all go away. My poor balance was the worst; next the muscle weakness in my legs. My blood pressure started going all over the place (102/54 up to 192/94). I saw several doctors and did 16 blood tests, two MRI’s, an EMG, a CAT scan, an EKG, an Echo Cardiogram, and some more. No diagnosis! I asked for a Lyme disease test. Lab Corp gave a negative answer. More things came along. Daily mild headaches; constipation that would not react to standard helps; chills with widespread muscle twitching; I now take vitamin D and blood pressure pills; blurred vision in one eye only; occasional tremors in my hands; cold hands and feet, at times; use of all muscles can lead to pain and weakness; too much use of my thigh muscles will cause them to drop me to the ground; on occasion, I have tingling in my arms and hands. My ability to walk is getting worse every day. I am thinking of going for the California spot blood test.

  7. August 23, 2011 at 2:40 am



    • Danielle
      August 23, 2011 at 11:09 am

      Hi there,
      I am so sorry you have not been able to find a doctor in your area. I wish I knew of a Lyme literate doctor in Dallas, let alone Texas, that I could point you to. I think there used to be one near Austin that moved to another state. The only thing I can suggest is that you contact the above organizations and the forum as they will provide you with any LLMDs that may be in your area or any that may be in TX or the surrounding states that I am unaware of.

      • Jamie
        November 12, 2013 at 6:27 am

        Good morning,
        I’m hoping you guys can provide me with some answers and hopefully some direction. I will give you a little history, I’m 32 years old originally from the upper eastern shore of MD in 1989 I acquired Lyme disease. I’ve been fine for most of my life participated in sports in high school, served active duty military and have birth to 3 beautiful children. The Navy moved me to Virginia which is where i now call home. Last month I was bit by another tic, due to my history I instantly freaked. My PCP calmed my fears and said just watch for a rash. About a week or so passes and i began to show symptoms I felt tired and achey, then notice a red ring at the site and another unusual mark on my arm. I contacted my PCP again ran an igg/igm that tested positive and started me on antibiotics. About 2 weeks into the meds they called me in for a western blot (this would determine if the infectious disease doctor would see me). Well he says my blot is negative so he will check me again in 3 months, but will put me on the books for his 1st available appointment (February 17th) just in case. Not really sure what to make of it all except my legs and elbows still hurt pretty bad and I’m exhausted the other symptoms I’m able to maintain but not sure for how long. After reading the message boards I do have some questions

        1. Should I be treated by an infectious disease specialist?
        2. With all the symptoms from lyme how is it treated, as a disease or by individual symptoms?
        3. Is this customary that I can’t get in front of a Dr only ordered labs and calls with nurses?
        4. What should I do?
        I’m quite miserable, and feeling quite hopeless

        • Judy Quinn
          March 4, 2014 at 8:04 pm

          I would either go to your local E.R. and insist you be admitted to the infectious disease department and/or go to any walk-in or your PCP and insist on a 30-day supply of Doxycline or you will sue for negligence and or malpractice. If you can’t get into Infectious disease make an appointment. Call every day and insist they admit you. The most reliable tests for Lyme disease and its co-infections are Fed-Ex’d overnight to a speciality lab in Palo Alto CA. It’s called IgenX. There are others, but that is who diagnosed my lyme. Many Infectious disease doctors phew phew their results. YOU ARE THE PATIENT PAYING THEM! INSIST ON SENDING THEM TO THIS LAB. YOU CAN CALL THEM FOR FORMS AND MORE INFO OR GOOGLE THEM. Take notes of all and everything and everyone including dates and names of doctors (recording on phone is good too) and threaten legal action if they do not treat you NOW. At this point, you most likely will need a pic line inserted and a month or more of a very strong anti-biotic called ROCEPHIN. Anyone out there who is bit by a tick of any kind, I highly recommend you immediately see a walk-in doc and demand a months supply of DOXYCLINE. By time you are diagnosed (local blood labs DO NOT DETECT IT NOR DOES WESTERN BLOT) you will have chronic lyme (like myself). Threaten LEGAL ACTION IF YOU ARE NOT GIVEN WHAT YOU WANT AND KEEP SEARCHING A DOC UNTIL HE GIVES YOU THE $4.00 anti-biotic. I wish I knew now what I did 10 years ago, I’d be a might wealthy woman and may not be disabled because of the IDIOT doctors (including neurologists I had the pleasure of dealing with for a week as an in-patient at a big hospital) who didn’t listen to my repeated words, “I got bit by something”. They made ALOT OF MONEY on their un-necessary brain imaging tests. I neither found a tick; no bulls-eye rash. I had a severe, unrelenting headache, fever, chills and when they resided I went cross-eyed. It was my eye doc who saw I had a 6th nerve palsy and got me to go see a neurologist. I spent 15 hrs. in the E.R. repeating the same thing from the student, residence on up to the Chief of the E.R. that “I got bit by something”. I was admitted at 3:00 a.m. and poked awake by the “goon squad” of student, residents and my attending neurologist at 7:00 a.m. each day; repeating the same thing over and over. I was wheeled down to their Neuro-Opthamologist who ordered a battery of brain imagining tests and chest x-ray (I knew they were looking for a blood clot they would not find). When all came back negative the attending neuro asked to do a spinal tap. “Go for it” was my response” 6 hrs. later he returns and says, “My, you have an awful high white blood count!!! You didn’t get bit by something did you?” I was immediately at the mercy of two phlebotomists taking 20 vials of blood. When I got home I called the records department every day (by now I knew I had Lyme from research) and was becoming postal. I fetched them before the neurologist did and there it was! LYME DISEASE. They did all/every test under the sun including DNA tests for conditions of all kinds. The neuro then told me it was now out of their hands and infectious disease would contact me. (NOT!) I found out they made an appointment for 2 months away and thats when I cut loose on some poor clerk and was admitted THAT day and hooked up to I.V. anti-biotics. I had a visit from 1 of the 2 representative/employees of the CDC of WV who looked at me and told me it didn’t exist in this area! I could go on and on but my point is: You HAVE to be your own advocate and INSIST on what you believe is wrong with you. Doctors are NOT THE GODS they think they are (I used to be a scrub nurse and have first hand insight as what the public will never know about some of those that shouldn’t ever have a scalpal in their hand, never mind practice medicine). It’s a BIG political/medical issue with the Pharmaceuticals and their lobbyists lining pockets of politicians and research hospitals that DON’T get federal funding if they support research and doctors that treat it. In bed with them are the FDA; doctors; medical institutions; the CDC etc….etc….LYME DISEASE IS AN EPIDEMIC IN EVERY STATE EXCEPT TWO. My Lyme disease doctor was recently told by the above treating hospital that she was no longer allowed to treat Lyme. She had a 3 month waiting list of Lyme patients with no-where to turn. RESEARCH all and everything you can. This epidemic is called the “GREAT IMITATOR” and imitates all/every disease. Ever notice how many people are walking around with Fibromyalgia? I’d bet my life that most of them (if properly tested) have Lyme. The doctors have to get paid, so their symptoms most likely match and the code given to the insurance company pays. This disease is a BIG MONEY MAKER. RESEARCH, READ Jenna’s Blog; READ,READ.READ and SUE those @$@@#@’s so it makes a point to others who don’t look deeper. Me? It crossed my blood brain barrier so I have (in addition to Epstein-Barr virus and severe Rheumatoid Arthritis) cardiac issues; depression; brain dead and whatever was left of my adrenals is gone. My fighting nature is zip. I’m probably going to find a Naturopath and F&&ck the MEDICAL INDUSTRY MONEY MONGERS!

          • Bobbie
            April 10, 2014 at 11:17 pm

            I took the drugs you mentioned and I still have some symptoms.

          • John
            June 13, 2014 at 10:32 am

            That’s terrible. I only quit pittying myself for tingling arms, achy back, insomnia and fatique, because people around me were also tired and achy. Reading all this just makes me think again that I might also have been infected. I’m 39 now but I started feeling like this since I was a teenager. I remember being bit by a tick couple of times. This really makes me think that I should not be feeling as I feel for over 20 years. About 10 years ago I went to some local doctor with my symptoms (including tingling face, exhaustion etc) and you know what he told me? That I’m getting old 🙂 Before that and after that I ended up in E.R. Because I thought I had an heart attack. My heart beating irregularly and I was exhausted and a nerve wrack. They told me I have pannic attack and put me on bunch of depression pills that almost killed me. Basically they told me I was a psycho and it’s all in my head. Recently I mostly suffer from tremendous muscle stiffness and nerve pain. Some shooting pain here and there. Cold sweats, sleeplessness, fatigue, tingling arms, sometimes I can’t move properly, i have this ringing in my ears. All these things get worse with physical activity and because I’m about sports it’s tough. Getting dizzy in a gym is really emberrassing. I have days when I feel like if I make another move I’ll die. Like litterally I have to to pee and I’m thinking if I make it ali e to the bathroom 🙂 Years back I gave up the search for answers because it seamed like I could have hundred different diseases but now I’m thinking why should I have them when I come from totally healthy family, why should I have heart problems or rheumatitis? Is it this Lyme disease? Really? live in NC and re-thinking my situation. Just don’t know where to start. It’s all so confusing. Good day.

          • Kara
            May 9, 2015 at 8:38 pm

            I believe I have Lymes Disease and live in WV. I have been to Cleveland Clinic and have had so many different vials of blood taken, it is ridiculous. I got bit by a tick in the summer of 2012. My PCP (She is awesome and has taken great care of me over the past 2 years, but she works for a large hospital and I’m afraid someone else will get involved and I won’t get the correct treatment) just did the Western Blot on me Thursday. I am currently waiting for the results. Can you email me? You are the second person I have heard talk about issues with cdc and doctors. A family friend kept going to the doctor and finally an orthopedic surgeon diagnosed her with Lymes… AFTER he requested blood work to determine it.. someone at the lab supposedly “lost” it and they wouldn’t do another test. It was a huge mess. I want to know which doctor you are currently seeing for help. I am much too young to feel this way. My Email is

        • Jen C
          June 23, 2014 at 12:25 am

          I wish I had found this site earlier. I am very tired at the moment, but can explain a lot about the doctor situation. I have dealt with wonderful and absolutely horrible doctors during each illness including cancer, chronic Lyme, and now a systemic fungal infection. The one thing I will say now is DO NOT RELY ON THE INFECTIOUS DISEASE DOCTOR!!! This is extremely important. My mother, who is a medical doctor herself, can’t even get one to consider anything other than what is already implanted in their minds. I have seen 3 ID docs in 2 different states. My skull is now fractured and I’m losing sight in my one remaining eye and yet they refuse to treat me for the fungal infection it is so clear I have. They seem to mainly treat people with HIV/AIDS or those coming from another country with an unexplained illness. I hope you have found help. I am not sure how to leave contact info. I am quite ill and often can’t reply to e-mails, etc. but I will check back to see if you replied to my response.

          • BL
            February 8, 2017 at 5:00 pm

            Jen C
            Have you found any help? I too am in your situation and fee what is coming1

        • X YX
          March 10, 2015 at 5:01 pm

          Bellovin Zacharia both in Chesapeake. Both iiads

      • Jamie
        November 12, 2013 at 6:30 am

        My emails to turn the corner are being sent back undeliverable

    • Gani
      April 29, 2012 at 3:48 pm

      I TOTALLY AGREE WITH DALLAS TEXAS POLICE EMPLOYEE!! WHY ARE PEOPLE KEEPING SECRET THE NAMES OF DOCTORS WHO MAY BE THE ONLY ONE TO GET THAT PERSON OUT OF MISERY. MY SYMPTOMS HAVE BEEN SO BAD THE PAST MONTH, I HAVE HAD THE THOUGHT OF KILLING MYSELF IF I DONT GET HELP SOON!!! I live in Danville Virginia and the healthcare here STINKS!! been to two other places out of town, and TESTED POSITIVE on ELISA TEST at one of these out of town hospitals and they still are not treating me!!! WHAT AM I SUPPOSE TO DO? I had plans to move this summer to TEXAS where my daughter and family are, and i am too sick to get out of bed, much less pack to move! THANKS FOR ANY SUGGESTIONS!! ANNETTE

      • JasonMChicago
        April 29, 2012 at 7:08 pm


        This is a tough condition. I have to admit I’m very tenacious and aggressive and it even gets to me somedays. I’ve been going 4 months of alternative treatments and have seen good improvements.

        While I looked for a doctor I did the following:

        – I took high doses of Vitamin C 50 GRAMS (IV is best but if I couldn’t find that then I just bought “sodium ascorbate” or “calcium ascorbate” (these are easier on the stomach) and did it 1-2 times a week. This helps build the connective tissue and collagen that Lyme+ is interfering with.

        – I take mega doses of probiotics 50-150 Billion daily. I got a good quality one from whole foods or online at

        – I take aloe vera for the GI track

        – I do many things to detox (google these there are many things you can do and I did them all DAILY. Every single day).

        – I take a bunch of immune boosting supplements. Also changed my diet no sugar (none not even fruit), no carbs (check everything… things like carrots have carbs so you have to be careful), no dairy.

        – Only after months and months of these things did I even attempt to kill bacteria/pathogens.

        IT DIDN’T HAPPEN OVERNIGHT BUT I DID SEE IMPROVEMENTS. I have still a ways to go but I have to admit it takes commitment every day.


        • January green
          February 16, 2013 at 8:51 pm

          Hi , I read Jason’s letter and am impressed with his discipline. I make a great effort to eat really well but I know with this condition one needs to be strict. I had Chrons disease when I was younger ,Steroids and various meds caused thyroid problems, came off all drugs 10 years ago then was told I had candida many infections followed then bad apartment environments. I got bit by a spider that caused my left arm to swell up for 6 months. Also notices quarter sized red circles on legs and bug bites that cause me to have sinus and blader infections, I get anemic,aches, tired,insomnia. Etc
          My whole life I have had illness but nothing tops these bites and my reactions. I saw an immunologist and said all this has causesd my immune to break down now I am allergic to cats , dogs ,dust ,etc
          I have had two tests done for lymes disease but both have come back negative. but I think it may be lymes or something related.
          I am wondering what type of alternative docter did Jason see .

          • Kiwi
            July 27, 2013 at 7:56 pm

            Stop eating Genetically modified foods and your Crohns should go away.

        • roberta sloan
          October 15, 2014 at 4:58 pm

          find a dr that does chelation therapy for metals..dr robert steinfield..cedar grove, nj..if hes still around

        • Bbnobull
          March 10, 2015 at 5:03 pm

          If u had syphilis what would you take?

        • debbie nelson
          March 17, 2015 at 1:35 am

          This is sooo crazy! My husband has been sick for 3 yrs-we saw the target mark, etc. He is barely able to work & so sick of being sick. he is on tetra right now, but we have tried every oral antibiotic there is. so many of his symptoms are in his head-major headache above eyes, swelling by eyes, fatigue, depression-i have never seen him cry, but the last few years i have. His whole expression changes as soon as the nausea hits him, or the pain everywhere. We will try yr protocol as well, but did you ever see a doc?

      • Judy
        March 4, 2014 at 8:22 pm

        Get into a reputable hospital (admitted) that has infectious disease department and insist on the anti-biotics first. Tell them you want your blood tested and sent to Igenx in Palo Alto, CA and tested for Lyme and all it’s co-infections. Threaten your doctor to put you on Doxycline for now (twice day) or you’ll sue him for negligence (and do it!) until you get to a Llyme Literate Doctor. Read “Jenna’s blog” and any other site concerning Lyme. There are plenty of people in your shoes or worse that will support you and point you in the right direction. Killing yourself doesn’t solve anything but your pain, believe me, I’ve been there. Fight for yourself and everyone else out there in our position. THIS BIG GOVERNMENT COVERUP WILL BE UNCOVERED if we keep fighting for ourselves and others. DON’T GIVE UP! I’m fighting this all by myself in bum-f***k egypt WV. My husband died (48 yrs. old) and only child moved to TX. All my relatives live in New England. I live alone and am on disability only to be treated with band-aid meds. I just slept for 3 days (without any medication to help) because I hurt so bad and am depressed and feeling like you. I am going to try several other routes; driving a LONG way to a Lyme Literate doctor or going the Natural way. I need my adrenaline back to fight like I was able to when I was well. WORD OF ADVICE: Stay away from sugar!!! Lyme bacteria thrive on anything with sugar in it (just about everything has sugar in it) and get on a good vitamin regime esp. Vit. B’s and C (in high dose). until you get advice from a lyme literate specialist whether it be a naturopath (an M.D. with 4 extra years of schooling) or a Lyme Literate Physician. Meantime demand that Doxy!

      • Jen C
        June 23, 2014 at 12:36 am

        I am so sorry to hear what you are going through. It is awful to be stuck in bed watching your life pass by while you struggle to find someone to help. It should be so simple… I know that here in NC, doctor’s will lose their right to practice medicine if they treat patients for chronic Lyme disease. I received 3 weeks of IV antibiotics in New Hanover hospital. I was still extremely ill when they were ready to pull my PICC line, but no doctor would risk the repercussions to continue my treatment until I found one of the hidden Lyme literate doctors. Dr. Jemsek (or Jensek) is now in DC. He lost his medical license in NC and SC for treating people suffering from chronic Lyme disease. I hope you have found help.

    • Kiwi
      July 27, 2013 at 7:52 pm

      The Texas Board of Medical examiners has prosecuted many doctors treating chemical injury and many Lyme’s doctors have been run out of their state by their medical boards (nc), so please understand that until the politics of Lymes disease changes, be grateful for the surveilled internet so that you can still get help from these organizations. Newbies do not know these truths.

  8. Robin
    December 2, 2011 at 6:51 pm

    Does anyone know of a Lyme’s literate doctor in the north central Minnesota area? Lyme’s Assoc. info proved to be incorrect as the doctors have been threatened and no longer treat this disease. This is for my sister, please help!!!

    • Julie
      October 4, 2014 at 2:02 am

      Leslie Valinsky practices in Minnesota. She is a Neuropath who works with an MD so she can prescribe antibiotics and naturals. She is at a new clinic so you will have to google her. Good luck.

      • Ruby
        October 29, 2014 at 10:43 am

        Do you know of Lyme folks who have been treated by her?
        I’m from the Duluth area and I’m looking for help. I’m currently under the care of a chiro in moose lake mn, but I’m having doubts about them.

  9. Danielle
    December 2, 2011 at 6:57 pm

    If you do not find an LLMD through the above resources, these people may be able to point you in the right direction for your sister.

    Minnesota Lymefighter’s Advocacy ~ an Affiliate of the
    “Lyme Disease United Coalition”


  10. Winnie
    February 15, 2012 at 6:28 pm

    I was treated for Lymes Disease in the Summer of 2010 (21 days of Doxy). But I have a sinus infection now, and today all of my original Lymes symptoms are back. Do you know the closest LLMD to Charleston, SC?

    Thanks for your help.

    • Danielle
      February 17, 2012 at 1:51 pm

      Hi Winnie!
      I don’t know of an LLMD close by to you, but if you contact the above resources they should point you in the right direction!
      Wishing you the best in health,

  11. Paula
    March 6, 2012 at 3:22 pm

    I am looking for a LLMD near New Jersey, New York or Pennsylvania. I have had chronic lyme for 25 years. done antibiotics, herbal, hyperbolic and more. I now would like to work with a doctor who can guide me in Rife machine use, mercury detox etc. Any info would be helpful. thank you , Paula

    • Samantha
      February 24, 2016 at 2:11 pm

      I just saw this article. My doctor was Dr. Elena Frid. Best of the Best. Best of health! Sam

  12. March 6, 2012 at 3:26 pm

    looking for a LLMD who can guide me with Rife , mercury detox. Have tried all the traditional approaches. NY, NJ or PA area are fine. Thanks for whatever help can be offered. Paula

    • Danielle
      March 7, 2012 at 1:34 pm

      Hi Paula,
      The doctors I know of that are open to rife in the area are Dr. Horowitz (up to a yr to get in I believe) and a Dr. Thomas Moorcroft in CT (recommended by my LLMD who took a medical leave)

      I have also heard of a Dr. Edward Yost in NY, but not 100% sure if he deals with rife and mercury detox.

      Wishing you the best in health,

      • JasonMChicago
        March 7, 2012 at 9:27 pm

        Paula…. I’ve heard about Dr. Horowitz all the way here in Chicago. My alternative health care person mentioned today that her other Lyme patient’s doctor is Dr. Horowitz. I asked where he was located and she said DC! The patient flies to DC and they have monthly phone conversations. I don’t know anything about his approach but if it involves a holistic approach may be worth seeing.

    • Sheila
      August 19, 2013 at 2:20 am

      Hi Paula,

      I’m wondering if you found a doctor who’s open to the Rife machine? I also have Lyme and mercury toxicity and am looking for the same doctor you were seeking.

      Please let me know.


  13. Amy
    May 31, 2012 at 3:18 pm

    I have been diagnosed with Lyme Disease approximately one two years ago. I remember when this same type of back pain that I experience started. It was almost 10 years ago during the end of my first trimester of pregnancy. I thought the pain was coming from the weight gain but I’ve recently lost 20 pounds almost taking back to my pre-pregnancy weight so this cant be the reason for the sever constant pain. Its horrible and no one realizes the severity of it. I’v taken the first dose of oral antibiotics but never finished following up with my Doctor due to not having insurance any longer. The only thing that has seemed to help me somewhat is Tramadol. This works better than other narcotics which seems a litte strange. I’ve tryed everything and nothing helps. I have no energy and I can’t continue to feel like this. I’m only 26 and I’m so phyically and mentally weak all of the time. Somebody please help me with some advice.

    • Danielle
      June 6, 2012 at 11:10 am

      Hi Amy, If you contact the above organizations, they may know of doctors who will treat for no or less money. All the best in health, Danielle. There is a doctor in Florida named Dr Cichon that treats people who are strapped financially I believe

      All the best in health,

  14. Gail Pueschel
    June 15, 2012 at 4:15 pm

    We are looking for a LLMD that takes Cigna in norther Virginia
    And also 1 in providence rhode island
    Can you help us?

    • September 30, 2012 at 10:26 pm

      I am a licensed professional counselor working with a client who has resently been diagnosed with Lymes (probably has had it for quite a while).
      She is looking for a LLMD in Northern Virginia also. Did you find one that takes Cigna or any other insurance? Any suggetions?

      Thank you for your help.

  15. April Carter
    June 19, 2012 at 8:09 pm

    I am looking for a LLMD in PA…My husband discovered our dog had lyme disease, we got him treated with ease, but when my husband was tested and came back positive for lyme disease, we are not having any luck to finding a doctor who will take my insurance, they want cash up front and we dont have the amount they want. I am seeking a LLMD in PA or MD? any advise would be apriechiated… Thank you!

    • Maria
      July 29, 2012 at 7:48 am

      Hi April, I live in PA and see a Lyme Doctor in Hamburg. You are correct as none of the lyme doctors take any insurance for treatments and it is all OOP. No insurance means no hassle from insurance companies hense, they are 75% safe from loosing their medical license. It is a terrible thing to make patients pay for care that is so needed. I have had lyme for over 20 years and just got dx last August 2011. I have been on IM injections and oral antibiotics for almost 1 year and only feel about 50% better. I also have spent almost $30,000,00 for all the treatments and oral meds that are not covered under my insurance. Plus, insurance companies feel that all this treatment is considered experimental and will not be covered anyway. NIH and CDC need to change their views on treatments and then, this will force the hand for insurance companies to pay. Good luck … And yes, I have now run out of money to continue with my treatments. I had to cancel my August appt because I could not pay. These lyme docs will not continue to have patients that can not pay either. So, we lyme patients are stuck….. the system does not want to assist us with good quality doctors and the LLMD that are out there want the big bucks to treat and when anyone runs out of money, well, its just too bad for them. Hum……… I guess the oath to treat the sick really should be the oath to treat the wealthy sick!!!

      • June 23, 2013 at 7:52 pm

        You said: “NIH and CDC need to change their views on treatments and then, this will force the hand for insurance companies to pay.”

        I think the National Institutes of Health and Centers for Disease Contol need to be exterminated. They are nothing but “Worthless eaters”.

      • Ann Marie
        November 19, 2013 at 2:09 pm

        Maria, What Doc is in Hamburg? I am close to the area and having all kinds of symptoms I was going to get a lung doc, Heart doc and eye doc but better try to get the Lyme tests first. Thanks, Ann Marie

      • JS
        January 31, 2016 at 9:39 am

        What Doctor in Hamburg? I am in Western NY and looking for Lyme Doctor… Thanks!

    • Kim J.
      October 20, 2012 at 2:55 am

      April, I also have not been to an llmd and have been sick with make sense of chronic lyme after 11 years of dealing with bizaree ( some contant and some change weekly or move around). I live in northern va and can’t get over having to pay a LLMD my kids college funds when I have good insurance. This is just such a controversial and ignored and serious disease so I still can’t understand what is going on. I do know of some Dr’s and if you want to message me offline, I can tell you about some. ( stay at home wife and mom of 2 kids and a dog)

  16. chasity
    July 31, 2012 at 5:31 pm

    i am looking for a LLMD in or around Memphis / Nashville Tennessee. I live in a small town in between, and we are willing to travel. It is such guarded information, and we really are desperate any information would help. Thank you and God Bless

    • Kim
      May 26, 2013 at 6:56 pm

      Did you find an LLMD around Memphis or Nashville? I just learned that there is one in Franklin, TN – south of Nashville.

      • Melissa
        June 30, 2014 at 2:30 pm

        Who is the Dr in Franklin?

        • Nicole Troutt
          August 2, 2015 at 6:47 pm

          Did you ever find out who the doctor was in Franklin? I also live in Tennessee and I’m desperate to get help

          • Lydia
            November 7, 2015 at 12:38 am

            I live south of Franklin and was recently diagnosed with Chronic LD. Would you please send me the doctor’s name and let me know if you had a good experience with them? Thanks!

  17. tami
    August 8, 2012 at 10:22 pm

    hello, i live in reno, nv and i have been looking for a good doctor that can help me with ALL of my chronic lyme issues. i was bitten in 1993 but not diagnosed for a couple of years. i did have the bullseye rash…but i didnt know what it was. i finally found a doctor in napa, ca who diagnosed me but i do not know where he is now. i was put on soc sec disability and was on it for 10 years. i was dropped in 2008….and i STILL cannot get a reason. before i was dropped back in 97 i was diagnosed with narcolepsy…extreme narcolepsy. i have SO MANY things wrong with me now but i am still fighting to get back on soc sec. it is exhausting. please help me before i get worse. thank you

    • Debbie
      August 31, 2013 at 4:43 pm

      Tami, when you were first diagnosed what did they do as far as treatment? I haven’t been tested but was diagnosed with fibromyalgia 20 years ago. Came across an article last week totally by accident that makes me think I should be tested. Will the test show up positive after years? Thanks

  18. Tessa Rubenstein
    August 9, 2012 at 11:07 pm

    Are there any Lyme Disease specialists in Israel…how does one obtain a referral?

  19. Raymond M Kirby Sr.
    August 25, 2012 at 1:13 pm

    I am 60 days into Lyme treatment and would nlike the address of a LLMD in the Hudson/Marlboro area of Massachusetts.
    Thank you.

    • WW
      August 16, 2013 at 9:08 pm

      Did you find a doc? Have you read or heard of the book, Out of the Woods? The author lives in Peterborough (sp?), NH. Her name is Katina Makris… Google her if you haven’t found a good doc. She claims to be recovered from Lyme. Best of luck, WW

    • Cindy Dimella
      May 21, 2015 at 11:03 am

      Hi could I please have the names of Lyme docs you have offered to mention in Hudson mass
      Thank you!

  20. Lee
    September 4, 2012 at 4:50 pm

    Looking for Lyme disease specialist near Atlantic cityarea

  21. Pauline
    September 13, 2012 at 8:16 pm

    I was recently diagnosed with Lyme and on my second course of Doxycyline. Very little improvements and noticing more symptoms. My Doc seems confident that all will be fine once this course of antibiotics is finished. I’m not as certain, and with new symptoms appearing I am more and more concerned. I am having trouble finding a LLMD in my area, if anyone is able to help I would greatly appreciate it.

    I live near Lincoln/Omaha, Nebraska.

    Thank You!

    • Anthony
      April 24, 2013 at 8:21 pm

      Hey Pauline, what Dr. did you see to initially get tested. I live in the Omaha area as well.

    • Debbie
      August 31, 2013 at 4:46 pm

      Pauline, what is your course of treatment and how long have you had Lymes?

  22. Pat
    September 15, 2012 at 11:29 am

    I am having a hard time finding a LLMD . I have been on the sights you recommend but I haven’t gotten any responses. I live in Hampton Roads area- Norfolk, Virginia Beach, Portsmouth, Cheasapeake.

    • Dani
      July 31, 2014 at 7:18 pm

      Hi Pat, did you have any luck finding a LLMD? I live in Hampton Roads too, was just diagnosed, and seem to be getting absolutely NO WHERE!!

      • Dani
        August 25, 2014 at 8:21 pm


        My husband and I live in Hampton Roads and he was has been diagnosed with Lyme disease. He has been given (by his PCP) a 60 day antibiotic, but we’re of course looking for a physician in the area. Hope you’ve found some help!
        Cat and Jeff W

    • Kayli Hibbard
      April 17, 2016 at 4:04 pm

      Dr. Kathryn Harbor in Lexington, VA. Worth the drive!

  23. Amy Masser
    September 24, 2012 at 10:37 pm

    Does anyone know a Lyme-aware physician on the west coast?

  24. clarissa pinske
    September 24, 2012 at 11:46 pm

    I am very sick from the tick bourne parasite Babesia. I am seeking a doctor in the minnesota area who will treat me for this. I got it diagnosed from a scottsdale arizona clinic but they wont treat me for it here. I keep getting sicker and sicker.

    • Beth
      January 28, 2013 at 10:22 pm

      Mayo clinic

  25. Nicole
    September 25, 2012 at 10:19 pm

    I’m suffering from chronic lymes diease and looking for a doctor in the Minneapolis area of Minnesota. I would greatly appreciate any information you can give me.

    I keep testing positive for the DNA of the bugs and borderline on the markers.

    Thank you!!!!!!


  26. JasonMChicago
    September 26, 2012 at 12:27 pm

    Google “integrated health care winona” there is someone there that can help you.

  27. Doug
    October 9, 2012 at 5:13 am

    Look for a Lyme Disease Literate Physician in the DFW area. Any suggestions?
    Thank You,

  28. Darlene Shapiro
    October 13, 2012 at 1:38 pm

    My 14 year old son has chronic lyme disease & it has triggered a heart condition (POTS). He desperately needs a LLMD. We live in CT but are willing to travel. Contacted Dr. Horowitz (Hyde park, NY) but he is not taking any new patients. Does anyone know of an LLMD in the tri-state area???? Please help. My son has not been to school in months.

    • Kiwi
      July 27, 2013 at 8:08 pm

      POTS is not a heart condition oer se and is really neurally mediated hypotension. An environmental medicine doctor can help with that aspect. It basically means they ave too low blood pressure because there are not enough adrenal hormones secreted to maintain enough fluid n the blood to maintain healthy blood pressure. You can faint and the rest of the time you just feel tired all the darned time.
      Traditional route: fluorinef or cortisol
      Non traditional: adrenal glandulars from animals

      • debbie nelson
        March 17, 2015 at 1:47 am

        I am interested in the process you used. My husband has been fighting lyme’s forever, and his adrenal’s shot. dr’s in Utah are worthless on either of these issues. Please explain yr course of action in more depth. thanks for any help!!

  29. Peggy C.
    October 16, 2012 at 5:09 pm

    I became very ill with a flu-like disease in 1985. One of the symptoms was white spots in the mouth and, as i recall, they were painful. I was subsequently tested for Lyme disease in 1987 at Georgetown Univ. Hosp.: The first two results were positive but the third was negative. I have just finished reading Brandilyn Collins’ book, OVER THE EDGE, and am wondering if I should be tested again. I am so ill that I can no longer work; some days I can’t even get dressed.

    Could you please suggest a doctor in my general area? I am now in 25427 but used to go to Dr. Beals in DC.


    • Kim Jack
      October 20, 2012 at 3:15 am

      Peggy, sorry to hear your story but it sounds a bit like mine except my symptoms that i am awere of really showed up in 1998 roughly. I can relate to the flu feeling ( get fevers daily and chronic muscle/bone pain) I did not get tested until years after the fact but when pregnant ( back to back miscarriages) Dr’s noticed something was not right and kept telling me 11 years ago I needed to go see the Inf Dis Dr’s and none were sure what the deal was and the fevers were puzzling. Anyway, not sure if your looking for LLMD in DC but I do know of some and can give you names of ones who I have had several friends/ group members go to. I have not been to one as i am receiving treatment on oral anti and also monthly ivig gamma globulin. You caught my attention when you mentioned the spots in the mough, just curious as I get that too when I am sick or flareup. Just curious what types of spots and don’t mean to pry but you sound like me. I get cancker sores on tongue and tonsils and obvioulsly viral and my tongue also gets swollen, painful or thrush type too. I was curious if this has to deal with lyme or another virus? I take so many meds or summplents when i get this but usaully have to ride it out for 10 days. I can tell you of some Dr’s I heard are good. I just can’t afford them if they still are private pay.

      • Debbie
        August 31, 2013 at 4:56 pm

        OMG I also get white spots in my mouth, have been treated for thrush twice and have what they call”river tongue”. My tongue hurts and becomes swollen so that the crease down the middle can’t be seen due to the swelling. It also appears as if my taste buds are irritated. Anyone else experiencing this? Thanks

        • missy
          October 24, 2013 at 12:28 pm

          A good natural remedy for thrush is a tsp of baking soda diluted in 8oz of water. Gargle it a couple times a day. It works better than antibiotics. I did it with both my daughters when they got thrush.

      • Ron
        February 18, 2015 at 9:25 pm

        Hi Kim, I am from Washington DC area. I would really appreciate if you can give me some names of good doctors that can help with Lyme. Do any of them accept insurance? How much does these treatments cost usually? Not sure how people can afford to pay from pocket for something requires long treatment and doesn’t really go away.

  30. Dana Tarkowska
    October 22, 2012 at 8:30 am

    Does anbody know any source of lyme disease experts for central Europe?

  31. Joey
    October 23, 2012 at 2:18 am

    I have had air hunger for the past 10 months. Well it started out as that and then developed into fibromyalgia symptoms (terrible fatigue and body aches). This is screwing up my life so bad. I need to be tested for lyme disease as I need to find out what is causing this. Im only 22 and this is really overwhelming as I have been healthy my whole life. Anyone know of a good doctor in colorado?

    • sandy
      June 17, 2013 at 1:23 pm

      Babesia infection. Google it; as well as Lyme Coinfection. Dr. Marty Ross is in Seattle. Not sure of a Co. lyme literate dr. but many websites will recommend lldr’s.
      You need antibiotics (hopefully you are on them now) plus lots of supplements. Dr. Burrascano and Buhner are both authors of numerous works on the subject too.
      Good luck!!

  32. October 28, 2012 at 9:53 am

    Hi there to all, the contents existing at this web
    page are in fact amazing for people knowledge, well, keep up
    the good work fellows.

  33. Christine Patrick
    February 9, 2013 at 12:35 pm

    I am looking for a Lyme Literate MD in Southern NJ. My zipcode is 08090. 20 minutes south of Philly.

    • Bernadette
      March 10, 2013 at 10:02 am

      Dr. Kristine Gedroic is the brilliant! She is in Morristown, NJ. PLease trust me, she is worth the monthly trip. You WILL get better w her!!

      • joy
        August 12, 2014 at 11:30 am

        I have heard mixed reviews about Gedroic. Mainly you will pay thousands of dolkars and may not get better.

        • C.C.
          August 30, 2014 at 2:18 pm

          You will pay thousands of dollars because, lyme treatment is often not covered by insurance. Without a positive CDC test result, your insurance will not pay usually. This has nothing to do with specific doctors or their quality of care.

  34. Sally Riggs
    February 10, 2013 at 3:23 pm

    Looking for LLMD in St. Louis mo. 63122 is my zip. Thank you!

  35. Hillary
    February 21, 2013 at 8:37 pm

    Hi! I am looking for an LLMD anywhere in the Midwest. I have co-infections as well and would like to find a dr. Willing to treat these as well. I will travel. If you have had a great experience wih your LLMD and the protocol could you please send any details my way?

    I have seen 2 LLMD’s thus far an the one I love may not be practicing in a few months.


  36. Lauren
    February 27, 2013 at 10:57 am

    Humera Malik, MD is a fabulous, highly regarded Lyme Literate MD (LLMD) who is also known for successfully treating fibromyalgia and chronic fatigue syndrome. She is an active ILADS member, who sees patients from all over (especially the Mid-Atlantic region), at Simplicity Urgent and Wellness Care in Arlington, VA (Northern Virginia suburb of DC).

    • Michael
      February 28, 2013 at 3:27 pm

      Dr. Malik is an exceptional DC Metro/Northern Virgina based LLMD, having been a patient of hers for the past few years. In fact, I have referred her to my extended family, close friends, and work colleagues for Lyme, fibromyalgia, CFS, and wellness. Their personal feedback has been nothing but positive about her. By the way, she used to practice in Reston and Fairfax, but is now in Arlington.

    • Louise
      September 12, 2013 at 5:41 pm

      I am a patient of Dr. Malik for Lyme and she is very good. It only took one week to get an appointment, unlike many of the other LLMD’s in the DC area, which can take months. She is in Arlington.

  37. Dolores
    April 8, 2013 at 12:23 pm

    I need a doctor versed in Lyme Disease diagnosis and treatment in the Memphis, TN/ North Mississippi area.

    • Kim
      May 26, 2013 at 6:57 pm

      If you find one in this area, please let me know — I am in the Memphis area. I just learned of one in Franklin, TN (south of Nashville).

      • joyce
        July 5, 2013 at 12:08 pm

        Who is the Franklin dr that treats lyme

      • Lex
        December 20, 2013 at 9:30 pm

        I’m interested to know about the dr in Franklin. Have you been to them? Any info would help! evacindustryATgmailDOTcom

  38. Teri
    April 10, 2013 at 6:20 pm

    I have been ill for 28 years and recently found out about and tested for Lymes. I need a Lyme Literate Doctor in the South Bend, Indiana area/ or Three Rivers, Michigan area or closeby.
    I appreciate any assistance or ideas/suggestions with this dagnosis/treatment.

    So tired of suffering and losing friends, Teri

    • liz
      August 5, 2013 at 10:46 pm

      Hi my name is Liz. I live in mishawaka and I am.Suffering terrible. Would love to talk to you. Have neuro symptoms and a positive Elisa test. Need dr who will treat me! We can share info and help each other! 574 302 0656

      • nick
        February 10, 2014 at 4:44 pm

        I also live in the same area as you. Was wondering if you found anyone locally to treat lyme. LLMD. I am currently seeing one in Grand rapids Mi, but would like to have one closer. My doc in GR has definitely helped. Just trying to stay close to home. I think I may have found one in Elkhart, but haven’t found any reviews or info on him. Thanks hope to hear back.

        • Julie Phillips
          May 11, 2015 at 11:19 am

          I am also in Elkhart and seeking a provider. Your post is over a year old. Have you had any progress in finding help?

        • Georgina
          July 6, 2016 at 10:02 pm

          Hi Nick.
          I know your posting is old, but I was hoping that maybe you will read this and be able to tell me the name of the LLMD you were seeing in Grand Rapids, MI. I live here and have been looking for one for awhile now. I hope you were able to finally find one closer to your home and that you are doing very well. Thank you.

  39. Anthony
    April 24, 2013 at 8:16 pm

    Hi, im looking for a Lyme Literate Dr. near Omaha, NE or Lincoln, NE. I developed pretty serious memory, cognitive and neurological issues out of the blue. 2 months before this started I was bit by a tick, though I never really mentioned this to Dr.s nor did I even pay attention for the rash. The area I was in seemed to be common for ticks and i’ve had several people mention getting tested. Though I have no idea where to start. Things seem to go into remission but the overall condition is getting worse and no Dr has had any real solution.

  40. Mason Kuhn
    April 28, 2013 at 8:33 pm

    Hi Danielle,

    Long time no talk. I hope you are well. Life is busy for me. I presented at ILADS last October and got accepted into a doctoral program in Ed. Psych. I plan to do another Lyme/Autism study.

    I was wondering if you could help me out. A family contacted me and is looking for a LLMD in New Jersey. Their son has regressive autism and they just found out he has Lyme.

    I know the midwest but am clueless about the North East. I know Jones would be the best but he is in CT.



    • Kiwi
      July 27, 2013 at 8:13 pm

      The Lyme Autism Foundation would have this answer. Go to their website or email them. Don’t reinvent the wheel. It is already there.

    • Logan
      April 4, 2016 at 1:38 pm

      Who would you recommend from the Midwest? I am in Minnesota and am looking for a LLMD since all the doctors I have seen only treat acute Lyme disease.


  41. Cathy
    May 9, 2013 at 2:33 pm

    I’m trying to find a lyme disease specialis near the Boca Raton, Florida area. I’ve had it for 25 years and now I’m having seizures. I can’t drive so please help. Thank you.

  42. Alice
    May 13, 2013 at 7:47 am

    Do you know of a LLMD in Hampton Roads area?Williamsburg?Richmond? Thanks

  43. Jeff Carlson
    May 20, 2013 at 12:33 pm

    We are desperate!! My son was diagnosed in early September with intermediate uveitis. At that point he was put on 80mg of prednisone. A few months later he started taking 3g of mycophenolate (cellcept). A few months ago they started weening him done off of the prednisone and somewhere around 15 to 5mg he started having troubles again. He started seeing floaters and the doctor put him right back up to 80mg of prednisone and he is starting to take cyclosporine. We are getting desperate to save his eye sight. To complicate matters in February he had a positive test come back for Lyme disease. None of his doctors are open to the fact that the Lymes may be what is causing his eye situation. What should we do? Time is running out. I want to know who the best lyme literate doctor there is period. I live in Waterloo, Iowa but am willing to go anywhere.

    • Jeff Carlson
      June 7, 2013 at 10:17 am

      Is anyone going to respond to this?

      • sandy
        June 17, 2013 at 1:31 pm

        My daughter(17 now) dx at 4 with uveitis and JRA. How old is your son? We’ve tried it all and finally she’s had cataracts out of both eyes.Finally made the connection and did IGENEX test for Lyme and she had 2 bands pos and 2 band indeterminate which to a Lyme literate Dr she has lyme. So we go now to a naturopath and she is taking 2 herbal antibiotics plus many supplements and is doing ok. This program only 2 mo. old but determined to get to the bottom of it. I think this is cause of her iritis. Your son tested positive so you MUST keep looking till you find someone willing to treat him properly. A Naturopath may be a good start, the herbals Cats Claw and Banderol have been proven spirochete killers (Sapi paper) and you can buy them online from Naturemedix. Write back if you want more info. Good luck!!

      • sandy
        June 17, 2013 at 1:39 pm

        I also forgot to mention an herb specific for ocular lyme related problems: Stephania Tetranda, which you can get from Green Dragon botanicals in Vermont online. Drops that you add to water. Not much taste, you need 90 drops a day but you work up to that. Use it under a Dr.s care of course. I wish I had known about it years ago for my daughter!

      • June 23, 2013 at 8:02 pm

        Hey Jeff. I have lyme’s too, and it’s no joke. Please call Dr. Helen Odland in St. Paul. She also has an office in MPLS. The last time I called she was no longer taking new patients, because they’re currently swamped. She works with children allot, so you may have a better chance of getting in. Also ask her if she has referals to other lyme Dr.’s as there are allot of people getting this.

      • Melanie Allen
        August 29, 2013 at 2:20 pm

        Try Dr. Richard I. Horowitz at the Hudson Valley Healing Arts Center in NY. He may be able to help. Or try Dr. Bernard Raxlen in NYC. Don’t give up!

      • Samantha
        February 24, 2016 at 2:16 pm

        Just saw this thred. Depending on how old your son is, you might want to consider Dr. Elena Frid if he is over 18+, or Dr. Ray John’s from CT if he is under 18. Two of the best Lyme specialists in the country.

        I hope this helps!


    • Abe
      October 2, 2013 at 7:15 pm

      I am wondering how is ur son doing?
      Were u able to find a doctor and where and who?
      What did u do to save his eye sight?
      I am also desperate .. Please help me

    • Abe
      October 2, 2013 at 7:17 pm

      I am wondering how is ur son doing?
      Were u able to find a doctor and where and who?
      What did u do to save his eye sight?
      I am also desperate .. Please help me

    • Judy
      March 4, 2014 at 8:43 pm

      I’m really sorry about what you are going through and also your poor son. Read the blogs mentioned above to find a Lyme Literate Doctor or get him into the Infectious Disease Dept. of a good hospital immediately and onto anti-biotics. Any kind of steroids i.e. prednisone are really bad for people with Lyme as they stop your immune system from doing its job and the Lyme come out of their hiding spots and multiply and attack inside your body at random; causing MORE issues. Scream out loud to doctors that you want your son treated with anti-biotics NOW! GET HIM IN TO INFECTIOUS DISEASE AND SCREAM AT THEM WHILE YOU WAIT FOR THE BLOOD TEST RESULTS. THREATEN LITIGATION! IT’S THE ONLY THING THAT WILL OPEN THEIR EARS!

  44. sex cam chatting
    May 24, 2013 at 3:11 pm

    excellent put up, very informative. I wonder why the opposite specialists of this sector do not realize this.
    You must continue your writing. I am confident, you have a great readers’ base already!

  45. May 30, 2013 at 10:32 am

    I have been dealing with all aspects of co-infected tick illness for eight years now. MN is completely clueless and indifferent to my case, Mayo clinic even told me I had no lyme, until I traveled to dr. Waisbren in Milwaukee, not only confirmed co-infect, but wrote up a treatment of introveneous antibiotics, which I brought back to MN, where no docs would administer the treatment for three years I shopped for a doc. finally,got the treatment, herxed and did 1year of oral doxy, flagyl; ketec. It worked for awhile, but now I’m left with new and more varied symptoms…major fatigue, cold sweats.chric diarrhea,blurred vision, loss of brain functions,neurological prblems. Als, terrible skin eating ulcers, possibly Morgellans disease. I’m losing my positive attitude, due to politics and a path to leading a more normal life. It’s hard to believe how closed the medical community in north MN is to any claims of chrnic lyme and am especially hurt by the 10 day treatment of doxy when 1st diagnosed. 100 mg a day in the beginning, should have been treated for 45 days and I wouldn’t be in this hell. HELP ME1

    • Tammy
      June 17, 2014 at 3:07 pm

      Dale – I read your post and I am sorry to hear about your condition. I am writing in hopes you will share your experience and help my daughter. I live in St. Paul. My 10-year girl got a EM Rash (bull-eyes) went to the Children’s they got her a 14-day Doxy. I read all over the internet and hear that is not long enough. No luck finding a LLMD yet. Went to see our pediatrian she gave another 14 day of Doxy. You were saying in your post you wish you had a longer period of Abx (45 days). Can you shed some light on that? Have you found a doctor you would recommend? We think we caught it early (well never sure this was her FIRST bite) and from what I’ve read so far, early detection/treatment we have a good chance hopefully eradicate the Bb before it takes hold. Time seems to be of essense to us to get the ‘right’ treatment. Can you help us? A concerned mom.

  46. June 4, 2013 at 5:32 am

    Hi, I do believe this is an excellent site. I stumbledupon it 😉 I may come back once again since
    i have saved as a favorite it. Money and freedom is the greatest way to change,
    may you be rich and continue to help others.

  47. Melanie
    June 22, 2013 at 1:07 pm

    Desperately looking for a LLMD in St Louis, MO area. Can anyone help me?

  48. Scott Schaffer
    July 1, 2013 at 10:35 am

    Desperately need to find llmd in stl mo area.
    Very very sick. Have been bit three times in past year but no symptoms until after third bite.

  49. Lorraine Berger
    July 14, 2013 at 4:39 pm

    Can anyone please recommend a LLMD in and around Northern Western Massachusetts? many thanks

    • Lynne
      July 29, 2013 at 9:55 pm

      Lorraine Berger did you get any replies to your search for LLMD’s near Northern Western MA? I am in the Western Ma area looking for the same.

  50. Jared D.
    July 23, 2013 at 3:19 pm

    Hello All, this is a wonderful site!

    Besides Dr. Waisbren in Milwaukee, does anybody have a list of physicians in the Wisconsin/Illinois area? I’m helping my girlfriend through her late-stage Lyme. Thanks!

    • Deedee
      January 24, 2016 at 9:58 pm

      Did you find a Dr in the Milwaukee or Chicago area ? I’m in need.

      • Missy
        May 4, 2017 at 2:53 am

        Did you ever find a doctor in Illinois? I am looking for one in northern Illinois or maybe southern Wisconsin.

  51. Carolyn
    July 25, 2013 at 10:37 pm

    Looking for a Lyme disease specialist in Or close to Charleston, West Virginia.

  52. Virginia
    July 28, 2013 at 9:35 pm

    I need help finding a Lyme-literate medical professional in the East Bay (San Francisco, California area). Could anyone help?

  53. Sandy
    August 2, 2013 at 12:41 am

    Looking for a lyme disease specialist in Colorado. Have tried all the medical recommendations with no
    relief. Thanks for any referrals.

  54. sarah
    August 12, 2013 at 10:06 pm

    I have been sick on and off since a tick bite in November. I have had a chronic pericardial effusion since March and just tested positive for IGM band 23 on western blot. My joints hurt on and off and I have never been so tired. I am an athlete and now one workout crushes me. I need a good LYme doc in southern MD or WAshington dc that takes insurance.

  55. Nikki
    August 13, 2013 at 8:33 pm

    Looking for a lyme’s specialist in Maine for my husband please any info would be helpful.

    • Albert Lymeman
      August 28, 2013 at 9:38 pm


      There is a Dr. Mulcahy in Kenebunk Maine that one of my contacts is seeing. I personally don’t know anything about him, but was told he knows the coinfections. treats the whole patient, and uses both standard testing and clinical evaluation for diagnosis, and a combination of standard meds plus holistic herbs for treatment.

      Good luck,

  56. Dar Tiffany
    August 14, 2013 at 7:27 pm

    I am currently living in Las Vegas Nv. I moved here about 9 months ago and brought my chronic Lyme disease with e. I am looking for a Lyme Doctor here. Please help.

  57. Barb Van Wie
    August 21, 2013 at 7:51 pm

    I have a niece that is very sick with lyme disease – any lyme md in MN metro area that one would suggest

    • Vicki E
      September 27, 2013 at 8:27 am

      Barb Van Wie, if you find a doctor in mn please let me know!

      • Brigid
        November 27, 2013 at 1:17 am

        I have a doc I see in Mn who works with a doc in Mpls. Their protocol is wonderful and address chronic Lyme. I want to protect my doc. How do I get info to everyone? I am only one month into treatment. He is awesome!

        • Valerie
          December 1, 2013 at 11:09 am

          Brigid, could you email me the name of the doctor in MN? Val at meadowmuffinfarms dot com Funny, but my husband was treated with Doxy twice a day for 21 days-42 capsules. My 60 pound dog was just treated, got 120 capsules! What’s wrong with this picture?

        • Angela
          July 19, 2014 at 9:14 am


          How is your treatment going? Would you still recommend your LLMD in MN? If so, could you please email me at “starspangeled AT”. I do have an MD who has been great – prescribed 2 weeks of doxy at the outset (I did bring the tick with me, so it was pretty obvious that I was at risk), when that didn’t work she did another 2 weeks. When that didn’t work, she did a set of four antibiotics shots (ouch!), and did another 30 days of doxy. I am one week away from being at the end of the doxy and still having symptoms. She says the next step is referring me to Internal Medicine, but she doesn’t know if we can find one that will continue to treat it aggressively. Any suggestions?

          Thank you!

        • Joni Larson
          April 29, 2015 at 9:46 pm

          My daughter is 38 with chronic lyme disease. Could you please email me your doctor? Desperate! North Minneapolis area – email is

        • Paula
          April 26, 2017 at 10:02 am

          Brigid-Could you please send me the name of your doctor in Mpls. I have been off treatment for a few years, and must begin again, and would prefer a local doctor. Thank you and hope you are doing well.

  58. Mary Lisa Johnson
    August 27, 2013 at 4:32 pm

    I’m looking for a LLMD in Virginia Beach, VA 23454. Thank You! Have bullseye rash. HELP!

    • Jasyn
      January 31, 2014 at 8:00 pm

      I know this post is old, but did you ever have any luck finding an LLMD? You’re in the same zip as me.

      • Dani
        July 31, 2014 at 10:00 pm

        Hi Jasyn,

        I live in Va Beach too. Have you had any luck finding a LLMD??

  59. August 27, 2013 at 5:27 pm

    What’s up to every one, it’s truly a pleasant for
    me to go to see this web page, it consists of useful Information.

  60. Mary
    August 30, 2013 at 7:20 am

    I was told yesterday I tested postive for Lyme can you please tell me if there is a LLMD in Vermont. I want to start treatment with the right doctor as this is nothing to play around with. Thank you

  61. Linda
    September 9, 2013 at 8:25 pm

    I am looking for a LLMD in Florida as close to Dunedin Florida as I can get but I will go as far asm I have to for treatment.

  62. September 10, 2013 at 9:33 am

    I am being treated in Raleigh NC for Lyme disease by a lyme specialist. I am not pleased with his employees, their lack of business experience. I’m looking for another dr. please help.

    • John
      September 17, 2013 at 4:51 pm

      Hi Joyce,

      My wife is also not pleased with her doctor’s office staff, and frankly the Dr. We had high hopes but are now looking again. Is your doctor in the Blue Ridge Road/Lake Boone Trail area by any chance?

      I seem to remember another doctor or practitioner in the Chapel Hill area. We are having trouble finding her but will post back when we find some more info.

      Take care,

    • Cathy Harrison
      September 19, 2013 at 5:07 pm

      Please tell me what Dr. You saw?

      • Danielle
        September 24, 2013 at 9:46 am

        Dr. Steven Phillips

      • John
        September 24, 2013 at 11:43 am

        Cathy, she was seeing Dr. Pittman. We are still not able to locate the LLMD in Chapel Hill that we remember seeing in the past. Do you or anybody know any other LLMDs in the Raleigh-Durham-Chapel Hill area?

        • Jean
          October 6, 2013 at 11:36 pm

          John/All – You are likely referring to Jenny Franczak, MD in Chapel Hill, NC

          • John W
            November 6, 2013 at 3:15 pm

            Thank you Jean! That’s her. 🙂

    • Sharon
      October 7, 2013 at 10:05 am

      If it’s who I think he is, he and his employees suck (starts with a P?). You might consider Dr. Beverly Goode.

  63. Jerry
    September 16, 2013 at 7:24 am


    Anyone know of any good LLMD’s in Los Angeles, CA? I have been suffering from an ever increasing list of symptoms associated with LYME, and it’s not getting any better… Traditional doctors following canon can’t seem to help me, nor appear to have the desire to dig any deeper.

    Thanks in advance.

    – Jerry

  64. Terry
    September 22, 2013 at 9:27 am

    Lyme sick for 5 years. My regular physician at the end of his ideas for antibiotic combinations which no longer work. Need a LLMD near South Central PA or PA/MD line. I cannot drive to Arlington to see the good doc there. No family support to help either. Can someone please help me find a LLMD near zip 17340? Please. I am incredibly weak, horrible flu symptoms, sleeping 12 hours + per day.

    • Becca
      May 1, 2017 at 12:32 pm

      Hi Terry
      Did you ever find a Dr for Lymes in Central Pennsylvania?

      Thank You

    • Harry
      May 4, 2017 at 9:42 am

      Who is the doctor in Arlington? Thank you

  65. Rachel H
    September 22, 2013 at 4:42 pm


    I saw a post earlier about someone getting treatment in Chapel Hill. I live in Wilmington, NC and every dr. I have seen blows off my two positive Lyme tests just because i never had a rash. I have all the symptoms, all other labs are negative and they are still hesitant…I need someone who is compassionate and understanding. PLEASE help!!! I will drive too.

    Thank you

    • Erica c
      November 13, 2016 at 8:24 pm

      Hi did you ever find a dr in Wilmington? I’m also looking for somewhere within driving distance.

  66. Vicki E
    September 27, 2013 at 8:25 am

    Need to find a LLD for a family member in central Minnesota or twin cities. Thank you!!

    • Kay
      January 10, 2014 at 1:40 pm

      Here are the names of the four medical doctors (given to me by Dr. Radovsky) who treat Lyme in the Twin Cities using the ILADS ( protocol. Not all take insurance. If they are not taking new patients ask them to have the doctor call you and refer you.
      Laurie Radovsky, MD

      Dayna Wolfe, MD

      Helen Odland, MD

      Chris Foley, MD
      There are 2 MD’s by this name (I looked them up). You would have to call them to see which one is treating Lyme.

      Rebecca Keith – nurse practitioner mentioned by my chiropractor
      14880 County Highway M Cable, WI 54821
      (715) 798-3557

      You can also call: Elizabeth L Maloney, MD. She no longer treats patients but is willing to talk to you about Lyme and give you the names of ILADS trained MD’s.
      PO Box 84
      Wyoming, MN 55092
      651-335-0569 phone

  67. Dina
    October 3, 2013 at 1:45 pm

    Anyone knows of a good Lyme siecialist close to Indianapolis , Indiana please ..
    Help I am going crazy ..

  68. Jean
    October 6, 2013 at 11:43 pm

    As a note of encouragement to all(having contended two acute journeys in neuroborreliosis/Lyme) over the past couple decades …. remember, for any of those condescending physicians, “They don’t get it until THEY get it!” .. so truly, stay focused on your recovery and don’t waste efforts on letting them ruffle your feathers to the point of further sickening you. Laser-like-precision, stay focused…as you walk across that tight-rope climb. Don’t look down, down look back – eyes straight forward. Those condescending docs are down at your sides, don’t waste time looking down at them, back at them… sometimes a blur of life is purposeful, because you won’t remember every single arduous attempt to winning back your health. Yes, it’s a long way back.. and we continue to work it, but little by little.. you will be amazed. Those discouraging “others” are not worth your heartache or YOUR future. Stay focused on the LLMD as ur lifecoach at this time and “there will be life” outside of this, some tough days but some very good days. They can’t take away our dignity!

    • amelia
      January 19, 2015 at 3:04 pm

      Jean your words of encouragement found today by me where well worth the sifting around on the internet…I have neurolyme 6 months out and so very discouraged working with a non LLMD. As all here, gone through multiple nay saying docs just downright ignorant on hubris. You are dead on with recommending laser like focus and wasting precious energy on negative emotions instigated by them. WE do still have control of our will. Your words I am copying and keeping in my journal. Hope you as well are having better days with this fight! Appreciate all the posting and kindness extended here. Wishing all strength.

  69. Laurie
    October 14, 2013 at 5:05 pm

    I am looking for an LLMD in Massachusetts. Can anyone help?

  70. Susanne Lee
    October 21, 2013 at 10:20 am

    My husband has been suffering with Lymes for 2 years and we would love to see a doctor who’s specializes in this area. We live in North Dakota but can travel. Any information regarding a doctor in our area would be very much appreicated! Thank you for your time!

    • Brigid
      November 27, 2013 at 1:23 am

      I can help you. I am just south of Fargo and I see a doc in Mn. I am one month into treatment and have had Lyme disease for 28 years. Please contact me. I want to help you. I know how devastating this can be. I will contact you as soon as I see your email. God bless.

  71. missy
    October 24, 2013 at 12:41 pm

    The only lab I know of that specializes in testing of lyme and all the co infections if iogenex in Cali. The number is 800-832-3200. It cost $475. for the lyme test only and $780.+ for Lyme and co infections tests. They are the most accurate lyme lab I know of. They don’t take insurance but you can submit the bill to your insurance yourself and see what happens. Hope this helps someone. I know a LLMD in Carlisle Pa, Myerstown, Pa, N. Va and Rockville Md, if anyone needs them send me a reply. None of them take my insurance so I’m stuck with out a dr. But maybe someone else can use them. Let me know.

    • JUDY
      March 4, 2014 at 8:56 pm

      MEDICARE covered testing for Lyme and its co-infections that were sent to Igenx. FIGHT your insurance companies! They EXPECT you to give up when they turn you down. Be the biggest pest they’ve ever met; go up the chain of command. Write letters to them. DON’T GIVE UP!!! I once had corrective jaw surgery and the doc told me the insurance company probably wouldn’t cover where they had to cut the bone from my chin (I had to have my jaw brought forward after years of braces and would have had a protruding chin). I told the doc to “send it in anyways, you’ll probably get some idiot” (drones that sit in cubicles hating their jobs). Well, I must’ve got the biggest idiot of them all because not only did the doctor and the hospital get paid, I received a $5,000.00 check which paid me for the entire procedure including hospital costs!!. Kept it for 5 months and cashed it with a big new smile on my face. My motto: “Nothing ventured; nothing gained”

    • eleanore echevarria
      May 10, 2014 at 1:51 pm

      Dear Missy,

      My son has Lyme and I am looking for a good LLMD in our area. If you could provide the doctors you know about in Carlisle PA and Myerstown PA I would really appreciate it. I will have to look into how to pay for the treatment, but it is for my son and I have to try to figure out something. P.S. I hope that you have found someone who will help you, and are starting to get better. Good Luck!

    • Ruth
      July 24, 2014 at 4:27 pm


      Would you please send me the names of the LLMD doctors you know of in Carlisle, PA and Meyerstown, PA.


    • tc
      June 16, 2015 at 11:01 am

      Who is the doctor on Carslyle pa .I live in williamsport area I’m desperate. My daughter is so sick.

      • patti
        November 2, 2015 at 8:21 am

        I see an llmd in Meshoppen PA. Very pleaeed with him. Dr Clarence Mast Jr. It took me 2 months to get an appointment and you should plan on the visit taking at least 3 hrs,, due to the waiting time. He is very busy. Good luck

    • Joan Beauch
      January 28, 2016 at 12:06 pm

      Trying to locate Lyme Specialist for my sister…between Richmond,VA & Washington, DC. Any help would be appreciated. Thank you.

    • Rose Kuhn
      May 1, 2016 at 1:37 pm

      Hi Missy

      I sure could use the names/numbers for your PA and MD LLMD doctors. I would also like to share that my cousin and her little girl, both lyme positive, are claiming great success through a Naturopath in their area. We are going to try there next but I would like the names you have just in case.

      Thank you,

    • Becca
      May 1, 2017 at 12:34 pm

      Please send me the names of the Doctors in PA

      At this point life is more important.
      Thank You so much

  72. November 25, 2013 at 8:06 am

    I merely including the precious details you offer on your articles or blog posts. I’ll take a note of your site plus analyze yet again below usually. I am rather i will be taught a good amount of brand-new material in this article! All the best for one more!

  73. Lisa
    December 1, 2013 at 12:12 pm

    I recently tested positive for Lyme with both ELISA and the Western Blot. I live in AZ but have traveled all over the US. I used to hike and backpack a lot but in recent years can hardly walk. I have seen various MDs for many years but only recently was I tested for Lyme. I was referred to a rhumatologist, who put me one one course of Doxy. I initially felt better, mainly the soles of my feet, which have been extremely sore for years, felt better; however I am now on round 2 of Doxy and feel worse. I have a variety of symptoms. I live in Tucson but would travel anywhere in Arizona for a LLMD. Any suggestions? Also my rhumatologist does not believe in “chronic Lyme” so I barely got month 2 of antibiotics. Any help/advice/recommendations are appreciated. Thank you.

    • sheila
      June 22, 2014 at 2:07 am

      Both my mom 83years old and I got Lyme from my sisters dog tucson. Got my doxy in mexico. My mom is so sick in Montana. I live in las Vegas. Desperate for Lyme literate doctor. Have you found one? Any help wud be appreciated.

  74. Mary E Schettler
    December 15, 2013 at 11:16 pm

    I was just diagnosed with Lyme disease after being sick for almost 7 years. They did all the conventional testing but it always turned up negative. I am seeing Infectious Disease and my primary this week. What should my first priorities treatment wise be?

  75. Garf
    March 4, 2014 at 1:47 pm

    My husband has symptoms of chronic lyme disease. He has been in misery for years. Please help me find doctors in the Minnesota area.

    • Joni Larson
      April 29, 2015 at 9:56 pm

      Were you able to get any help? My 38 year old daughter has chronic lyme and is need of help.

  76. Dan
    March 5, 2014 at 1:28 am

    I am not sure what symptoms of Lyme’s Disease is. I have been treated three time with antibiotics and the the disease are still present./ I have numbness, pain in muscles and joints, tendonitis and weakness, No nausea or fuzziness, just a feeling of not being right. Help. I just want to get rid of the infection and take if from there.

  77. Norma Skjold
    March 14, 2014 at 5:06 pm

    Have had haphazardly treated lyme for years & now it’s diagnosef as MS. sure am looking for a lyme literate doctor in NE or SD. Or KS or IA!

    • Mary Thomas
      November 4, 2015 at 6:03 pm

      Did you ever find a lyme literate doctor in KS? I need one.

  78. March 15, 2014 at 5:51 am

    First of all I would like to say superb blog! I had a quick question which I’d like to ask if you don’t mind.
    I was interested to know how you center yourself
    and clear your mind before writing. I have had difficulty clearing my thoughts
    in getting my thoughts out. I do take pleasure in writing however
    it just seems like the first 10 to 15 minutes are usually wasted just trying to figure
    out how to begin. Any ideas or tips? Appreciate it!

  79. Kristen Young
    March 26, 2014 at 5:51 pm

    I see Dr. Humera Malik, in Arlington, VA, who was referred to me by a close friend, also a Lyme patient. Frankly, I have been really impressed with Dr. Malik’s down to earth persona, her vast knowledge of Lyme disease, and her holistic treatment focus, which all put me at ease. Dr. Malik is a professional member of the International Lyme and Associated Diseases Society (ILADS). She does not believe in a overly aggressive anti-biotic approach, unlike some other LLMDs, and evaluates each patient, on a case-by-case basis, for a customized treatment protocol. I feel so much better today, all due to Dr. Malik, that I will highly recommend her to anyone, local or outside the DC metro area, to make the time and effort to go see her if they really want to get better.

    • Mindee Laumann
      July 7, 2014 at 12:07 pm

      Hi. My name is Mindee and I found your post looking at Lyme sites. I’ve seen Dr. Malik once to talk to her about the possibility of having lyme. Would you mind talking to me about your experience with her?
      Mindee (

      • Kristen Young
        September 8, 2014 at 3:42 pm


        Sorry for the late response, but my experience has been nothing but uplifting with Dr. Malik. As I mentioned previously, she is not as aggressive (especially with Lyme meds) as some of her LLMD colleagues are, which is my personal preference. She is also a genuine patient advocate in the sense that she informs and educates her patients before-hand, so that everyone is on the same page during treatment. I also really like that she keeps an open mind about alternative and non-traditional therapies to compliment western medicine treatment protocols. Lastly, she is honest, personable, and sincere. If she cannot figure out what is wrong with you, she will send you to someone who will.


  80. Mark Stokesbury
    April 23, 2014 at 6:10 pm

    Can anyone recommend a LLMD in the Denver, CO. metro area?

  81. deb
    April 29, 2014 at 1:42 pm

    Hi Can anyone recommend a good Lyme Literate Doctor in CT?

  82. SB
    May 2, 2014 at 8:52 am

    Any ideas for treatment in and around Ohio? We are willing to travel. My mom has been treated with antibiotics but is in an enormous amount of pain. She needs help.

  83. MK
    May 20, 2014 at 9:42 am

    Hi. I am suffering with Lyme and many co-infections alongside both of my children 9 and 11. Does anyone know of a LLMD near the Grosse Pointe, MI area? We are willing to travel, as well. We currently are seeing a Lyme doctor, but the office staff is not professional, rush our appts we wait months for, do not listen to concerns or return calls. Plus, we are not seeing any improvement. It is breaking my heart watching my little loves get weaker every day. Any help is appreciated!!!! Thank you.

  84. May 30, 2014 at 8:07 am

    There’s simply one motivating factor for cyber crime, and that’s financial gain. Kenneth Flury was charged with bank
    fraud and conspiracy. A no contact order expires when a case is dismissed; a person is found not guilty or after any sentence expires.

  85. Tammy
    June 17, 2014 at 3:31 pm

    My 10-yr old daughter developed a bulls eye (EM) Rash one week after we pulled a deer tick off her. We went to ER Sat. 6/15/14 got a 14 day Doxy prescription for which she started on. 2 days later we saw her primary dr and her dr confirmed our daughter has Lyme.

    Our daughter is otherwise healthy up to this point.

    Her primary dr gave another 14 days of Doxy. I am reading from the internet we need longer period of Abx? To fight it off while it’s early… Others are saying no, not only would it hurt her gut flora w/prolonged use but Doxy is thought (by some) to be related to causing Lyme spirochetes into cysts.

    I’m so confused…

    We are looking to see a LLMD in our area, but long wait for new patient appointments.

    What to do? Day 2 in diagnosis.


    Concerted Mom 6/17/2014

  86. Jess
    June 19, 2014 at 3:16 pm

    Thanks to all of you folks who put me in touch (and in the medical care) of Dr. Humera Malik in Arlington, VA. She is one amazing, knowledgeable, and personable LLMD. Despite having suffered with chronic Lyme for so long, I now feel so much better after being in her medical care. I highly recommend Dr. Malik to those of you who have not had much success with your current health care providers. Be well!

  87. Positive for bartonella
    June 25, 2014 at 4:02 pm

    Can someone recommend a couple of good Lyme literate MD’s in the Buffalo NY area?

    We live in the Toronto area and our naturopath said we need to go to the US to be able to get started with antibiotics to fight off “bartonella” as part of a combination antibiotics and natural treatment program.

    Thanks in advance. Would like to make an appointment immediately.

  88. July 8, 2014 at 10:26 pm

    A property may also need to be appraised if it is a subject of litigation, such as in Probate or Divorce Court.

    If you have many clients come to your company,
    you should make sure whether there is enough parking. Compare the
    amounts that the agents tell you with the existing real estate price and consider the comparison as one of
    the parameters to choose particular agent in the end.

  89. Jay
    July 30, 2014 at 4:53 pm

    FAQ: How do I find a reputable LLMD in my area?

    Answer: ILADS LLMD referral service

  90. Alison
    July 31, 2014 at 8:54 pm

    I am looking for a LLMD in the Philadelphia area. Can anyone help?

    • August 21, 2014 at 2:41 pm

      check out this website

  91. August 4, 2014 at 4:21 pm

    I am a 28 year old single mother of a 3 & 2 year old, I was recently diagnosed with lymes and have had a really hard time feeling half normal ever.
    I have given up on any infectious disease dr neurologist or my primary care physician, I’m tired and have no idea how to deal with any of this any more because not one dr has told me anything but, you have lymes disease but you took the antibiotic so you should be fine, I’m lost and have no idea if writing this will accomplish anything other then letting you know I’m stressed out, I can’t take a deep breath, my feet and hands lock up a lot, and the pain in my head is unbareable at times ….. If anyone had ANY suggestions please let me know

    • August 4, 2014 at 4:23 pm


  92. August 8, 2014 at 12:36 pm

    Hey! I know this is somewhat offf topiuc but I was wondering which bog platform are you using for this
    website? I’m getting tired of WordPress because I’ve had problems with hacdkers and I’m looking at options for another platform.
    I would be fantastic if you could point me in the direction of a good platform.

  93. August 13, 2014 at 6:04 am

    hey there and thank you for your info – I have certainly picked up something new from right
    here. I did however expertise some technical points
    ussing this web site, as I eperienced to reload the site
    lots of times previous to I could get it to load
    properly. I hadd been wodering if your webb hosting is OK?

    Not that I’m complaining, but sluggish loading instances timess will oftn affect
    your placement in google and can damage your high quality score if advertising aand marketing
    with Adwords. Well I am adding this RSS to my e-mail and can look out for a lot more of your respective interesting content.
    Ensure that you update this again soon.

  94. August 13, 2014 at 6:13 am

    I love yoir blog.. very nice colors & theme. Did you
    make this website yourself or did you hire someone to do
    it ffor you? Plz respond as I’m looking to construct my own blog and would like to knopw wwhere u got thiks from.
    thank you

  95. Smeggy
    August 25, 2014 at 5:52 pm

    I know it has aready been asked already, but i don’t see many answers for a good Lyme Specialist in the Southern N.J./Philly area. (i live in Cherry Hill, NJ 08003) Can anyone help me find a doc in this area?

  96. abby
    September 2, 2014 at 3:07 pm

    please any good LLMD close to Johnston, PA 15905 or Pittsburgh, PA..
    please I am desaperate for help

  97. Harry Grace
    October 1, 2014 at 8:02 pm

    I am Harry Grace from New york, USA I can’t stop thanking DR Worrior Africa for this Great thing that he has done in my life, I am so grateful to him, i was suffering from HIV virus for 11years, when i contacted DR Worrior Africa after reading the wonderful testimony that people has been sharing about him.
    I have being on medication and trying looking for cure to my ailment. I went through internet doctors and i contacted a Tradomedical/Traditional doctor named, Dr. Worrior Africa for help. He give me all his rules and regulations,that if he cured me that I should write about him on internet site and that is what I’m doing now. He assure me that he will cure me with his herbal medicine which he really did, and I’m now completely cured from HIV virus. What will i say rather than thanking him for saving me. Why suffering in silence when there is remedy to your diseases.Dr.Worrior Africa also specialize in curing the following disease:
    *Kidney failure
    *Eye Problem
    *Skin Problem
    *Fibroid Tumor
    *Prostate Problem
    *Weight Management
    *Low sperm can
    *Weak erection
    *Weak ejaculation
    *Skin Infection
    *Paralysis e.t.c
    For more information contact Dr.Worrior Africa via email:(

  98. Pretzel crisps
    October 13, 2014 at 9:40 pm
    The medical team there is outstanding.
    If you are out of town that’s ok you can commute, as many do.
    Clearwater, Florida.
    They have an MD and they do integrative medicine.
    If there’s Lyme, they’ll find it. If there’s a co infection, they will find it.

  99. JP
    January 7, 2015 at 12:43 pm

    LLMD serving SC and NC. Check out

  100. Jennifer
    January 7, 2015 at 4:49 pm

    After reading all of the positive reviews on this web site, I finally made an appointment to see Dr. Malik. Her down to earth personality and superb people skills, coupled with her superior knowledge of chronic disease and her holistic treatment approach, won me over. My health has now been restored to what it used to be, and I am forever grateful to Dr. Malik for returning my quality of life. I highly recommend her to anyone from or outside the DC metro area.

  101. Pamela Kidd
    January 16, 2015 at 11:44 am

    I am trying REALLY HARD to find a doctor in Florida. I can only go to Florida, because I cannot afford an out of network doctor. I have already met my out of pocket benefits for all in network doctors, so all appointments and everything is free. I am VERY SICK with Lyme. I have had a positive IGG and IGM Western Blot from IGeneX. Almost every band on both tests were positive. I was basically given 2 months antibiotics and told I was cured of Lyme. I also have coinfections and parasites that have not been treated, and positive with blood tests. I really need a VERY GOOD LLMD to go to, and I cannot seem to find any in FLORIDA. Does anyone know of one?? Thank you so very much.

    • Janda
      January 19, 2015 at 3:43 pm

      Pamela, Lyme Literate in the South is VERY hard to come by as I live in Atlanta beginning my third month of treatment from physician here taking on the established medical framework.Finding insurance coverage for Lyme the second tier of problems for us which is why I am remaining in Atlanta. You are correct 2 months doxy not adequate!!! Time is of the essence. There is a group in Gainesville, Dr’s Kay (husband and wife) who treat but please call to find out their regimen and whose protocol (Horowitz or Burrascano leaders in Lyme east coast)they utilize. As well, please contact for Lyme Literate names for your state. Best to you.

      • Li Cha
        April 19, 2016 at 1:50 am

        Janda, my son who is 23 y.o. Has been presenting symptoms of
        Lyme disease for the past year. He lives in the Atlanta area and was wondering if you can recommend a good doctor that can help him thru this process. Thanks for any help you can give us.

    • janie
      April 23, 2016 at 5:52 pm

      any lyme specialist in Duluth mn area?

  102. Kianna Morgan
    February 12, 2015 at 1:26 pm

    Dr. Horowitz at the Hudson Valley Healing Arts Center in Hyde Park New York is a phenomenal doctor. He saved my life.

  103. Lori
    February 19, 2015 at 4:01 pm

    Dr. Humera Malik, in Arlington, VA, saved my life. Period. I never had to see another specialist ever again, after being referred to Dr. Malik by my last MD. She is highly regarded, not only by her chronic patients, like me, but her professional medical peers as well. Bravo!

  104. Renee
    February 20, 2015 at 12:20 am

    I live in chicago and was just diagnosed with chronic Lyme. Think I’ve had it for at least a year. I have been feeling sick and have gone to so many drs. No one could figure it out. Finally I went to a md who also does holistic and functional medicine. I need to start treatment and want a dr in. Chicago that deals with Lyme and is very knowledgable. Please help if you know someone.

    • Bea
      June 16, 2015 at 2:51 pm

      Did you ever find an LLMD? My daughter was diagnosed a month ago but has had for a couple of years. We are in Central Indiana, but willing to travel for a good LLMD.

      • Becky
        August 11, 2015 at 12:31 pm


        I also am looking for a lyme literate doctor in or near Indiana. Did you have any luck finding one. I have a daughter who is very sick and tested positive by IgenX.

    • Marcia Myers
      July 1, 2015 at 3:04 pm

      Renee, my daughter was recently diagnosed with lyme and she lives in Chicago. Do you have any referrals from your post that is dates 2/20/2015? I appreciate any help. Thanks.

  105. Cari
    March 24, 2015 at 2:47 pm

    HELP. ANY LLMD dr.’s in Houston TX?

    • Brad
      May 20, 2015 at 9:03 am

      Hi Cari. I am suffering from these symptoms and am located in the Houston area as well. I was wondering if you had received any information related to LLMDs in our area? Thank you in advance for any help you can provide!

  106. Renee101
    March 25, 2015 at 6:33 pm

    Hello, Ive been sick for the past two months anyone know any Doctors in the Hampton Roads area that treat Lyme disease?

  107. larissa
    April 4, 2015 at 9:15 am

    after treatment lyme,i have alergy,my body horrible,burning,more problem.what doctor now need?from MI

  108. Jennifer
    May 2, 2015 at 6:28 pm

    Looking for a LLMD in the Louisville, Ky or Indianapolis, In area. Please help.

    • Bea
      June 16, 2015 at 2:53 pm

      Did you find an LLMD? My daughter was diagnosed a month ago and probably has had for a couple of years. We are in Central Indiana. I have a few names of some LLMD’s in the Indianapolis area but they are booked until February.

      • theophile
        November 17, 2015 at 6:06 am


        I am in Bloomington, Indiana. Would love the names of the LLMD’s you got that are booked. I don’t have anybody. It would at least be a place to start.

  109. Tari
    May 12, 2015 at 5:28 pm

    Is there a recommended Lyme literate doc in the Nashville, TN area? Or Bowling Green, KY area?

  110. David
    May 20, 2015 at 1:13 pm

    As a longtime patient of Dr. Humera Malik, I can only say that she is definitely worth the time, effort, and expense to go see her. I live far outside of DC, but I have been making the long trek to see Dr. Malik all these years, because she really values patient relationships, more than any other Doc I have seen before. Sure, she’s really, really good at what she does and she’s really smart and all that stuff, but her personable patient engagement skills make her stand out from her peers. I am so much healthier (and happier) today because of Dr. Malik, and I could not have become so without her. I look forward to seeing her at her new practice this summer.

  111. Jennifer
    June 5, 2015 at 10:42 am

    Looking for LLMD who is also fully aware of and incorporates Mold Toxicity (Dr. Shoemaker’s work) into overall clinical picture and treatment. In Midwest area, but willing to travel for the right practitioner. Any suggestions?

    • Marcia
      July 1, 2015 at 3:06 pm

      Dr. Berndston in Park Ridge, Il

  112. Erin Hegarty
    June 17, 2015 at 3:46 pm

    I was diagnosed with Lyme – probably chronic by this stage as I’ve had symptoms for years and no resolution. Test was recently positive.

    Can you offer names of LLMDs in CA – specifically SF Bay area?

  113. Carole
    June 30, 2015 at 11:20 am

    I am searching for a Lyme Dr. in Missouri or Illinois.

  114. Lisa
    July 22, 2015 at 5:27 pm

    Carole. My chiropracto
    r highly recommends Dr. Charles L. Crist in Columbia, Missouri. His website

  115. Lisa
    July 22, 2015 at 5:41 pm

    Hi, My sister has been diagnosed with Lyme Disease and is very sick! Please does anyone know of a good doctor in the Mesa, Arizona area?

  116. Kathy
    July 25, 2015 at 8:19 pm

    anybody know a good LL MD in NE Ct, RI., or southeastern Mass?

  117. Jane
    August 3, 2015 at 2:35 pm

    I just saw Dr. Malik ( after reading all of her positive peer reviews here and I am so glad I did. She is a smart and engaged physician, who truly connects with her sick patients on so many levels. She is well worth traveling to see her. Despite living several states away, from her Virginia office, I will definitely make the trek back to see her for my follow ups. Highly recommended.

  118. Marie
    September 1, 2015 at 7:26 pm

    Regardless of whether you are in close proximity to DC or not, I highly recommend Dr Malik in McLean, VA. She is an amazing LLMD who sees patients from all over the US and even Canada. I am forever grateful to her for getting my health back after being sick for so long. She is down to earth, very smart, and quite the compassionate physician from another era. I really love that I can book my appointments online and that her very cool secure patient portal empowers me to be able to conveniently self service my health care needs online, including reaching her during and after her office hours. I have referred her to countless friends and family members who all had the same wonderful patient experience with her. Definitely worth your time and expense.

  119. Alexandra
    September 20, 2015 at 7:53 pm

    Does anyone have experience with a good LL neurologist in northern NJ? I have reached out to ILADS and know the NJ LL physicians – but need a neurologist foe extreme head pain – positive on ehrlichiosis which was treated – but continuing issues…thanks in advance for your insight

    • Samantha
      October 31, 2016 at 12:02 am

      Have you heard of Dr. Frid? A neuro-Lyme expert in Manhattan. Good luck

  120. Joe - Orlando
    September 22, 2015 at 3:22 pm

    Does anyone know an LLMD in orlando or Jacksonville Area?
    We have Dr. Kalldas, although he does not partisipate with medical insurance. Is this common for LLMD’s.

    Thank you very much

  121. Jannine
    October 9, 2015 at 8:07 pm

    I went to the ER and had a tick removed from my shoulder

    I was given a one time dose of an antibiotis consisting of 2 pill at the ER and sent home.

    Now what? just wait and see?
    Or should I seek out a specuialist now?

    Does anyone know of a dr I can see on the North Shore, Massachsetts

  122. Gordon
    October 12, 2015 at 1:01 pm

    After suffering from tick borne infections for so long, I discovered Dr. Malik, in McLean, VA, thanks to this terrific web site. All I can say is that she is a fabulous Internist with a terrific professional staff, who bend over backwards for their patients. She has given me back my health and my quality of life for which I am forever grateful to her. Even though I reside in Toronto (Canada), I am only too happy to make the hour long flight down to DC to see her. Its too bad she is not closer to me because we Canadians have a raging Lyme epidemic going on as well. Highly recommended LLMD.

  123. Deirdre
    November 7, 2015 at 9:39 pm

    Does anyone know of Lyme literate Drs in Massachusetts area. My daughter has been diagnosed and trying to find someone to treat adequately. She seems to have costochondritis on top of it, so is in extreme pain from that as well.

  124. Marie
    November 10, 2015 at 3:07 am

    Please remove the second link/email on this page, the one to That no longer works.
    thank you!

  125. Cathi
    November 14, 2015 at 3:21 am

    I need a doctor specializing in Lymes disease in NYC

    • Samantha
      February 24, 2016 at 2:47 pm

      I know Dr. Elena Frid is a brilliant Neuro-Lyme doctor, but I believe she only see’s 18+. She is in Manhattan and takes insurance, which is a huge plus. Good luck!

  126. November 16, 2015 at 6:30 pm

    Can I simply just say what a comfort to discover somebody
    that really understands what they are talking about on the net.
    You certainly understand how to bring an issue to light and make it important.

    More and more people really need to read this and understand this side of the story.
    I can’t believe you’re not more popular since you most certainly have the gift.

  127. Elizabeth
    December 6, 2015 at 12:07 pm

    I’m a newly diagnosed lyme patient and am looking for a LLMD near me I’m in azusa ca, does anyone have any suggestions, please:)

  128. Mary
    December 18, 2015 at 3:36 pm

    Hello, I have been suffering from debilitating symptoms of Lyme’s for over 2 years now but the Dr’s have been treating me for Rheumatoid Arthritis instead. It wasn’t until this past October that my Dr discovered that I tested positive for Lyme’s back in May. She put me on 200mg of doxicycline for 3 weeks. I have 2 days left of my antibiotics and still no relief. I am in desperate need of finding a Lyme literate Dr in or around the Atlanta, GA area. All the Dr’s around here seem to think that Lyme’s disease is rare in the south so they are not well educated on how to treat the disease.

  129. Margaret
    January 12, 2016 at 5:45 pm

    I don’t know anything about this doctor. I have just been reading the information on his website, which I found very informative.
    Dr. Charlie Schwengel

    Located in Arizona

  130. C
    January 26, 2016 at 10:13 am

    My friend is suffering from Lyme Disease. She has suffered over two years of terrible symptoms. She was treated for depression, arthritis, memory loss, etc. The docs finally tested her for lyme disease and the test came back positive. She lives in Southern California, Los Angeles area. She is searching for a LLMD. If anyone knows of a LLMC in Southern California, please advise.
    Thank you for your time.

  131. Claire
    February 3, 2016 at 1:58 pm

    Dr Malik is a excellent LLMD/LLMP in McLean, VA, right outside of DC. She sees patients from all over the US and beyond. Her holistic, integrative approach is remarkable and she has helped so many sick patients, as myself, get better and become well. Since I am not a local, I take advantage of the local suites hotel, which is just a short walk or drive to her office, as well as the local restaurants and shopping, also just minutes from the hotel. Her practice’s office visit fees are reasonable and they now participate with a few select healthcare plans. Well worth it!

    • L Trent
      April 1, 2016 at 1:01 pm

      Does Dr. Malik treat co-infections in addition to Lyme Disease? And will she use prescription meds for the 2 main co-infections – Babesia and Bartonella? thank you

      • Claire
        April 8, 2016 at 2:50 pm

        Yes & yes! I hear that she gets patients of other local LLMDs who prefer a more holistic, less aggressive approach.

  132. lynette Stone
    February 10, 2016 at 2:58 pm

    Am looking for a Doctor in Lee Summit, Mo or Kansas City, MO. Thank you

  133. DJ Cowdrey
    February 11, 2016 at 5:57 am

    I have read many of these and I know where they are coming from. Had Lymes since 9/1979. Ohio doctors do no comprehend that this disease is inflammation and is going to kill me due to that, not Lymes. I have had one doc that felt my case worthy to study up on, and he just retired. I am a walking flaming ball of fire. No one cares to find out what they can do to put out the flames or that I’m even in pain. Tylenol does not cut the pain that goes with this!
    I’m so disgusted! I don’t care that it kills me, its just the painful route that it takes. I can’t even get a pain pill. I rarely ever take scrip pain meds. 30 a year is all I ever had the script for, due to its life time and don’t want to get too comfortable taking meds instead of other means.
    I just need a doctor that understands what I am going through.

  134. Sarah
    March 11, 2016 at 12:07 pm

    I have not been diagnosed. However, MANY people have asked me if I have been checked for Lymes. One friend told me that Texas is lousy at detecting Lyme. Is this true? I’m visiting MN (Minneapolis) for the next day and wondering if I should get tested while I am here…

    My story in a nutshell- 2008 was a doozy. Got the flu. Could never quite get over it. Lost all my energy. Went to the ER three times because I had extreme headaches and was losing feeling in my extremities. They kept sending me home with “migraines” which I kept fighting saying they weren’t migraines- I had had migraines since I was 8! I never lost feeling in my extremities with a migraine!

    Four doctors later, they finally ordered a spinal tap and MRI which revealed 3 herniated discs in my back and meningitis. In the hospital off and on with the meningitis.

    Ended up having 3-4 spinal taps. The second one went awry. Doctor missed his target. Sent electricity through my body. I screamed and cried like a baby as he wiggled that needle around in my spine trying to get it in the right place.

    Later that night, I started violently vomiting. Never slept. Vomited all night until I was just dry heaving in the morning. Mom took me back to the doctor. By the time I got there, I was puking blood. It took a team of about a dozen physicians and nurses to hold me face down on the table (due to my convulsions), while they drew blood from the back of my hand. It felt like a rusty nail going into my hand- I was so dehydrated. Ugh! They took that blood and put it in the hole in my back where the spinal tap had been. This is called a blood patch.

    Last thing I remember is hearing a doctor say,” Oh my God. I have never seen it this bad before” and another say,”She’s going! She’s going!” That was the last thing I remembered before I woke up in the hospital.

    Anywho, I saw MANY doctors while I was there, including an infectious disease doc. They tested me for Lyme then. They told me I was negative. From what I have read now, it seems like it is easy to get a false negative? Is that right?

    Since the meningitis, I have seen many more doctors, because I haven’t ever been able to recover 100%. My current symptoms are chronic pain, extreme fatigue, extreme depression, anxiety, sleep problems, hypothyroidism, restless leg/foot syndrome, loss of memory, weight issues, hair loss, rash, and more I am sure I am forgetting- lol!

    Here are what some of the many doctors I have seen say:

    Neurologist- 3 herniated discs in thoracic region of back, one is touching spinal cord.

    Spinal specialist- “we can do back surgery, but I’m gonna have to cut you open from the front all the way from your breasts to your pubic area, take everything out, fix it, put everything back in, sew you up, and hope for the best. 8 months bed rest and there is no guarantee it will even work. I would not recommend surgery.”

    Rheumatologist #1-Rheumatoid Arthritis. Was taking all sorts of meds including daily shots for a LONG time with NO relief. Not a compassionate doc at all. Horrible bedside manner. Fired!

    Rheumatologist #2-Fibromyalgia. That was his diagnosis. No meds. No nothing. That’s what you have. Done.

    I saw many other doctors during that time- but I can’t remember them all, plus other things such as acupuncture, massage, chiropractor, etc.

    I did nothing for years after that. I became really depressed. None of the doctors could agree. EVER. I forgot to mention- when I was in the hospital, they thought I had some rare brain tumor (then changed their mind), then they told me I had MS (then changed their mind), I was also told I was vitamin D deficient. The doctors when I got out of the hospital couldn’t seem to agree either!

    This has been a very long and tedious road. I don’t know if I have Lyme’s. But I really want someone who can tell me for sure because it seems like everyone I have worked with thus far…I don’t know. They just aren’t getting it. I can’t continue to live my life from bed. I have a beautiful daughter. I need the energy. I want to be pain free. I need a life again.

    Please. Can you help refer me to someone in Dallas, TX? Is there such a person in existence???


  135. Roger Boone
    March 15, 2016 at 7:26 am

    Looking for LLMD in West Central Illinois, SE Iowa, or NE Missouri


    • Ellejb
      July 7, 2016 at 9:42 pm

      I have seen Dr. Charles L. Crist in Columbia, Missouri. His website He is compassionate and takes the time to listen to you. He is very knowledgeable.

    March 30, 2016 at 6:52 pm


  137. April 2, 2016 at 9:27 pm

    Try Carolina Holistic Medicine ( they have LLMDs there. Have offices in RDU (NC) and Charleston and Myrtle Beach, SC areas. (800) 965-8482.

  138. Laurie
    April 15, 2016 at 3:22 pm

    Looking for A LLMD DR in Orange County CA Southern CA Does anyone know of someone there?

  139. ss
    April 20, 2016 at 7:28 pm

    hi i need a LLMD DR in new York in the westchester/NYC area or in CT does anyone know one? i have been diagnosed with lyme and need new doctor. Thanks for the help and suggestion in advanced!!!

    • Samantha
      October 30, 2016 at 11:58 pm

      Dr. Elena Frid.

  140. May 6, 2016 at 11:28 am

    Can someone please help me find a LLMD in California.
    My son is very sick.

  141. Rusty
    May 19, 2016 at 1:47 pm

    Just made the trip up from GA to see Dr Malik in McLean, VA, just outside DC, and I am so glad I did. She is so smart, personable, and well experienced with Lyme. All of her patients in her waiting room told me how happy they are with her since they started seeing her, which is good enough for me.

  142. TERRI
    May 24, 2016 at 4:26 pm


  143. Jonathan Keller
    May 25, 2016 at 10:42 pm

    Good analysis , For what it’s worth , if your company requires a VA 21-527 , I encountered a sample version here

  144. kathy
    May 28, 2016 at 1:18 am

    does anyone know of a good Lyme Doc in South Florida?

  145. Nida Hoshimi
    June 3, 2016 at 1:25 pm

    Looking for a Lyme Doc in Orange county Ca. Thanks

  146. Lynn Bennett
    June 4, 2016 at 1:43 pm

    looking for lyme treatment and awareness doctors in west virginia

  147. Em Wolf
    July 12, 2016 at 12:19 pm

    Looking for lyme treatment in NYC. Please help. Husband diagnosed positive about a month ago and PC has NO idea what’s going on.
    Made appt with Elena Frid but she can’t see us until Sept.
    Need other options, please.
    Thank you so much for your help

  148. Em Wolf
    July 12, 2016 at 12:19 pm

    Looking for lyme treatment in NYC. Please help. Husband diagnosed positive about a month ago and PC has NO idea how to treat.
    We got 28 days of Doxy but I know that’s not enough.
    Made appt with Elena Frid but she can’t see us until Sept.
    Need other options, please.
    Thank you so much for your help

    • Samantha
      October 30, 2016 at 11:56 pm

      I posted this before, but Dr. E. Frid is excellent. She is a neuro Lyme specialist

    July 19, 2016 at 12:13 pm


    • Samantha
      October 30, 2016 at 11:52 pm

      Dr. Elena Frid. Neuro-Lyme expert in Manhattan. Good luck

  150. Donna Clark
    July 21, 2016 at 1:15 pm

    I have been wondering what was wrong with me for at least the last 9 years! We go to the mountains often and have had many tic bites over the years. I had no idea until I saw the picture of the bull’s eye rash. I had that over a decade ago and made no connection because it went away, until I saw it on the internet.

  151. Donna Clark
    July 21, 2016 at 1:16 pm

    I need a lyme literate doctor in the Denver, CO area. Thank you!

  152. Nikki
    July 23, 2016 at 8:48 am

    Looking for a LLMD near Fargo ND. Thank you!

  153. Joan g connor
    July 24, 2016 at 9:22 am

    I need a Lyme treatment doctor in Naples,Florida area

  154. Suzanne
    August 31, 2016 at 10:12 am

    I need a LLD in Southeastern Pennsylvania for my daughter (age 3). We just received the positive labwork/Lyme Titer last evening. The only doctor I have located at this point has a 1.5 year waiting list…Please any help would be greatly appreciated!

    • Samantha
      October 30, 2016 at 11:54 pm

      Hi Suzanne

      Not sure about PA, but try Dr. Johns in CT it Dr. Frid in NYC.

  155. Marge
    September 12, 2016 at 3:10 pm

    Has anyone found a good LLMD in the Atlanta, Georgia area?

  156. George
    September 12, 2016 at 5:00 pm

    Looking for a good LLMD in Las Vegas, NV

  157. Elisa Jackson
    September 17, 2016 at 8:42 am

    Please refer an MD experienced in treating Lyme Disease in CT.

    • Samantha
      October 30, 2016 at 11:54 pm

      Dr. Jones and Dr. Frid. Google them

  158. Diem
    September 20, 2016 at 4:00 pm

    I am looking for a RA doctor in DC metro that also works with Lyme Disease. Please kindly help and I am looking forward for this response.

  159. Dina
    October 3, 2016 at 1:20 pm

    Just discovered Dr Malik in Northern Virginia after being referred to her by ILADS. She is an incredibly capable LLMD/LLMP having treated so many Lyme patients, as myself, for the past decade. I found her to be spot on, personable, honest, and trustworthy. I am now feeling so much better, after just several visits to her practice, that I had to share with everyone. I don’t live anywhere near DC, but since there are no good LLMDs/LLMPs near me, I make the long trip to Northern Virginia since it is so well worth it. Highly recommended.

  160. Sherry Hochradel
    November 2, 2016 at 11:58 am

    I have an 8 year old son who recently tested positive for Lyme Disease. Does anyone know of a doctor who follows ILADS guidelines for treating Lyme? At this point, we’ll try anyone who is a Lyme literate doctor.

    • Samantha
      November 5, 2016 at 6:36 pm

      Dr. Frid and Dr. Jones. Both treat children. Good luck

  161. Sherry Hochradel
    November 2, 2016 at 11:59 am

    Forgot to mention that we live in the Houston, TX area.

  162. Dawn Pinto
    November 2, 2016 at 12:55 pm

    My name is Dawn and I have been sick for a while 4 months, I live in North Carolina , I have been refused by infectious disease specialist here.. I had lymes diesese twice in my life and also been exposed of toxic mold..Nobody here will treat or test for either one . My symptoms are progressing rapidly, my nerves are jumping everywhere and my skin burns , I have numbness, stabbing in my knees and burning in my back ,numbness in my nose severe jaw pain and Dizziness my body has tremors lasting 10 speech and memory are being affected and they cannot find what’s wrong and no one will do a spect scan to detect lymes diesese damage or toxic mold syndrome. My husbands ins is South based.. And I also contacted a environmental specialist and it’s 600.00 out of pocket I cannot afford those fees.. Reaching out for help..Doctors are using anxiety as a cause due to pain I am not causing these symtoms no blood supply to my feet and causing my nerves to jump and tremors.. please help me sincerely Dawn Pinto I need a lymes literate Dr ASAP I’m really sick 4 mnths

  163. Erica c
    November 13, 2016 at 8:43 pm

    Hi does anyone know if there are any GOOD Lyme literate does in North Carolina or should I make a trip somewhere near D.C.?

    • Rox
      January 29, 2017 at 2:38 am

      There is an office in Cary, NC that can help. Carolina Holistic Medicine.

  164. Cheri
    November 30, 2016 at 5:41 pm

    I had a deer tick removed from the back of my ear 3 weeks ago. No rash so my doctor doesn’t have any worries, however, the bite still hurts when touched after 3 weeks. I would like to have a second opinion. Anyone know of a good Lymes doctor in the Bloomington/Indianapolis, Indiana area?

  165. January 2, 2017 at 9:36 pm

    Hi I am seeking a neurologist specializing in lyme that accepts insurance. I live in Maine but for the right situation would consider some travel if reasonable. My condition is severe.
    Thank you so much!

  166. Holly
    January 5, 2017 at 3:52 pm

    Help! I am looking for a lyme literate doctor in MN who treats chronic lyme. I have been sick for 10 years and my young son has been sick for over 5 years. I’m having trouble finding a doctor who can treat our many symptoms.

  167. Kim Bland
    January 27, 2017 at 9:42 pm

    Help for my 10 year old! Looking for a Lyme Literate Doc in Texas. Has anyone ever been treated by Dr. Jonathan Forrester in LA. We have an appt with him on Feb 6th, 2017.

    • Leigh
      April 12, 2017 at 3:28 pm

      Hi. I’m in TX too. Have you found a doctor yet?

  168. Rox
    January 29, 2017 at 2:36 am

    Carolina Holistic Medicine (with locations in Myrtle Beach, Charleston/Mt. Pleasant, SC and also in RDU (Cary), NC) is taking on new Lyme patients. For more information visit their web page at Dr. Saleeby who leads the team of providers is an ILADS member and takes a Functional Medicine approach to treating Lyme and co-infections.

  169. Carol Delfaus
    January 30, 2017 at 3:03 pm

    Does anyone know where Dr. Saba Belovin is now located. We were being treated by her at Northern Virginia Internal Medicine in Reston but she has left and they will not tell us her new location except to say it is somewhere on the eastern shore of Virginia. this would be much closer to our home

  170. Remy
    February 6, 2017 at 11:09 am

    What are the best LLMDs in the State of Florida ?

  171. Margo
    February 7, 2017 at 3:40 pm

    Good news! Dr Malik, in McLean, VA, is still accepting new patients. She is an excellent LLMD/LLMP, who we have been seeing for years. In fact, we have referred her to many others and they all also rave about her. One of the best Docs, by far.

  172. Valerie Jones
    March 3, 2017 at 12:29 pm

    My father 83 yrs old has been diagnosed with Rocky Mountain Spotted fever. Finally after 6 visits to ER with chest tightness, neck pain, dizziness constant ringing in ears,
    and enough EKGs and CT scans to make him glow, I begged the ER doc to run and lyme test. (only because I experienced many of the same symptons in 2008 when I had been diagnosed) He reluctantly agreed. Well there we have it. RMSF, 6 weeks of doxy and titers remain the same his primary says she cannot do anymore for him! She referred him to Neuro but she says he probably will not be able to do much.

    Help Help Help. We live in a high tick born disease area St, Michaels Md. Please help me find a doc for my dad he feels worse each day.

  173. Kathye
    March 6, 2017 at 6:14 pm

    Does anyone know of a LLMD in the northern California area? I had a great one who got witch-hunted out of the profession several years ago and although I have been symptom free for 6 years, I’m having problems again. So it’s back to the drawing board to find a new doctor.

  174. Greg
    March 22, 2017 at 3:07 pm

    I highly recommend Dr Malik in McLean, VA to those of you seriously seeking a top notch LLMD. She sees patients from all over, including my wife and I, who are from a tick infested, rural area in NJ. We have been seeing her for over a year now and we both have made a remarkable recovery from Lyme, thanks to her professional experience and medical expertise. She is also one heck of a down to earth person who most people can relate to. We sure wished she was located closer to us, but are most grateful for all she has done for us.

  175. Karen
    April 8, 2017 at 4:00 pm

    Seeking LLMD in the Boston, MA and surrounding area. Please help!

    • Mike
      April 19, 2017 at 4:05 pm

      Check out the Lyme and PANS Treatment Center in Cohasset, MA. It’s a short drive from Boston. In addition to having LLMDs on staff, they have several other practitioners under the same roof, including neuropsychologists, acupuncturists, acupressurists, heath coaches, breathworks clinicians, yoga instructors etc. They all work together to provide the best treatment plan for each client.

  176. May 29, 2017 at 1:07 pm an article about LLFMD (Lyme Literate Functional Medicine Doctors)…a step above LLMDs.

Comments are closed.