How To Find A Lyme Literate Doctor (LLMD) In Your Area

Because of the hullabaloo over treating chronic Lyme disease, many Lyme-literate doctors (LLMDs) prefer to keep a low profile which is why it is often difficult to find an LLMD in your area or nearby. As well, many forums and Lyme discussion websites will not publish the names of LLMDs for fear that the doctors will be targeted for treating chronic Lyme disease; thus, these physicians’ names are often kept private. Luckily, you can contact one of the Lyme disease organizations I have listed below and request a doctor referral for a Lyme-literate physician (it’s free!). Seeing a Lyme-literate doctor is important because they have experience in treating not just acute Lyme disease, but chronic Lyme disease and the many co-infections that ticks can transmit. Here is how to get a Lyme-literate physician referral in your area:

1. The International Lyme and Associated Diseases Society (ILADS) is a great way to get a Lyme-literate Doctor referral, and is probably the best place to start. Go to their website www.ilads.org , email them at contact@ilads.org or call them at 301-263-1080 (they are on EST). ILADS is the “gatekeeper” for most Lyme docs in the United States. They may also be able to point you in the direction of an LLMD in another part of the world if you reside outside of the Unites States.

2. Turn The Corner – an amazing Lyme disease foundation that supports the research, education, awareness, etc. of Lyme disease – will help you try to locate an LLMD near you for free: “Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link http://turnthecorner.org/content/selection-proper-physicians

And here is their email for inquiries (they will only answer by email): medicalinfo@turnthecorner.org

3. Lymenet.org has a Lyme disease forum where they have a “Seeking a Physician” section. Here, members of the forum will give you the contact information for LLMDs in your area from www.lymenet.org. When you go to Lymenet.org’s homepage, click on “Flash Discussion,” and then click on “Seeking a Doctor.” You will be asked to enter your city, state, and contact information, and a Lymenet.org forum member will contact you with a physician referral.

4. The Lyme Disease Association has a Doctor Referral Service: Go to www.lymediseaseassociation.org and click on “Doctor Referral.” You just need to give them your contact information and they will give you a doctor referral.

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193 comments for “How To Find A Lyme Literate Doctor (LLMD) In Your Area

  1. s coffman
    December 12, 2010 at 7:43 pm

    My son has classic symptoms of chronic lyme disease. For the past year he has been in misery. He has 35 or more symptoms. I have been doing a lot of research and my doctor is trying to get me to a LLMD. Please help me with more names in the northern va area.

    • kate
      September 4, 2012 at 8:00 am

      also Dr Shor in Reston

      • A
        June 26, 2013 at 9:05 pm

        Dr. Shor is a great doctor. He actually takes the time to sit there and talk with you for as long as it takes to get a full history and develop a treatment plan. And he’s extremely accessible after you become a patient – their website has a form to email him, and he almost always responds within 24 hours.

        He doesn’t just treat Lyme, either; he ordered extremely comprehensive tests based on my history, and performed a full physical exam. I ended up being diagnosed with SIX separate medical conditions, and Dr. Shor is treating /all/ of them.

        • Lorraine Berger
          July 13, 2013 at 8:44 am

          Please let me know where Dr Shor is located. Many thanks

          • Jay Cleveland
            February 11, 2014 at 11:25 pm

            We had a poor experience with Internal Medicine of NVa (Shor), saw them for two years. Treatment plans were haphazard, not coordinated, did not have good knowledge of my records and history in spite of going there for 2 years – recommended very expensive and unproven regimens. Only way to get to see Shor was to pay a membership fee — seemed like a money generating scheme more than someone interested in providing care for very sick patients. Have not been able to find someone yet that we trust.

          • nikki bex
            May 9, 2014 at 10:55 am

            I was just told I had negative lyme but positive western blot by the cdc and ss per other, pardonial, and something like resporse? And relaspring fever ? Spelling aliitle off on those last two but went on to say lupus and other stuff and is referring me out to another dr. Whats this mean? I live in Bloomington, Indiana

        • Abbe
          May 16, 2014 at 10:03 am

          Where is Dr. Schor located?

        • Emily Kelly
          June 17, 2014 at 9:35 pm

          Help! I need help finding a Lyme literate doctor near me (greater Richmond)

    • D. Wyatt
      June 15, 2013 at 12:14 am

      Better off to see Dr. Jemsek. He is just a couple of blocks away from the GW Hospital metro. He is good, but you have to ask his staff for a translation of your med schedule as well as your safety labs. You will not be able to translate his worksheet.

      • Lynn
        August 21, 2013 at 12:42 pm

        We found Jemsek hard to reach when issues came up.

        • Lynn
          August 21, 2013 at 12:48 pm

          Also, Could not go the antibiotics route at all. That was summer 2010.

  2. Danielle
    December 12, 2010 at 8:18 pm

    So sorry to hear! There is a well-known and respected LLMD in Washington DC which I would recommend, even if you have to drive a bit of a ways to see him… http://www.jemsekspecialty.com/drjemsek.php

    Please let me know if I can be of any further help and I hope your son gets in to see him or another LLMD soon so he can begin on the road to recovery…

    • Karen
      February 1, 2013 at 12:20 pm

      I am currently a patient of your recommended LLMD in Washington DC and he is great. I have been seeing him for 4 yrs and 2 months and he is very helpful. However, the trip from the North Carolina-South Carolina border is very hard on me. I would like the name of a good LLMD in SC or eastern Tennessee. Can anyone help with that to my email?

  3. Phyllis Morris
    June 14, 2011 at 10:23 pm

    My adult son most likely has Lyme and has had a most difficult time finding an LLMD in North Carolina–or in surrounding states. He is very ill with fevers and extreme fatigue.
    This is a relatively recent event. He was bitten by a tick about two weeks ago.

    Is there any way we can find a physician to treat him. He has done research online and is aware that most physicians will not know how to diagnose/treat Lyme.

    I would appreciate any information you might have.

    Sincerely, Phyllis Morris

    • D. Wyatt
      June 15, 2013 at 12:04 am

      Get him to an urgent care facility ASAP, and tell them to give you 28 days of doxycycline. Don’t waste any time looking for a doctor right now. Just get the meds in him NOW before this goes chronic.

  4. Danielle
    June 14, 2011 at 10:49 pm

    Dear Phyllis,

    I am so sorry to hear your son is so sick, and yes, he is correct in that most physicians do not know how to properly diagnose and treat Lyme disease. There happens to be one of the top Lyme doctors in the world in Washington DC (he actually used to be in North Carolina) – Dr. Joseph Jemsek – and you can read about him here on his site:

    http://www.jemsekspecialty.com/aboutus.php

    I am not personally aware of any other Lyme literate doctors close to North Carolina, only some in NY. If your son cannot travel to DC, then I would suggest you contact ILADS for a recommendation (see above in my post).

    Best of luck and let me know if I can be of further assistance!

    Danielle

    • Barbara
      August 4, 2013 at 9:05 pm

      My son contracted Lyme Disease a few months ago, Spring 2013 and was treated with the 30-day Doxy treatment yet is suffering with re-occurring symptoms of fatigue, mental fuzziness and vision impairment. His Lyme illiterate doctors have told him he will feel better in a few months. I know this is not the case having contracted Lyme myself last year. The physical effects are forever lasting, I suffer joint aches and mental fatigue daily since the awful onset of this illness. I am seeking a Lyme Literate doctor in New York State. A million thanks for your research and understanding of this horrific disease.

      • Lord G
        August 24, 2013 at 8:58 am

        Dr. Richard Horowitz
        HYDE PARK, NY (just over the CT State line)
        Phone: 845-229-8977

    • Stuart Lederer
      August 24, 2013 at 9:19 am

      Hi Danielle. Do you know of a good LLMD in New York City area. My 14 year old has lyme and I’m getting desperate. Can you please help me? Thanks. Stuart.

  5. June 28, 2011 at 12:09 pm

    Below is 2 Lyme Litterate doctors close to NC
    -MD David Rily
    Primary care physician 864-227-2099
    SC 5 hours from Wilmington NC

    -MD Cathrin Harbor Virginia 6 hours from Wilmington NC
    Primary care physician

    My question:
    Is becoming a Lyme Litterate doctor just a matter of paying a fee or something or can I trust that if they have that title they really know their stuff. Will they be able to reallly diagnose and treat me effectively for Lyme. I would go anywhere to see someone that will tell me for sure if I have Lyme or not and who could treat me effectivly if I do.But I am broke I have spent a ton of money on medical stuff and was not able to work for long periods. So if I need to I will save the money to go to DC or wherever but if I can be confident the physicians below that are close I could get the money to go there sooner.???

    Symptoms:
    I had the bullseye 3 years and got sick with flue like symptoms 2 years ago that lasted 3 months then disapeared for 3 months. When it came back it felt the same at first but got worse and more symptoms developed. Symptoms included Nasea, I dont think I had a fever, joint and miscle aches and stiffness, major fatigue, memory problems, depression, Weight loss (43lbs) I went from 192lbs to 149lbs in about 2 months etc. By mid to late 2010 the symptoms got less severe I was more functional but have good and bad days and am scared to death I am going to be bed riden again. I can’t go through that again and be the same person I am now. I feel like I am already a much more angry synical less happy person.

    • September 4, 2012 at 8:03 am

      dr harbor is great, thorough, and very kind. We also have seen Dr shor, and we pleased with his knowledge but never saw him, mostly his nurses which was a bit frustrating, but the protocol was sound, just a little haphazard, since they never remembered who we were, what we had tried, etc. Now seeing Dr Jemsek, but Cathryn Harbor is still our local backup doctor. I feel she cured my son, since she now uses Dr Shoemakers Mold Detoxing protocols too.

      • September 10, 2012 at 10:20 am

        I have a 16 year old who I suspect has had lymes for 5 years or more. The blood test came back negative, we saw a rheumatologist (who I was not impressed with. Does anyone know of a spectacular pediatric doc or adult doc who takes pads patients. I have to get the right help for my daughter, she is an athlete, an equestrian, straight A student, and not one day goes by that she is not exhausted or full of aches and pains. Please, if anyone can help

        • August 13, 2013 at 4:32 am

          Thanks for the auspicious writeup. It actually used to be a leisure account
          it. Glance complicated to more brought agreeable from you!

          However, how could we keep up a correspondence?

    • Alwynne Blake
      May 11, 2014 at 6:53 am

      I live in NH, we have a few wonderful LLMD’s but still it is not enough. I do not believe that a MDhas to do anything but say he is LLMD, I knew this was coming so one must be careful…Doxi is only the first and now has been proven that the Bugs can pump it out of the cell they are inhabiting, see it in the system within 24 hours and morph. One should really take Doxi for more than 54 days not 14, 21 or 29!
      There is another LLMD in NY I cannot remember his name but he is in the movie “Under our Skin” I have a couple of friends that saw him, he uses IVIG Treatment …with success. LOOK for CO-Infections

    • Jen C
      June 23, 2014 at 12:08 am

      I am so sorry to hear what you are going through. It is a horrible experience made even worse by the fact that you have to constantly battle just to receive treatment. Once it hits you hard enough, that can become impossible to do. I managed to survive an extremely rare cancer. Lost an eye, gull bladder, etc. In 2008, I got a huge bulls-eye on my back. I had no clue what it was. My roommate actually tried scrubbing it off, haha. I went to urgent care, took 2 weeks of antibiotics and was fine until 2010. Wow, I had no idea anything existed that would be as horrible as cancer, but it truly was/is. I was diagnosed with Lyme again while in the hospital. I begged the doctor not to make me leave the ER without finding out what was wrong. I described the pain level as, “If you can’t make it stop, I will run out of here and jump in front of a semi.” Anyone who does not believe it exists has obviously never experienced the effects of Lyme. Having doctors assume it all stems from a psychiatric problem is enough to drive one insane!
      I had two Lyme literate doctors over 8-10 months of IV antibiotic treatment. Both of these doctors had chronic Lyme disease themselves. It was rather terrifying as both seemed slightly nutty. The first gave me a 2 week notice before moving to Florida. I still had a PICC line in my arm and had to have it removed, because I could not find a new doc quickly enough. The next prescribed IV vitamin treatment I paid for upfront ($500 for 2 rounds). The “nurse” didn’t seem to know how to start an IV, then attempted to attach the line with the tubing completely full of air. That was it; I told her to get away from me. The doctor then asked her to start an IV on him so the meds wouldn’t be wasted. He explained to me that, the amount of air in the tubing would most likely not have been fatal… The next time I contacted him, he was in Texas and he never returned my money.
      So, it is very difficult to know for sure about any Lyme literate doctor. I think it may be worthwhile to travel further to find a doctor who is highly recommended by other Lyme sufferers. You can learn a lot from patient reviews. Also, if you are well enough to do some research, it’s helpful to know what you feel needs to be done. Then you can quickly assess if the doctor is going to offer the best treatment for you.
      I am currently searching for doctors again myself. Apparently no one likes to treat fungal infections either. My skull fractured from the infection recently, but each doctor just sends me to another and no one treats the illness. I came across 2 places in Scottsdale Arizona, one treats Lyme the other treats Lyme, cancer, and fungal infections. There is a place in Atlanta that focuses on treating various environmental illnesses… It seems these places are more open to treating Lyme and they often work with insurance companies…
      My main point is, PLEASE DO NOT LET THIS DESTROY YOU!!! I have babbled on a bit, but this is why I chose to respond to you in the first place. Your last sentence grabbed my heart. I just can’t stand this disease. It is awful, but please don’t choose to let it turn you into an unhappy, angry, cynical person. Try to love every moment that doesn’t completely suck. Laugh at anything even remotely amusing; it helps bring more laughter. Smile just because you were able to get out of bed, didn’t have stuff coming out of both ends, weren’t on the floor writhing in pain… You will have to work hard everyday for much longer than anyone would wish. It is not fair, it makes no sense, but if you let yourself evolve into someone without happiness, then you will be more likely to quit fighting all together. Not to mention, there are already a bunch of grumpy, unhappy people all around. So please, fight to get to the right doctor, to get your health back as much as possible, and then smile, smile, smile because YOU WILL HAVE SO MUCH TO SMILE ABOUT!

  6. Johnny
    July 10, 2011 at 8:45 pm

    Hello, I have been having certain symptoms for over a year. Let me start from the beginning. May 2010, I began getting mild headaches, widespread muscle twitching, blurred vision and lighheadedness. They were all an on and off type of thing, sometimes going away for a few days and then always returning. After a few months, I began getting a ringing in my left ear that was also on and off. I went to my doctor, he ran blood tests as well as gave me a CT scan without contrast and an MRI with and without contrast. Everything came back normal with the exception of a vitamin D deficiency and I also had the beginning stages of fatty liver which was diagnosed VIA an Ultrasound. I had also been diagnosed with mixed sleep apnea. So, I started on a diet and attempted to lose weight. I was 350 lbs and Now I am 260 lbs. My fatty liver is pretty much non-existent and my sleep apnea has gone away to the point that my pressure is now way too high for me on my CPAP machine. But, though I have lost close to a hundred pounds, my symptoms still remain and I have even gotten a few new symptoms. Now, the headaches are far and few between, the lightheadedness, muscle twitching, blurred vision and ringing in my left ear still come on and off. But now I have also been having pain in my neck, pain in my lower back and also bad aching pain and weakness in both my legs. The leg pain begins around my knees and goes all the way down to my feet. My arms have also begun to feel achy and weak off and on. Often times after I walk, I get this vibration feeling on my left arch of my foot that feels like a cell phone is underneath it on vibrate mode going off. My legs ache so badly that it is often difficult to walk on them. Then, it will go away for a few days and I will be able to walk fine, with no pain and no foot vibration. A few times when the leg pain symptoms was present, I actually heard a creaking nose in my foot as I attempted to move it. There has been more cracking in the joints of my knees, arms and legs as of late. Also, my feet often feel tingly, like they’re falling asleep. I have also been feeling pain in my muscles in my legs, arms, hands and sometimes in my back and neck. I have felt the same tingly feeling in my fingers at different times. Please, I just want my life back. I don’t drive and I can’t travel very far. I am in the Oswego/Syracuse NY area and I am in dire need of an LLMD.

    • Danielle
      July 10, 2011 at 9:03 pm

      Gosh, that is awful…and the vibration sensation is one I am intimately familiar with. I don’t know of any LLMDs up by you, however, in addition to the above resources I mentioned in the blog post, Turn The Corner – a great Lyme disease foundation – will help you try to locate an LLMD near you…”Turn the Corner volunteers proudly answer inquiries from Lyme patients throughout the world and provide free, information about Lyme-Literate medical professionals in your area.” Here is the link

      http://turnthecorner.org/content/selection-proper-physicians

      And here is their email for inquiries:

      medicalinfo@turnthecorner.org

      My prayers are with you!

    • Jen C
      June 23, 2014 at 12:15 am

      Hi Johnny. I am very tired at the moment, so can’t write much, but I am wondering if you were able to find help for all of the horrible symptoms? I truly hope you are feeling better these days ;)

  7. August 23, 2011 at 2:40 am

    I NEED HELP FINDING A LYME DISEASE EXPERT IN DALLAS TEXAS. PLEASE POST A NAME OF A DOCTOR AS A GOODWILL. I DON’T KNOW WHY PEOPLE ARE KEEPING DOCTORS NAME SECRET. ITS NOT GOING TO HARM THEM BUT HARM MANY PEOPLE SEEKING KNOWLEDGE AND TREATMENT. INSURANCE JUST CANT GET UP AND JUST STOP OR THREATEN DOCTORS JUST LIKE THAT. FOR HEAVEN SAKE HELP PEOPLE WITH HTIS MINOR INFECTION TURNED INTO A LIFE LONG ILLNESS PLEASE. DONT WORRY ABOUT PRESS AND DOCTORS NAME BEING OUT IN PUBLIC.
    HELP OR JUST LOOK AT THOSE HELPLESS PEOPLG BLOWING THEIR MONEY AWAY TO FAKE DOCTORS.

    THANK YOU
    DALLAS TEXAS POLICE EMPLOYEE.

    • Danielle
      August 23, 2011 at 11:09 am

      Hi there,
      I am so sorry you have not been able to find a doctor in your area. I wish I knew of a Lyme literate doctor in Dallas, let alone Texas, that I could point you to. I think there used to be one near Austin that moved to another state. The only thing I can suggest is that you contact the above organizations and the forum Lymenet.org as they will provide you with any LLMDs that may be in your area or any that may be in TX or the surrounding states that I am unaware of.

      • Jamie
        November 12, 2013 at 6:27 am

        Good morning,
        I’m hoping you guys can provide me with some answers and hopefully some direction. I will give you a little history, I’m 32 years old originally from the upper eastern shore of MD in 1989 I acquired Lyme disease. I’ve been fine for most of my life participated in sports in high school, served active duty military and have birth to 3 beautiful children. The Navy moved me to Virginia which is where i now call home. Last month I was bit by another tic, due to my history I instantly freaked. My PCP calmed my fears and said just watch for a rash. About a week or so passes and i began to show symptoms I felt tired and achey, then notice a red ring at the site and another unusual mark on my arm. I contacted my PCP again ran an igg/igm that tested positive and started me on antibiotics. About 2 weeks into the meds they called me in for a western blot (this would determine if the infectious disease doctor would see me). Well he says my blot is negative so he will check me again in 3 months, but will put me on the books for his 1st available appointment (February 17th) just in case. Not really sure what to make of it all except my legs and elbows still hurt pretty bad and I’m exhausted the other symptoms I’m able to maintain but not sure for how long. After reading the message boards I do have some questions

        1. Should I be treated by an infectious disease specialist?
        2. With all the symptoms from lyme how is it treated, as a disease or by individual symptoms?
        3. Is this customary that I can’t get in front of a Dr only ordered labs and calls with nurses?
        4. What should I do?
        I’m quite miserable, and feeling quite hopeless

        • Judy Quinn
          March 4, 2014 at 8:04 pm

          I would either go to your local E.R. and insist you be admitted to the infectious disease department and/or go to any walk-in or your PCP and insist on a 30-day supply of Doxycline or you will sue for negligence and or malpractice. If you can’t get into Infectious disease make an appointment. Call every day and insist they admit you. The most reliable tests for Lyme disease and its co-infections are Fed-Ex’d overnight to a speciality lab in Palo Alto CA. It’s called IgenX. There are others, but that is who diagnosed my lyme. Many Infectious disease doctors phew phew their results. YOU ARE THE PATIENT PAYING THEM! INSIST ON SENDING THEM TO THIS LAB. YOU CAN CALL THEM FOR FORMS AND MORE INFO OR GOOGLE THEM. Take notes of all and everything and everyone including dates and names of doctors (recording on phone is good too) and threaten legal action if they do not treat you NOW. At this point, you most likely will need a pic line inserted and a month or more of a very strong anti-biotic called ROCEPHIN. Anyone out there who is bit by a tick of any kind, I highly recommend you immediately see a walk-in doc and demand a months supply of DOXYCLINE. By time you are diagnosed (local blood labs DO NOT DETECT IT NOR DOES WESTERN BLOT) you will have chronic lyme (like myself). Threaten LEGAL ACTION IF YOU ARE NOT GIVEN WHAT YOU WANT AND KEEP SEARCHING A DOC UNTIL HE GIVES YOU THE $4.00 anti-biotic. I wish I knew now what I did 10 years ago, I’d be a might wealthy woman and may not be disabled because of the IDIOT doctors (including neurologists I had the pleasure of dealing with for a week as an in-patient at a big hospital) who didn’t listen to my repeated words, “I got bit by something”. They made ALOT OF MONEY on their un-necessary brain imaging tests. I neither found a tick; no bulls-eye rash. I had a severe, unrelenting headache, fever, chills and when they resided I went cross-eyed. It was my eye doc who saw I had a 6th nerve palsy and got me to go see a neurologist. I spent 15 hrs. in the E.R. repeating the same thing from the student, residence on up to the Chief of the E.R. that “I got bit by something”. I was admitted at 3:00 a.m. and poked awake by the “goon squad” of student, residents and my attending neurologist at 7:00 a.m. each day; repeating the same thing over and over. I was wheeled down to their Neuro-Opthamologist who ordered a battery of brain imagining tests and chest x-ray (I knew they were looking for a blood clot they would not find). When all came back negative the attending neuro asked to do a spinal tap. “Go for it” was my response” 6 hrs. later he returns and says, “My, you have an awful high white blood count!!! You didn’t get bit by something did you?” I was immediately at the mercy of two phlebotomists taking 20 vials of blood. When I got home I called the records department every day (by now I knew I had Lyme from research) and was becoming postal. I fetched them before the neurologist did and there it was! LYME DISEASE. They did all/every test under the sun including DNA tests for conditions of all kinds. The neuro then told me it was now out of their hands and infectious disease would contact me. (NOT!) I found out they made an appointment for 2 months away and thats when I cut loose on some poor clerk and was admitted THAT day and hooked up to I.V. anti-biotics. I had a visit from 1 of the 2 representative/employees of the CDC of WV who looked at me and told me it didn’t exist in this area! I could go on and on but my point is: You HAVE to be your own advocate and INSIST on what you believe is wrong with you. Doctors are NOT THE GODS they think they are (I used to be a scrub nurse and have first hand insight as what the public will never know about some of those that shouldn’t ever have a scalpal in their hand, never mind practice medicine). It’s a BIG political/medical issue with the Pharmaceuticals and their lobbyists lining pockets of politicians and research hospitals that DON’T get federal funding if they support research and doctors that treat it. In bed with them are the FDA; doctors; medical institutions; the CDC etc….etc….LYME DISEASE IS AN EPIDEMIC IN EVERY STATE EXCEPT TWO. My Lyme disease doctor was recently told by the above treating hospital that she was no longer allowed to treat Lyme. She had a 3 month waiting list of Lyme patients with no-where to turn. RESEARCH all and everything you can. This epidemic is called the “GREAT IMITATOR” and imitates all/every disease. Ever notice how many people are walking around with Fibromyalgia? I’d bet my life that most of them (if properly tested) have Lyme. The doctors have to get paid, so their symptoms most likely match and the code given to the insurance company pays. This disease is a BIG MONEY MAKER. RESEARCH, READ Jenna’s Blog; READ,READ.READ and SUE those @$@@#@’s so it makes a point to others who don’t look deeper. Me? It crossed my blood brain barrier so I have (in addition to Epstein-Barr virus and severe Rheumatoid Arthritis) cardiac issues; depression; brain dead and whatever was left of my adrenals is gone. My fighting nature is zip. I’m probably going to find a Naturopath and F&&ck the MEDICAL INDUSTRY MONEY MONGERS!

          • Bobbie
            April 10, 2014 at 11:17 pm

            I took the drugs you mentioned and I still have some symptoms.

          • John
            June 13, 2014 at 10:32 am

            That’s terrible. I only quit pittying myself for tingling arms, achy back, insomnia and fatique, because people around me were also tired and achy. Reading all this just makes me think again that I might also have been infected. I’m 39 now but I started feeling like this since I was a teenager. I remember being bit by a tick couple of times. This really makes me think that I should not be feeling as I feel for over 20 years. About 10 years ago I went to some local doctor with my symptoms (including tingling face, exhaustion etc) and you know what he told me? That I’m getting old :-) Before that and after that I ended up in E.R. Because I thought I had an heart attack. My heart beating irregularly and I was exhausted and a nerve wrack. They told me I have pannic attack and put me on bunch of depression pills that almost killed me. Basically they told me I was a psycho and it’s all in my head. Recently I mostly suffer from tremendous muscle stiffness and nerve pain. Some shooting pain here and there. Cold sweats, sleeplessness, fatigue, tingling arms, sometimes I can’t move properly, i have this ringing in my ears. All these things get worse with physical activity and because I’m about sports it’s tough. Getting dizzy in a gym is really emberrassing. I have days when I feel like if I make another move I’ll die. Like litterally I have to to pee and I’m thinking if I make it ali e to the bathroom :-) Years back I gave up the search for answers because it seamed like I could have hundred different diseases but now I’m thinking why should I have them when I come from totally healthy family, why should I have heart problems or rheumatitis? Is it this Lyme disease? Really? live in NC and re-thinking my situation. Just don’t know where to start. It’s all so confusing. Good day.

        • Jen C
          June 23, 2014 at 12:25 am

          I wish I had found this site earlier. I am very tired at the moment, but can explain a lot about the doctor situation. I have dealt with wonderful and absolutely horrible doctors during each illness including cancer, chronic Lyme, and now a systemic fungal infection. The one thing I will say now is DO NOT RELY ON THE INFECTIOUS DISEASE DOCTOR!!! This is extremely important. My mother, who is a medical doctor herself, can’t even get one to consider anything other than what is already implanted in their minds. I have seen 3 ID docs in 2 different states. My skull is now fractured and I’m losing sight in my one remaining eye and yet they refuse to treat me for the fungal infection it is so clear I have. They seem to mainly treat people with HIV/AIDS or those coming from another country with an unexplained illness. I hope you have found help. I am not sure how to leave contact info. I am quite ill and often can’t reply to e-mails, etc. but I will check back to see if you replied to my response.

      • Jamie
        November 12, 2013 at 6:30 am

        My emails to turn the corner are being sent back undeliverable

    • Gani
      April 29, 2012 at 3:48 pm

      I TOTALLY AGREE WITH DALLAS TEXAS POLICE EMPLOYEE!! WHY ARE PEOPLE KEEPING SECRET THE NAMES OF DOCTORS WHO MAY BE THE ONLY ONE TO GET THAT PERSON OUT OF MISERY. MY SYMPTOMS HAVE BEEN SO BAD THE PAST MONTH, I HAVE HAD THE THOUGHT OF KILLING MYSELF IF I DONT GET HELP SOON!!! I live in Danville Virginia and the healthcare here STINKS!! been to two other places out of town, and TESTED POSITIVE on ELISA TEST at one of these out of town hospitals and they still are not treating me!!! WHAT AM I SUPPOSE TO DO? I had plans to move this summer to TEXAS where my daughter and family are, and i am too sick to get out of bed, much less pack to move! THANKS FOR ANY SUGGESTIONS!! ANNETTE

      • JasonMChicago
        April 29, 2012 at 7:08 pm

        Annette,

        This is a tough condition. I have to admit I’m very tenacious and aggressive and it even gets to me somedays. I’ve been going 4 months of alternative treatments and have seen good improvements.

        While I looked for a doctor I did the following:

        - I took high doses of Vitamin C 50 GRAMS (IV is best but if I couldn’t find that then I just bought “sodium ascorbate” or “calcium ascorbate” (these are easier on the stomach) and did it 1-2 times a week. This helps build the connective tissue and collagen that Lyme+ is interfering with.

        - I take mega doses of probiotics 50-150 Billion daily. I got a good quality one from whole foods or online at iherb.com

        - I take aloe vera for the GI track

        - I do many things to detox (google these there are many things you can do and I did them all DAILY. Every single day).

        - I take a bunch of immune boosting supplements. Also changed my diet no sugar (none not even fruit), no carbs (check everything… things like carrots have carbs so you have to be careful), no dairy.

        - Only after months and months of these things did I even attempt to kill bacteria/pathogens.

        IT DIDN’T HAPPEN OVERNIGHT BUT I DID SEE IMPROVEMENTS. I have still a ways to go but I have to admit it takes commitment every day.

        Best,
        JasonM

        • January green
          February 16, 2013 at 8:51 pm

          Hi , I read Jason’s letter and am impressed with his discipline. I make a great effort to eat really well but I know with this condition one needs to be strict. I had Chrons disease when I was younger ,Steroids and various meds caused thyroid problems, came off all drugs 10 years ago then was told I had candida many infections followed then bad apartment environments. I got bit by a spider that caused my left arm to swell up for 6 months. Also notices quarter sized red circles on legs and bug bites that cause me to have sinus and blader infections, I get anemic,aches, tired,insomnia. Etc
          My whole life I have had illness but nothing tops these bites and my reactions. I saw an immunologist and said all this has causesd my immune to break down now I am allergic to cats , dogs ,dust ,etc
          I have had two tests done for lymes disease but both have come back negative. but I think it may be lymes or something related.
          I am wondering what type of alternative docter did Jason see .

          • Kiwi
            July 27, 2013 at 7:56 pm

            Stop eating Genetically modified foods and your Crohns should go away.

      • Judy
        March 4, 2014 at 8:22 pm

        Get into a reputable hospital (admitted) that has infectious disease department and insist on the anti-biotics first. Tell them you want your blood tested and sent to Igenx in Palo Alto, CA and tested for Lyme and all it’s co-infections. Threaten your doctor to put you on Doxycline for now (twice day) or you’ll sue him for negligence (and do it!) until you get to a Llyme Literate Doctor. Read “Jenna’s blog” and any other site concerning Lyme. There are plenty of people in your shoes or worse that will support you and point you in the right direction. Killing yourself doesn’t solve anything but your pain, believe me, I’ve been there. Fight for yourself and everyone else out there in our position. THIS BIG GOVERNMENT COVERUP WILL BE UNCOVERED if we keep fighting for ourselves and others. DON’T GIVE UP! I’m fighting this all by myself in bum-f***k egypt WV. My husband died (48 yrs. old) and only child moved to TX. All my relatives live in New England. I live alone and am on disability only to be treated with band-aid meds. I just slept for 3 days (without any medication to help) because I hurt so bad and am depressed and feeling like you. I am going to try several other routes; driving a LONG way to a Lyme Literate doctor or going the Natural way. I need my adrenaline back to fight like I was able to when I was well. WORD OF ADVICE: Stay away from sugar!!! Lyme bacteria thrive on anything with sugar in it (just about everything has sugar in it) and get on a good vitamin regime esp. Vit. B’s and C (in high dose). until you get advice from a lyme literate specialist whether it be a naturopath (an M.D. with 4 extra years of schooling) or a Lyme Literate Physician. Meantime demand that Doxy!

      • Jen C
        June 23, 2014 at 12:36 am

        I am so sorry to hear what you are going through. It is awful to be stuck in bed watching your life pass by while you struggle to find someone to help. It should be so simple… I know that here in NC, doctor’s will lose their right to practice medicine if they treat patients for chronic Lyme disease. I received 3 weeks of IV antibiotics in New Hanover hospital. I was still extremely ill when they were ready to pull my PICC line, but no doctor would risk the repercussions to continue my treatment until I found one of the hidden Lyme literate doctors. Dr. Jemsek (or Jensek) is now in DC. He lost his medical license in NC and SC for treating people suffering from chronic Lyme disease. I hope you have found help.

    • Kiwi
      July 27, 2013 at 7:52 pm

      The Texas Board of Medical examiners has prosecuted many doctors treating chemical injury and many Lyme’s doctors have been run out of their state by their medical boards (nc), so please understand that until the politics of Lymes disease changes, be grateful for the surveilled internet so that you can still get help from these organizations. Newbies do not know these truths.

  8. Robin
    December 2, 2011 at 6:51 pm

    Does anyone know of a Lyme’s literate doctor in the north central Minnesota area? Lyme’s Assoc. info proved to be incorrect as the doctors have been threatened and no longer treat this disease. This is for my sister, please help!!!

  9. Danielle
    December 2, 2011 at 6:57 pm

    If you do not find an LLMD through the above resources, these people may be able to point you in the right direction for your sister.

    Minnesota Lymefighter’s Advocacy ~ an Affiliate of the
    “Lyme Disease United Coalition”

    EMAIL: info@lymefighters.org

  10. Winnie
    February 15, 2012 at 6:28 pm

    I was treated for Lymes Disease in the Summer of 2010 (21 days of Doxy). But I have a sinus infection now, and today all of my original Lymes symptoms are back. Do you know the closest LLMD to Charleston, SC?

    Thanks for your help.

    • Danielle
      February 17, 2012 at 1:51 pm

      Hi Winnie!
      I don’t know of an LLMD close by to you, but if you contact the above resources they should point you in the right direction!
      Wishing you the best in health,
      Danielle

  11. Paula
    March 6, 2012 at 3:22 pm

    I am looking for a LLMD near New Jersey, New York or Pennsylvania. I have had chronic lyme for 25 years. done antibiotics, herbal, hyperbolic and more. I now would like to work with a doctor who can guide me in Rife machine use, mercury detox etc. Any info would be helpful. thank you , Paula

  12. March 6, 2012 at 3:26 pm

    looking for a LLMD who can guide me with Rife , mercury detox. Have tried all the traditional approaches. NY, NJ or PA area are fine. Thanks for whatever help can be offered. Paula

    • Danielle
      March 7, 2012 at 1:34 pm

      Hi Paula,
      The doctors I know of that are open to rife in the area are Dr. Horowitz (up to a yr to get in I believe) and a Dr. Thomas Moorcroft in CT (recommended by my LLMD who took a medical leave) http://healthprofs.com/cam/name/Thomas_A_Moorcroft_DO_Glastonbury_Connecticut_513548

      http://originsofhealth.com/

      I have also heard of a Dr. Edward Yost in NY, but not 100% sure if he deals with rife and mercury detox.

      Wishing you the best in health,
      Danielle

      • JasonMChicago
        March 7, 2012 at 9:27 pm

        Paula…. I’ve heard about Dr. Horowitz all the way here in Chicago. My alternative health care person mentioned today that her other Lyme patient’s doctor is Dr. Horowitz. I asked where he was located and she said DC! The patient flies to DC and they have monthly phone conversations. I don’t know anything about his approach but if it involves a holistic approach may be worth seeing.

    • Sheila
      August 19, 2013 at 2:20 am

      Hi Paula,

      I’m wondering if you found a doctor who’s open to the Rife machine? I also have Lyme and mercury toxicity and am looking for the same doctor you were seeking.

      Please let me know.

      Thanks!
      Sheila

  13. Amy
    May 31, 2012 at 3:18 pm

    I have been diagnosed with Lyme Disease approximately one two years ago. I remember when this same type of back pain that I experience started. It was almost 10 years ago during the end of my first trimester of pregnancy. I thought the pain was coming from the weight gain but I’ve recently lost 20 pounds almost taking back to my pre-pregnancy weight so this cant be the reason for the sever constant pain. Its horrible and no one realizes the severity of it. I’v taken the first dose of oral antibiotics but never finished following up with my Doctor due to not having insurance any longer. The only thing that has seemed to help me somewhat is Tramadol. This works better than other narcotics which seems a litte strange. I’ve tryed everything and nothing helps. I have no energy and I can’t continue to feel like this. I’m only 26 and I’m so phyically and mentally weak all of the time. Somebody please help me with some advice.

    • Danielle
      June 6, 2012 at 11:10 am

      Hi Amy, If you contact the above organizations, they may know of doctors who will treat for no or less money. All the best in health, Danielle. There is a doctor in Florida named Dr Cichon that treats people who are strapped financially I believe http://www.clinicofangels.org/Bio_DrCichon.htm

      All the best in health,
      Danielle

  14. Gail Pueschel
    June 15, 2012 at 4:15 pm

    We are looking for a LLMD that takes Cigna in norther Virginia
    And also 1 in providence rhode island
    Can you help us?

    • September 30, 2012 at 10:26 pm

      I am a licensed professional counselor working with a client who has resently been diagnosed with Lymes (probably has had it for quite a while).
      She is looking for a LLMD in Northern Virginia also. Did you find one that takes Cigna or any other insurance? Any suggetions?

      Thank you for your help.
      Donna
      703-869-3589

  15. April Carter
    June 19, 2012 at 8:09 pm

    I am looking for a LLMD in PA…My husband discovered our dog had lyme disease, we got him treated with ease, but when my husband was tested and came back positive for lyme disease, we are not having any luck to finding a doctor who will take my insurance, they want cash up front and we dont have the amount they want. I am seeking a LLMD in PA or MD? any advise would be apriechiated… Thank you!

    • Maria
      July 29, 2012 at 7:48 am

      Hi April, I live in PA and see a Lyme Doctor in Hamburg. You are correct as none of the lyme doctors take any insurance for treatments and it is all OOP. No insurance means no hassle from insurance companies hense, they are 75% safe from loosing their medical license. It is a terrible thing to make patients pay for care that is so needed. I have had lyme for over 20 years and just got dx last August 2011. I have been on IM injections and oral antibiotics for almost 1 year and only feel about 50% better. I also have spent almost $30,000,00 for all the treatments and oral meds that are not covered under my insurance. Plus, insurance companies feel that all this treatment is considered experimental and will not be covered anyway. NIH and CDC need to change their views on treatments and then, this will force the hand for insurance companies to pay. Good luck … And yes, I have now run out of money to continue with my treatments. I had to cancel my August appt because I could not pay. These lyme docs will not continue to have patients that can not pay either. So, we lyme patients are stuck….. the system does not want to assist us with good quality doctors and the LLMD that are out there want the big bucks to treat and when anyone runs out of money, well, its just too bad for them. Hum……… I guess the oath to treat the sick really should be the oath to treat the wealthy sick!!!

      • June 23, 2013 at 7:52 pm

        You said: “NIH and CDC need to change their views on treatments and then, this will force the hand for insurance companies to pay.”

        I think the National Institutes of Health and Centers for Disease Contol need to be exterminated. They are nothing but “Worthless eaters”.

      • Ann Marie
        November 19, 2013 at 2:09 pm

        Maria, What Doc is in Hamburg? I am close to the area and having all kinds of symptoms I was going to get a lung doc, Heart doc and eye doc but better try to get the Lyme tests first. Thanks, Ann Marie

    • Kim J.
      October 20, 2012 at 2:55 am

      April, I also have not been to an llmd and have been sick with make sense of chronic lyme after 11 years of dealing with bizaree ( some contant and some change weekly or move around). I live in northern va and can’t get over having to pay a LLMD my kids college funds when I have good insurance. This is just such a controversial and ignored and serious disease so I still can’t understand what is going on. I do know of some Dr’s and if you want to message me offline, I can tell you about some.
      Kim_c_jackson@Yahoo.com ( stay at home wife and mom of 2 kids and a dog)

  16. chasity
    July 31, 2012 at 5:31 pm

    Hi,
    i am looking for a LLMD in or around Memphis / Nashville Tennessee. I live in a small town in between, and we are willing to travel. It is such guarded information, and we really are desperate any information would help. Thank you and God Bless

    • Kim
      May 26, 2013 at 6:56 pm

      Did you find an LLMD around Memphis or Nashville? I just learned that there is one in Franklin, TN – south of Nashville.

      • Melissa
        June 30, 2014 at 2:30 pm

        Who is the Dr in Franklin?

  17. tami
    August 8, 2012 at 10:22 pm

    hello, i live in reno, nv and i have been looking for a good doctor that can help me with ALL of my chronic lyme issues. i was bitten in 1993 but not diagnosed for a couple of years. i did have the bullseye rash…but i didnt know what it was. i finally found a doctor in napa, ca who diagnosed me but i do not know where he is now. i was put on soc sec disability and was on it for 10 years. i was dropped in 2008….and i STILL cannot get a reason. before i was dropped back in 97 i was diagnosed with narcolepsy…extreme narcolepsy. i have SO MANY things wrong with me now but i am still fighting to get back on soc sec. it is exhausting. please help me before i get worse. thank you

    • Debbie
      August 31, 2013 at 4:43 pm

      Tami, when you were first diagnosed what did they do as far as treatment? I haven’t been tested but was diagnosed with fibromyalgia 20 years ago. Came across an article last week totally by accident that makes me think I should be tested. Will the test show up positive after years? Thanks

  18. Tessa Rubenstein
    August 9, 2012 at 11:07 pm

    Are there any Lyme Disease specialists in Israel…how does one obtain a referral?

  19. Raymond M Kirby Sr.
    August 25, 2012 at 1:13 pm

    I am 60 days into Lyme treatment and would nlike the address of a LLMD in the Hudson/Marlboro area of Massachusetts.
    Thank you.

    • WW
      August 16, 2013 at 9:08 pm

      Did you find a doc? Have you read or heard of the book, Out of the Woods? The author lives in Peterborough (sp?), NH. Her name is Katina Makris… Google her if you haven’t found a good doc. She claims to be recovered from Lyme. Best of luck, WW

  20. Lee
    September 4, 2012 at 4:50 pm

    Looking for Lyme disease specialist near Atlantic cityarea

  21. Pauline
    September 13, 2012 at 8:16 pm

    I was recently diagnosed with Lyme and on my second course of Doxycyline. Very little improvements and noticing more symptoms. My Doc seems confident that all will be fine once this course of antibiotics is finished. I’m not as certain, and with new symptoms appearing I am more and more concerned. I am having trouble finding a LLMD in my area, if anyone is able to help I would greatly appreciate it.

    I live near Lincoln/Omaha, Nebraska.

    Thank You!

    • Anthony
      April 24, 2013 at 8:21 pm

      Hey Pauline, what Dr. did you see to initially get tested. I live in the Omaha area as well.

    • Debbie
      August 31, 2013 at 4:46 pm

      Pauline, what is your course of treatment and how long have you had Lymes?

  22. Pat
    September 15, 2012 at 11:29 am

    I am having a hard time finding a LLMD . I have been on the sights you recommend but I haven’t gotten any responses. I live in Hampton Roads area- Norfolk, Virginia Beach, Portsmouth, Cheasapeake.

  23. Amy Masser
    September 24, 2012 at 10:37 pm

    Does anyone know a Lyme-aware physician on the west coast?

  24. clarissa pinske
    September 24, 2012 at 11:46 pm

    I am very sick from the tick bourne parasite Babesia. I am seeking a doctor in the minnesota area who will treat me for this. I got it diagnosed from a scottsdale arizona clinic but they wont treat me for it here. I keep getting sicker and sicker.

    • Beth
      January 28, 2013 at 10:22 pm

      Mayo clinic

  25. Nicole
    September 25, 2012 at 10:19 pm

    I’m suffering from chronic lymes diease and looking for a doctor in the Minneapolis area of Minnesota. I would greatly appreciate any information you can give me.

    I keep testing positive for the DNA of the bugs and borderline on the markers.

    Thank you!!!!!!

    Nicole

  26. JasonMChicago
    September 26, 2012 at 12:27 pm

    Google “integrated health care winona” there is someone there that can help you.

  27. Doug
    October 9, 2012 at 5:13 am

    Look for a Lyme Disease Literate Physician in the DFW area. Any suggestions?
    Thank You,
    Doug

  28. Darlene Shapiro
    October 13, 2012 at 1:38 pm

    My 14 year old son has chronic lyme disease & it has triggered a heart condition (POTS). He desperately needs a LLMD. We live in CT but are willing to travel. Contacted Dr. Horowitz (Hyde park, NY) but he is not taking any new patients. Does anyone know of an LLMD in the tri-state area???? Please help. My son has not been to school in months.

    • Kiwi
      July 27, 2013 at 8:08 pm

      POTS is not a heart condition oer se and is really neurally mediated hypotension. An environmental medicine doctor can help with that aspect. It basically means they ave too low blood pressure because there are not enough adrenal hormones secreted to maintain enough fluid n the blood to maintain healthy blood pressure. You can faint and the rest of the time you just feel tired all the darned time.
      Traditional route: fluorinef or cortisol
      Non traditional: adrenal glandulars from animals

  29. Peggy C.
    October 16, 2012 at 5:09 pm

    I became very ill with a flu-like disease in 1985. One of the symptoms was white spots in the mouth and, as i recall, they were painful. I was subsequently tested for Lyme disease in 1987 at Georgetown Univ. Hosp.: The first two results were positive but the third was negative. I have just finished reading Brandilyn Collins’ book, OVER THE EDGE, and am wondering if I should be tested again. I am so ill that I can no longer work; some days I can’t even get dressed.

    Could you please suggest a doctor in my general area? I am now in 25427 but used to go to Dr. Beals in DC.

    Thanks!

    • Kim Jack
      October 20, 2012 at 3:15 am

      Peggy, sorry to hear your story but it sounds a bit like mine except my symptoms that i am awere of really showed up in 1998 roughly. I can relate to the flu feeling ( get fevers daily and chronic muscle/bone pain) I did not get tested until years after the fact but when pregnant ( back to back miscarriages) Dr’s noticed something was not right and kept telling me 11 years ago I needed to go see the Inf Dis Dr’s and none were sure what the deal was and the fevers were puzzling. Anyway, not sure if your looking for LLMD in DC but I do know of some and can give you names of ones who I have had several friends/ group members go to. I have not been to one as i am receiving treatment on oral anti and also monthly ivig gamma globulin. You caught my attention when you mentioned the spots in the mough, just curious as I get that too when I am sick or flareup. Just curious what types of spots and don’t mean to pry but you sound like me. I get cancker sores on tongue and tonsils and obvioulsly viral and my tongue also gets swollen, painful or thrush type too. I was curious if this has to deal with lyme or another virus? I take so many meds or summplents when i get this but usaully have to ride it out for 10 days. I can tell you of some Dr’s I heard are good. I just can’t afford them if they still are private pay.

      • Debbie
        August 31, 2013 at 4:56 pm

        OMG I also get white spots in my mouth, have been treated for thrush twice and have what they call”river tongue”. My tongue hurts and becomes swollen so that the crease down the middle can’t be seen due to the swelling. It also appears as if my taste buds are irritated. Anyone else experiencing this? Thanks

        • missy
          October 24, 2013 at 12:28 pm

          A good natural remedy for thrush is a tsp of baking soda diluted in 8oz of water. Gargle it a couple times a day. It works better than antibiotics. I did it with both my daughters when they got thrush.

  30. Dana Tarkowska
    October 22, 2012 at 8:30 am

    Does anbody know any source of lyme disease experts for central Europe?

  31. Joey
    October 23, 2012 at 2:18 am

    I have had air hunger for the past 10 months. Well it started out as that and then developed into fibromyalgia symptoms (terrible fatigue and body aches). This is screwing up my life so bad. I need to be tested for lyme disease as I need to find out what is causing this. Im only 22 and this is really overwhelming as I have been healthy my whole life. Anyone know of a good doctor in colorado?

    • sandy
      June 17, 2013 at 1:23 pm

      Babesia infection. Google it; as well as Lyme Coinfection. Dr. Marty Ross is in Seattle. Not sure of a Co. lyme literate dr. but many websites will recommend lldr’s.
      You need antibiotics (hopefully you are on them now) plus lots of supplements. Dr. Burrascano and Buhner are both authors of numerous works on the subject too.
      Good luck!!

  32. October 28, 2012 at 9:53 am

    Hi there to all, the contents existing at this web
    page are in fact amazing for people knowledge, well, keep up
    the good work fellows.

  33. Christine Patrick
    February 9, 2013 at 12:35 pm

    I am looking for a Lyme Literate MD in Southern NJ. My zipcode is 08090. 20 minutes south of Philly.

    • Bernadette
      March 10, 2013 at 10:02 am

      Dr. Kristine Gedroic is the brilliant! She is in Morristown, NJ. PLease trust me, she is worth the monthly trip. You WILL get better w her!!

  34. Sally Riggs
    February 10, 2013 at 3:23 pm

    Looking for LLMD in St. Louis mo. 63122 is my zip. Thank you!

  35. Hillary
    February 21, 2013 at 8:37 pm

    Hi! I am looking for an LLMD anywhere in the Midwest. I have co-infections as well and would like to find a dr. Willing to treat these as well. I will travel. If you have had a great experience wih your LLMD and the protocol could you please send any details my way?

    I have seen 2 LLMD’s thus far an the one I love may not be practicing in a few months.

    Thanks!

  36. Lauren
    February 27, 2013 at 10:57 am

    Humera Malik, MD is a fabulous, highly regarded Lyme Literate MD (LLMD) who is also known for successfully treating fibromyalgia and chronic fatigue syndrome. She is an active ILADS member, who sees patients from all over (especially the Mid-Atlantic region), at Simplicity Urgent and Wellness Care in Arlington, VA (Northern Virginia suburb of DC). http://bit.ly/11uAHbZ

    • Michael
      February 28, 2013 at 3:27 pm

      Dr. Malik is an exceptional DC Metro/Northern Virgina based LLMD, having been a patient of hers for the past few years. In fact, I have referred her to my extended family, close friends, and work colleagues for Lyme, fibromyalgia, CFS, and wellness. Their personal feedback has been nothing but positive about her. By the way, she used to practice in Reston and Fairfax, but is now in Arlington.

    • Louise
      September 12, 2013 at 5:41 pm

      I am a patient of Dr. Malik for Lyme and she is very good. It only took one week to get an appointment, unlike many of the other LLMD’s in the DC area, which can take months. She is in Arlington.

  37. Dolores
    April 8, 2013 at 12:23 pm

    I need a doctor versed in Lyme Disease diagnosis and treatment in the Memphis, TN/ North Mississippi area.

    • Kim
      May 26, 2013 at 6:57 pm

      If you find one in this area, please let me know — I am in the Memphis area. I just learned of one in Franklin, TN (south of Nashville).

      • joyce
        July 5, 2013 at 12:08 pm

        Who is the Franklin dr that treats lyme

      • Lex
        December 20, 2013 at 9:30 pm

        Kim,
        I’m interested to know about the dr in Franklin. Have you been to them? Any info would help! evacindustryATgmailDOTcom

  38. Teri
    April 10, 2013 at 6:20 pm

    I have been ill for 28 years and recently found out about and tested for Lymes. I need a Lyme Literate Doctor in the South Bend, Indiana area/ or Three Rivers, Michigan area or closeby.
    I appreciate any assistance or ideas/suggestions with this dagnosis/treatment.

    So tired of suffering and losing friends, Teri

    • liz
      August 5, 2013 at 10:46 pm

      Hi my name is Liz. I live in mishawaka and I am.Suffering terrible. Would love to talk to you. Have neuro symptoms and a positive Elisa test. Need dr who will treat me! We can share info and help each other! 574 302 0656

      • nick
        February 10, 2014 at 4:44 pm

        I also live in the same area as you. Was wondering if you found anyone locally to treat lyme. LLMD. I am currently seeing one in Grand rapids Mi, but would like to have one closer. My doc in GR has definitely helped. Just trying to stay close to home. I think I may have found one in Elkhart, but haven’t found any reviews or info on him. Thanks hope to hear back.

  39. Anthony
    April 24, 2013 at 8:16 pm

    Hi, im looking for a Lyme Literate Dr. near Omaha, NE or Lincoln, NE. I developed pretty serious memory, cognitive and neurological issues out of the blue. 2 months before this started I was bit by a tick, though I never really mentioned this to Dr.s nor did I even pay attention for the rash. The area I was in seemed to be common for ticks and i’ve had several people mention getting tested. Though I have no idea where to start. Things seem to go into remission but the overall condition is getting worse and no Dr has had any real solution.

  40. Mason Kuhn
    April 28, 2013 at 8:33 pm

    Hi Danielle,

    Long time no talk. I hope you are well. Life is busy for me. I presented at ILADS last October and got accepted into a doctoral program in Ed. Psych. I plan to do another Lyme/Autism study.

    I was wondering if you could help me out. A family contacted me and is looking for a LLMD in New Jersey. Their son has regressive autism and they just found out he has Lyme.

    I know the midwest but am clueless about the North East. I know Jones would be the best but he is in CT.

    Thanks,

    Mason

    • Kiwi
      July 27, 2013 at 8:13 pm

      The Lyme Autism Foundation would have this answer. Go to their website or email them. Don’t reinvent the wheel. It is already there.

  41. Cathy
    May 9, 2013 at 2:33 pm

    I’m trying to find a lyme disease specialis near the Boca Raton, Florida area. I’ve had it for 25 years and now I’m having seizures. I can’t drive so please help. Thank you.

  42. Alice
    May 13, 2013 at 7:47 am

    Do you know of a LLMD in Hampton Roads area?Williamsburg?Richmond? Thanks

  43. Jeff Carlson
    May 20, 2013 at 12:33 pm

    We are desperate!! My son was diagnosed in early September with intermediate uveitis. At that point he was put on 80mg of prednisone. A few months later he started taking 3g of mycophenolate (cellcept). A few months ago they started weening him done off of the prednisone and somewhere around 15 to 5mg he started having troubles again. He started seeing floaters and the doctor put him right back up to 80mg of prednisone and he is starting to take cyclosporine. We are getting desperate to save his eye sight. To complicate matters in February he had a positive test come back for Lyme disease. None of his doctors are open to the fact that the Lymes may be what is causing his eye situation. What should we do? Time is running out. I want to know who the best lyme literate doctor there is period. I live in Waterloo, Iowa but am willing to go anywhere.

    • Jeff Carlson
      June 7, 2013 at 10:17 am

      Is anyone going to respond to this?

      • sandy
        June 17, 2013 at 1:31 pm

        My daughter(17 now) dx at 4 with uveitis and JRA. How old is your son? We’ve tried it all and finally she’s had cataracts out of both eyes.Finally made the connection and did IGENEX test for Lyme and she had 2 bands pos and 2 band indeterminate which to a Lyme literate Dr she has lyme. So we go now to a naturopath and she is taking 2 herbal antibiotics plus many supplements and is doing ok. This program only 2 mo. old but determined to get to the bottom of it. I think this is cause of her iritis. Your son tested positive so you MUST keep looking till you find someone willing to treat him properly. A Naturopath may be a good start, the herbals Cats Claw and Banderol have been proven spirochete killers (Sapi paper) and you can buy them online from Naturemedix. Write back if you want more info. Good luck!!

      • sandy
        June 17, 2013 at 1:39 pm

        I also forgot to mention an herb specific for ocular lyme related problems: Stephania Tetranda, which you can get from Green Dragon botanicals in Vermont online. Drops that you add to water. Not much taste, you need 90 drops a day but you work up to that. Use it under a Dr.s care of course. I wish I had known about it years ago for my daughter!

      • June 23, 2013 at 8:02 pm

        Hey Jeff. I have lyme’s too, and it’s no joke. Please call Dr. Helen Odland in St. Paul. She also has an office in MPLS. The last time I called she was no longer taking new patients, because they’re currently swamped. She works with children allot, so you may have a better chance of getting in. Also ask her if she has referals to other lyme Dr.’s as there are allot of people getting this.

      • Melanie Allen
        August 29, 2013 at 2:20 pm

        Try Dr. Richard I. Horowitz at the Hudson Valley Healing Arts Center in NY. He may be able to help. Or try Dr. Bernard Raxlen in NYC. Don’t give up!

    • Abe
      October 2, 2013 at 7:15 pm

      I am wondering how is ur son doing?
      Were u able to find a doctor and where and who?
      What did u do to save his eye sight?
      I am also desperate .. Please help me

    • Abe
      October 2, 2013 at 7:17 pm

      I am wondering how is ur son doing?
      Were u able to find a doctor and where and who?
      What did u do to save his eye sight?
      I am also desperate .. Please help me

    • Judy
      March 4, 2014 at 8:43 pm

      I’m really sorry about what you are going through and also your poor son. Read the blogs mentioned above to find a Lyme Literate Doctor or get him into the Infectious Disease Dept. of a good hospital immediately and onto anti-biotics. Any kind of steroids i.e. prednisone are really bad for people with Lyme as they stop your immune system from doing its job and the Lyme come out of their hiding spots and multiply and attack inside your body at random; causing MORE issues. Scream out loud to doctors that you want your son treated with anti-biotics NOW! GET HIM IN TO INFECTIOUS DISEASE AND SCREAM AT THEM WHILE YOU WAIT FOR THE BLOOD TEST RESULTS. THREATEN LITIGATION! IT’S THE ONLY THING THAT WILL OPEN THEIR EARS!

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  45. May 30, 2013 at 10:32 am

    I have been dealing with all aspects of co-infected tick illness for eight years now. MN is completely clueless and indifferent to my case, Mayo clinic even told me I had no lyme, until I traveled to dr. Waisbren in Milwaukee, not only confirmed co-infect, but wrote up a treatment of introveneous antibiotics, which I brought back to MN, where no docs would administer the treatment for three years I shopped for a doc. finally,got the treatment, herxed and did 1year of oral doxy, flagyl; ketec. It worked for awhile, but now I’m left with new and more varied symptoms…major fatigue, cold sweats.chric diarrhea,blurred vision, loss of brain functions,neurological prblems. Als, terrible skin eating ulcers, possibly Morgellans disease. I’m losing my positive attitude, due to politics and a path to leading a more normal life. It’s hard to believe how closed the medical community in north MN is to any claims of chrnic lyme and am especially hurt by the 10 day treatment of doxy when 1st diagnosed. 100 mg a day in the beginning, should have been treated for 45 days and I wouldn’t be in this hell. gdaleheldt@hotmail.com HELP ME1

    • Tammy
      June 17, 2014 at 3:07 pm

      Dale – I read your post and I am sorry to hear about your condition. I am writing in hopes you will share your experience and help my daughter. I live in St. Paul. My 10-year girl got a EM Rash (bull-eyes) went to the Children’s they got her a 14-day Doxy. I read all over the internet and hear that is not long enough. No luck finding a LLMD yet. Went to see our pediatrian she gave another 14 day of Doxy. You were saying in your post you wish you had a longer period of Abx (45 days). Can you shed some light on that? Have you found a doctor you would recommend? We think we caught it early (well never sure this was her FIRST bite) and from what I’ve read so far, early detection/treatment we have a good chance hopefully eradicate the Bb before it takes hold. Time seems to be of essense to us to get the ‘right’ treatment. Can you help us? A concerned mom.

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  47. Melanie
    June 22, 2013 at 1:07 pm

    Desperately looking for a LLMD in St Louis, MO area. Can anyone help me?

  48. Scott Schaffer
    July 1, 2013 at 10:35 am

    Desperately need to find llmd in stl mo area.
    Very very sick. Have been bit three times in past year but no symptoms until after third bite.

  49. Lorraine Berger
    July 14, 2013 at 4:39 pm

    Can anyone please recommend a LLMD in and around Northern Western Massachusetts? many thanks

    • Lynne
      July 29, 2013 at 9:55 pm

      Lorraine Berger did you get any replies to your search for LLMD’s near Northern Western MA? I am in the Western Ma area looking for the same.

  50. Jared D.
    July 23, 2013 at 3:19 pm

    Hello All, this is a wonderful site!

    Besides Dr. Waisbren in Milwaukee, does anybody have a list of physicians in the Wisconsin/Illinois area? I’m helping my girlfriend through her late-stage Lyme. Thanks!

  51. Carolyn
    July 25, 2013 at 10:37 pm

    Looking for a Lyme disease specialist in Or close to Charleston, West Virginia.

  52. Virginia
    July 28, 2013 at 9:35 pm

    I need help finding a Lyme-literate medical professional in the East Bay (San Francisco, California area). Could anyone help?

  53. Sandy
    August 2, 2013 at 12:41 am

    Looking for a lyme disease specialist in Colorado. Have tried all the medical recommendations with no
    relief. Thanks for any referrals.

  54. sarah
    August 12, 2013 at 10:06 pm

    I have been sick on and off since a tick bite in November. I have had a chronic pericardial effusion since March and just tested positive for IGM band 23 on western blot. My joints hurt on and off and I have never been so tired. I am an athlete and now one workout crushes me. I need a good LYme doc in southern MD or WAshington dc that takes insurance.

  55. Nikki
    August 13, 2013 at 8:33 pm

    Looking for a lyme’s specialist in Maine for my husband please any info would be helpful.

    • Albert Lymeman
      August 28, 2013 at 9:38 pm

      Nikki,

      There is a Dr. Mulcahy in Kenebunk Maine that one of my contacts is seeing. I personally don’t know anything about him, but was told he knows the coinfections. treats the whole patient, and uses both standard testing and clinical evaluation for diagnosis, and a combination of standard meds plus holistic herbs for treatment.

      Good luck,

  56. Dar Tiffany
    August 14, 2013 at 7:27 pm

    I am currently living in Las Vegas Nv. I moved here about 9 months ago and brought my chronic Lyme disease with e. I am looking for a Lyme Doctor here. Please help.

  57. Barb Van Wie
    August 21, 2013 at 7:51 pm

    hey
    I have a niece that is very sick with lyme disease – any lyme md in MN metro area that one would suggest

    • Vicki E
      September 27, 2013 at 8:27 am

      Barb Van Wie, if you find a doctor in mn please let me know!

      • Brigid
        November 27, 2013 at 1:17 am

        I have a doc I see in Mn who works with a doc in Mpls. Their protocol is wonderful and address chronic Lyme. I want to protect my doc. How do I get info to everyone? I am only one month into treatment. He is awesome!

        • Valerie
          December 1, 2013 at 11:09 am

          Brigid, could you email me the name of the doctor in MN? Val at meadowmuffinfarms dot com Funny, but my husband was treated with Doxy twice a day for 21 days-42 capsules. My 60 pound dog was just treated, got 120 capsules! What’s wrong with this picture?

        • Angela
          July 19, 2014 at 9:14 am

          Brigid,

          How is your treatment going? Would you still recommend your LLMD in MN? If so, could you please email me at “starspangeled AT gmail.com”. I do have an MD who has been great – prescribed 2 weeks of doxy at the outset (I did bring the tick with me, so it was pretty obvious that I was at risk), when that didn’t work she did another 2 weeks. When that didn’t work, she did a set of four antibiotics shots (ouch!), and did another 30 days of doxy. I am one week away from being at the end of the doxy and still having symptoms. She says the next step is referring me to Internal Medicine, but she doesn’t know if we can find one that will continue to treat it aggressively. Any suggestions?

          Thank you!

  58. Mary Lisa Johnson
    August 27, 2013 at 4:32 pm

    I’m looking for a LLMD in Virginia Beach, VA 23454. Thank You! Have bullseye rash. HELP!

    • Jasyn
      January 31, 2014 at 8:00 pm

      I know this post is old, but did you ever have any luck finding an LLMD? You’re in the same zip as me.

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  60. Mary
    August 30, 2013 at 7:20 am

    I was told yesterday I tested postive for Lyme can you please tell me if there is a LLMD in Vermont. I want to start treatment with the right doctor as this is nothing to play around with. Thank you

  61. Linda
    September 9, 2013 at 8:25 pm

    I am looking for a LLMD in Florida as close to Dunedin Florida as I can get but I will go as far asm I have to for treatment.

  62. September 10, 2013 at 9:33 am

    I am being treated in Raleigh NC for Lyme disease by a lyme specialist. I am not pleased with his employees, their lack of business experience. I’m looking for another dr. please help.

    • John
      September 17, 2013 at 4:51 pm

      Hi Joyce,

      My wife is also not pleased with her doctor’s office staff, and frankly the Dr. We had high hopes but are now looking again. Is your doctor in the Blue Ridge Road/Lake Boone Trail area by any chance?

      I seem to remember another doctor or practitioner in the Chapel Hill area. We are having trouble finding her but will post back when we find some more info.

      Take care,
      John

    • Cathy Harrison
      September 19, 2013 at 5:07 pm

      Please tell me what Dr. You saw?

      • Danielle
        September 24, 2013 at 9:46 am

        Dr. Steven Phillips

      • John
        September 24, 2013 at 11:43 am

        Cathy, she was seeing Dr. Pittman. We are still not able to locate the LLMD in Chapel Hill that we remember seeing in the past. Do you or anybody know any other LLMDs in the Raleigh-Durham-Chapel Hill area?

        • Jean
          October 6, 2013 at 11:36 pm

          John/All – You are likely referring to Jenny Franczak, MD in Chapel Hill, NC

          • John W
            November 6, 2013 at 3:15 pm

            Thank you Jean! That’s her. :-)

    • Sharon
      October 7, 2013 at 10:05 am

      If it’s who I think he is, he and his employees suck (starts with a P?). You might consider Dr. Beverly Goode.

  63. Jerry
    September 16, 2013 at 7:24 am

    Hello,

    Anyone know of any good LLMD’s in Los Angeles, CA? I have been suffering from an ever increasing list of symptoms associated with LYME, and it’s not getting any better… Traditional doctors following canon can’t seem to help me, nor appear to have the desire to dig any deeper.

    Thanks in advance.

    - Jerry

  64. Terry
    September 22, 2013 at 9:27 am

    Lyme sick for 5 years. My regular physician at the end of his ideas for antibiotic combinations which no longer work. Need a LLMD near South Central PA or PA/MD line. I cannot drive to Arlington to see the good doc there. No family support to help either. Can someone please help me find a LLMD near zip 17340? Please. I am incredibly weak, horrible flu symptoms, sleeping 12 hours + per day.

  65. Rachel H
    September 22, 2013 at 4:42 pm

    Hi,

    I saw a post earlier about someone getting treatment in Chapel Hill. I live in Wilmington, NC and every dr. I have seen blows off my two positive Lyme tests just because i never had a rash. I have all the symptoms, all other labs are negative and they are still hesitant…I need someone who is compassionate and understanding. PLEASE help!!! I will drive too.

    Thank you

  66. Vicki E
    September 27, 2013 at 8:25 am

    Need to find a LLD for a family member in central Minnesota or twin cities. Thank you!!

    • Kay
      January 10, 2014 at 1:40 pm

      Here are the names of the four medical doctors (given to me by Dr. Radovsky) who treat Lyme in the Twin Cities using the ILADS (http://www.ilads.org/) protocol. Not all take insurance. If they are not taking new patients ask them to have the doctor call you and refer you.
      Laurie Radovsky, MD
      651-326-5650

      Dayna Wolfe, MD
      651-235-9029

      Helen Odland, MD
      651-294-3234

      Chris Foley, MD
      There are 2 MD’s by this name (I looked them up). You would have to call them to see which one is treating Lyme.

      Rebecca Keith – nurse practitioner mentioned by my chiropractor
      14880 County Highway M Cable, WI 54821
      (715) 798-3557

      You can also call: Elizabeth L Maloney, MD. She no longer treats patients but is willing to talk to you about Lyme and give you the names of ILADS trained MD’s.
      PO Box 84
      Wyoming, MN 55092
      651-335-0569 phone

  67. Dina
    October 3, 2013 at 1:45 pm

    Anyone knows of a good Lyme siecialist close to Indianapolis , Indiana please ..
    Help I am going crazy ..

  68. Jean
    October 6, 2013 at 11:43 pm

    As a note of encouragement to all(having contended two acute journeys in neuroborreliosis/Lyme) over the past couple decades …. remember, for any of those condescending physicians, “They don’t get it until THEY get it!” .. so truly, stay focused on your recovery and don’t waste efforts on letting them ruffle your feathers to the point of further sickening you. Laser-like-precision, stay focused…as you walk across that tight-rope climb. Don’t look down, down look back – eyes straight forward. Those condescending docs are down at your sides, don’t waste time looking down at them, back at them… sometimes a blur of life is purposeful, because you won’t remember every single arduous attempt to winning back your health. Yes, it’s a long way back.. and we continue to work it, but little by little.. you will be amazed. Those discouraging “others” are not worth your heartache or YOUR future. Stay focused on the LLMD as ur lifecoach at this time and “there will be life” outside of this, some tough days but some very good days. They can’t take away our dignity!

  69. Laurie
    October 14, 2013 at 5:05 pm

    I am looking for an LLMD in Massachusetts. Can anyone help?

  70. Susanne Lee
    October 21, 2013 at 10:20 am

    My husband has been suffering with Lymes for 2 years and we would love to see a doctor who’s specializes in this area. We live in North Dakota but can travel. Any information regarding a doctor in our area would be very much appreicated! Thank you for your time!

    • Brigid
      November 27, 2013 at 1:23 am

      I can help you. I am just south of Fargo and I see a doc in Mn. I am one month into treatment and have had Lyme disease for 28 years. Please contact me. I want to help you. I know how devastating this can be. djsammyg@yahoo.com I will contact you as soon as I see your email. God bless.

  71. missy
    October 24, 2013 at 12:41 pm

    The only lab I know of that specializes in testing of lyme and all the co infections if iogenex in Cali. The number is 800-832-3200. It cost $475. for the lyme test only and $780.+ for Lyme and co infections tests. They are the most accurate lyme lab I know of. They don’t take insurance but you can submit the bill to your insurance yourself and see what happens. Hope this helps someone. I know a LLMD in Carlisle Pa, Myerstown, Pa, N. Va and Rockville Md, if anyone needs them send me a reply. None of them take my insurance so I’m stuck with out a dr. But maybe someone else can use them. Let me know.

    • JUDY
      March 4, 2014 at 8:56 pm

      MEDICARE covered testing for Lyme and its co-infections that were sent to Igenx. FIGHT your insurance companies! They EXPECT you to give up when they turn you down. Be the biggest pest they’ve ever met; go up the chain of command. Write letters to them. DON’T GIVE UP!!! I once had corrective jaw surgery and the doc told me the insurance company probably wouldn’t cover where they had to cut the bone from my chin (I had to have my jaw brought forward after years of braces and would have had a protruding chin). I told the doc to “send it in anyways, you’ll probably get some idiot” (drones that sit in cubicles hating their jobs). Well, I must’ve got the biggest idiot of them all because not only did the doctor and the hospital get paid, I received a $5,000.00 check which paid me for the entire procedure including hospital costs!!. Kept it for 5 months and cashed it with a big new smile on my face. My motto: “Nothing ventured; nothing gained”

    • eleanore echevarria
      May 10, 2014 at 1:51 pm

      Dear Missy,

      My son has Lyme and I am looking for a good LLMD in our area. If you could provide the doctors you know about in Carlisle PA and Myerstown PA I would really appreciate it. I will have to look into how to pay for the treatment, but it is for my son and I have to try to figure out something. P.S. I hope that you have found someone who will help you, and are starting to get better. Good Luck!

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  73. Lisa
    December 1, 2013 at 12:12 pm

    I recently tested positive for Lyme with both ELISA and the Western Blot. I live in AZ but have traveled all over the US. I used to hike and backpack a lot but in recent years can hardly walk. I have seen various MDs for many years but only recently was I tested for Lyme. I was referred to a rhumatologist, who put me one one course of Doxy. I initially felt better, mainly the soles of my feet, which have been extremely sore for years, felt better; however I am now on round 2 of Doxy and feel worse. I have a variety of symptoms. I live in Tucson but would travel anywhere in Arizona for a LLMD. Any suggestions? Also my rhumatologist does not believe in “chronic Lyme” so I barely got month 2 of antibiotics. Any help/advice/recommendations are appreciated. Thank you.

    • sheila
      June 22, 2014 at 2:07 am

      Lisa,
      Both my mom 83years old and I got Lyme from my sisters dog tucson. Got my doxy in mexico. My mom is so sick in Montana. I live in las Vegas. Desperate for Lyme literate doctor. Have you found one? Any help wud be appreciated.

  74. Mary E Schettler
    December 15, 2013 at 11:16 pm

    I was just diagnosed with Lyme disease after being sick for almost 7 years. They did all the conventional testing but it always turned up negative. I am seeing Infectious Disease and my primary this week. What should my first priorities treatment wise be?

  75. Garf
    March 4, 2014 at 1:47 pm

    My husband has symptoms of chronic lyme disease. He has been in misery for years. Please help me find doctors in the Minnesota area.

  76. Dan
    March 5, 2014 at 1:28 am

    I am not sure what symptoms of Lyme’s Disease is. I have been treated three time with antibiotics and the the disease are still present./ I have numbness, pain in muscles and joints, tendonitis and weakness, No nausea or fuzziness, just a feeling of not being right. Help. I just want to get rid of the infection and take if from there.

  77. Norma Skjold
    March 14, 2014 at 5:06 pm

    Have had haphazardly treated lyme for years & now it’s diagnosef as MS. sure am looking for a lyme literate doctor in NE or SD. Or KS or IA!

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  79. Kristen Young
    March 26, 2014 at 5:51 pm

    I see Dr. Humera Malik, in Arlington, VA, who was referred to me by a close friend, also a Lyme patient. Frankly, I have been really impressed with Dr. Malik’s down to earth persona, her vast knowledge of Lyme disease, and her holistic treatment focus, which all put me at ease. Dr. Malik is a professional member of the International Lyme and Associated Diseases Society (ILADS). She does not believe in a overly aggressive anti-biotic approach, unlike some other LLMDs, and evaluates each patient, on a case-by-case basis, for a customized treatment protocol. I feel so much better today, all due to Dr. Malik, that I will highly recommend her to anyone, local or outside the DC metro area, to make the time and effort to go see her if they really want to get better.

    • Mindee Laumann
      July 7, 2014 at 12:07 pm

      Hi. My name is Mindee and I found your post looking at Lyme sites. I’ve seen Dr. Malik once to talk to her about the possibility of having lyme. Would you mind talking to me about your experience with her?
      Thanks,
      Mindee (mindee62@verizon.net)

  80. Mark Stokesbury
    April 23, 2014 at 6:10 pm

    Can anyone recommend a LLMD in the Denver, CO. metro area?

  81. deb
    April 29, 2014 at 1:42 pm

    Hi Can anyone recommend a good Lyme Literate Doctor in CT?

  82. SB
    May 2, 2014 at 8:52 am

    Any ideas for treatment in and around Ohio? We are willing to travel. My mom has been treated with antibiotics but is in an enormous amount of pain. She needs help.

  83. MK
    May 20, 2014 at 9:42 am

    Hi. I am suffering with Lyme and many co-infections alongside both of my children 9 and 11. Does anyone know of a LLMD near the Grosse Pointe, MI area? We are willing to travel, as well. We currently are seeing a Lyme doctor, but the office staff is not professional, rush our appts we wait months for, do not listen to concerns or return calls. Plus, we are not seeing any improvement. It is breaking my heart watching my little loves get weaker every day. Any help is appreciated!!!! Thank you.

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  85. Tammy
    June 17, 2014 at 3:31 pm

    My 10-yr old daughter developed a bulls eye (EM) Rash one week after we pulled a deer tick off her. We went to ER Sat. 6/15/14 got a 14 day Doxy prescription for which she started on. 2 days later we saw her primary dr and her dr confirmed our daughter has Lyme.

    Our daughter is otherwise healthy up to this point.

    Her primary dr gave another 14 days of Doxy. I am reading from the internet we need longer period of Abx? To fight it off while it’s early… Others are saying no, not only would it hurt her gut flora w/prolonged use but Doxy is thought (by some) to be related to causing Lyme spirochetes into cysts.

    I’m so confused…

    We are looking to see a LLMD in our area, but long wait for new patient appointments.

    What to do? Day 2 in diagnosis.

    HELP!

    Concerted Mom 6/17/2014

  86. Jess
    June 19, 2014 at 3:16 pm

    Thanks to all of you folks who put me in touch (and in the medical care) of Dr. Humera Malik in Arlington, VA. She is one amazing, knowledgeable, and personable LLMD. Despite having suffered with chronic Lyme for so long, I now feel so much better after being in her medical care. I highly recommend Dr. Malik to those of you who have not had much success with your current health care providers. Be well!

  87. Positive for bartonella
    June 25, 2014 at 4:02 pm

    Can someone recommend a couple of good Lyme literate MD’s in the Buffalo NY area?

    We live in the Toronto area and our naturopath said we need to go to the US to be able to get started with antibiotics to fight off “bartonella” as part of a combination antibiotics and natural treatment program.

    Thanks in advance. Would like to make an appointment immediately.

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